Romosozumab for Osteoporosis User Reviews (Page 2)
Brand names: Evenity
Romosozumab has an average rating of 6.0 out of 10 from a total of 47 reviews for the treatment of Osteoporosis. 45% of reviewers reported a positive experience, while 30% reported a negative experience.
Reviews for Romosozumab
- Carolyn...
- Taken for 6 months to 1 year
- May 19, 2023
Evenity (romosozumab) "I have been on Evenity for 7 months, and thankfully, I have had minimal reactions. The only side effect I have noticed is some soreness in my arms after the injections. Additionally, I have experienced hair loss, which I believe is linked to this medication. Considering my conditions of RA and Osteoporosis, I am overall satisfied with the treatment. I will have to wait until October 2023 for the results of my Dexa scan."
- Joy
- Taken for 1 to 6 months
- March 27, 2023
Evenity (romosozumab) "I have had three monthly injections of Evenity with very few side effects. I have had a slight headache but not severe. Also joint discomfort with the last 2 injections. I am scheduled for the full year of treatment."
Frequently asked questions
- calired
- Taken for 6 months to 1 year
- October 23, 2022
Evenity (romosozumab) "Heading toward my tenth Evenity injection this month (end of Oct.22'). No problems. An easy injection process by my Dr. Had a little joint pain at the outset, but nothing of any consequence. Blood tests have been fine. Vit D and calcium levels normal. Perhaps a little tiredness at times could be attributed to the drug. I will see with my bone density score at the end of the process if it was all worth it. I hope so."
- Anonymous
- Taken for 6 months to 1 year
- April 9, 2023
Evenity (romosozumab) "I just had my 8th injection. The injection pain for me is very mild. I have a long history of Rheumatoid arthritis. I feel like after being on Evenity that my pain has increased. I have more pain in my groin, in my right leg and ankle, in my hip, and sacral area. My pelvic and sacral areas were both fractured about 13 months ago. I had been on steroids for the RA for many years off and on. I do believe that is what caused the osteoporosis and a spontaneous fracture in my left leg. I am hoping all the pain subsides a bit when I finish the Evenity. I am going to do the 12 months."
Are you taking this medicine?
- CSmith
- Taken for less than 1 month
- August 21, 2023
Evenity (romosozumab) "I just had my first shot the first week of August (three weeks ago.) I have a continual headache which affects my affect. When I hurt, I feel annoyed a lot. My jaw also hurts and I thought that maybe I needed to see a chiropractor. I have been adjusted and I still hurt. I am also having involuntary toe and ankle cramps that electrolytes do not help. I am drinking almond milk by the quart to make sure the cramps are not from low calcium. Right now, I do not like this medicine at all."
- Janet...
- Taken for 1 to 6 months
- June 26, 2023
Evenity (romosozumab) "I have had five injections of Evinity—slight tenderness at the injection site for a day or two after injections - no big deal. I have not noticed any serious side effects. I got on this site to see if anyone has experienced new hair growth. My hair had been falling out for five years, probably due to high doses of prednisone. I have noticed in the last few months huge hair growth! I wondered if new bone growth could also result in new hair growth. After reading more, it seems that, if anything, Evinity might cause some hair loss! Maybe my new hair growth is that I have been able to significantly reduce my prednisone use because I got on a drug that is helping with my RA. I don’t know if it has helped my bones because I haven’t taken another bone density test."
- Anonymous
- Taken for 1 to 6 months
- November 15, 2023
Evenity (romosozumab) "The 1st month I took it, I had the flu right after and thought I was doomed. I am in the third month and no reactions at all. And my body is highly sensitive to most medication. Keeping my fingers crossed, I can get through the full year and make sure I take my calcium supplements."
- Callie
- Taken for 1 to 6 months
- October 20, 2023
Evenity (romosozumab) "I just had my third set of injections of Evenity. I’ve been feeling alright (no side effects) until the third set. I’m now feeling slight joint pain. I notice it mostly in my left shoulder and my left wrist. It’s not terribly bad…it’s just there. I’m grateful for this medication because my osteoporosis was very bad."
- Jay...
- Taken for 6 months to 1 year
- December 14, 2023
Evenity (romosozumab) "I have been taking Evenity for around 11 months. Sometimes, the injection sites hurt after getting a dose the next day. I chose my arms because my hip area hurt quite a bit after getting the doses. I get my shots at an infusion office where I see the same two RNs. I am hoping my bones have significantly improved. Then, it's on to Prolia for several years, but that is only once every 6 months, NOT once a month. I was unable to take oral medication because of stomach issues. Osteoporosis runs in my family. The itching is pretty unpleasant but not so bad that I would quit. I am in month 11 out of 12. Looking forward to being done."
- donna
- Taken for 1 to 2 years
- April 9, 2024
Evenity (romosozumab) "I was having trouble getting bones stronger for surgery. I used Evenity shots for 12 months. The doctor doing the surgery said that my bones got so much stronger that it was hard as stone. He was well pleased with Evenity."
- Callie
- Taken for 1 to 6 months
- December 12, 2023
Evenity (romosozumab) "I will be getting my fifth injection in a week. I've had some joint ache but not enough to warrant stopping these injections. I've been actually doing alright and feeling pretty good. I haven't had a repeat bone density test yet, so I can't really comment on whether or not this is working. I can only hope it is. I have a bit of local soreness after the injection for about a day and then it's gone. My neurosurgeon recommended this as a way to help my very bad bone situation, and so I'm pleased that there's at least (hopefully) a fix to it."
- Anonymous
- Taken for 6 months to 1 year
- March 26, 2024
Evenity (romosozumab) "Just finished 12 months of injections. At age 56, Lumbar T-score was -3.1 and now is -1.9! Hip T-score improved, but not as much... -2.9 and now -2.5. Only side effect was 1-2 soreness at the injection site. I'm pleased with the result and will see what ongoing maintenance will be in a few weeks."
- skinny
- Taken for 6 months to 1 year
- March 21, 2024
Evenity (romosozumab) "I started Evenity in June 2023 and I was 135 lbs. I was very pleased with Evenity because it didn't make me sick like Boniva did. I just got my 9th dose this morning but have been experiencing unexplained weight loss. After several tests, I now weigh 113.6 lbs. My BMI is only 16.8. I will have a DEXA scan next month to see if there has been any improvement. I am on a wait-and-see basis to determine if I can tolerate my next 3 injections with so much weight loss. The only other side effects noted were pain at the injection sites and a hard lump at the injection sites for about 3 days each time."
- Becky
- Taken for 6 months to 1 year
- March 28, 2024
Evenity (romosozumab) "From blood tests done, I know that Evenity has increased my retention of bone; bone building took place in the first 2 months. I have a severe headache for 1-2 days after getting the injections. I also have increased stiffness that is 24/7."
- ENK
- Taken for 6 months to 1 year
- March 22, 2024
Evenity (romosozumab) "No side effects during the first 6 months of treatment. After injections 7 and 8, some muscle pain in shoulder and thigh for some days. Density of backbone went up from -3.7 to -2.7 after 6 months; in thigh bones, there was slight improvement."
- pattia
- Taken for less than 1 month
- May 1, 2024
Evenity (romosozumab) "Just started 2 weeks ago but I had injection site swelling and a painful area felt like it was inflamed. The nurse who gave the injection said there would be no swelling or pain when I asked about it. I know not everyone has this problem, but my arm was swollen and painful for five or six days. Not looking forward to the next injections, wish the nurse had told me that the reaction is not likely but possible. Monthly injection is convenient, and my reaction, although painful, is tolerable."
- Callie
- Taken for 6 months to 1 year
- April 29, 2024
Evenity (romosozumab) "Today (4-29-24) I rec’d my 9th set of injections. For the 1st few months I was so miserable. But over the last 2 months I’ve noticed a big improvement in how I’m feeling. I was dealing with severe body aches, bone aches, & insomnia. I was living on ibuprofen…which is bad with continued use. But I couldn’t function without it. But my last 2 injection dates I’ve begun to feel amazing. No more aches! I can feel strength in my back. I feel stronger than I did. It’s hard to put it into words but I feel a big difference. I had considered stopping at one point because the body pain was so terrific. But I decided to gut through it & see if there’d be a positive change. The last 2 times of my injections…I didn’t even get sore arms! I was pleasantly surprised. I normally have local swelling, itchiness, puffy redness, and couldn’t even comb my hair for a couple of days. I get another bone density test in September. I’m hoping for a big positive change."
- Lorai...
- Taken for 6 months to 1 year
- May 9, 2024
Evenity (romosozumab) "I have so far completed 6 months of Evenity injections. So I am halfway through my course. So far I have had very few problems, just a bit of joint pain and slight nausea. I am excited to see the results of bone scan at the end of this treatment."
- Selda
- Taken for 1 to 6 months
- August 7, 2022
Evenity (romosozumab) "Hip, thigh and leg pain. Very brittle, peeling nails, weight gain around abdomen and legs. Depressive mood. Heart palpitations and increased appetite."
- Deb
- Taken for 1 to 6 months
- March 6, 2023
Evenity (romosozumab) "I have taken this for 6 months now and my bone scan scores have improved. However, it is making me very tired which is leaving me a little depressed."
- Yola
- Taken for 1 to 6 months
- September 30, 2023
Evenity (romosozumab) "So far, there have been no side effects and no issues."
- Serena
- Taken for 1 to 6 months
- August 5, 2023
Evenity (romosozumab) "Tingling hands and feet Headache Jaw pain Teeth numbness"
- terri
- December 8, 2023
Evenity (romosozumab) "Going for my 3rd dose. Only problem is pain and stiffness in joints. I have osteoarthritis. It seems to make it more painful."
- Osteo
- Taken for 6 months to 1 year
- June 11, 2022
"Took this for 12 months with no side effects and experienced strong bone growth (even above clinical trials)"
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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- Drug class: miscellaneous bone resorption inhibitors
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Evenity (romosozumab) "Last August, I completed 12 months of Evenity treatment. I had very mild side effects only on the day after each series of shots: a mild headache and feeling a little tired. The injection sites in each arm were sore and tender for a week, but completely tolerable. After experiencing 2 spinal compression fractures and being on reclast for 3 years, I welcomed each Evenity shot! I'm happy to report that I haven't experienced any new fractures, which is definitely worth celebrating!!! Additionally, my endo was able to get me into a program that covered the drug copays."