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Oxcarbazepine User Reviews & Ratings (Page 3)

Brand names: Trileptal, Oxtellar XR

Oxcarbazepine has an average rating of 7.8 out of 10 from a total of 346 reviews on Drugs.com. 70% of reviewers reported a positive experience, while 13% reported a negative experience.

Reviews for Oxcarbazepine

  • Anonymous
  • December 11, 2016

For Bipolar Disorder "This drug has helped me so much, I used to be on a low dose benzo and an antidepressant and I felt terrible all the time, I had many racing thoughts about hurting myself and dying, I couldn't control myself at all when I felt anxious or too happy, which came followed by depression, but when my doctor replaced my benzo with this, the intrusive thoughts stopped. I got ocasional headache and dizziness (these are the only side effects i got) at first, but the side effects have gone away now after a couple months. I can finally function normally without terrible mood swings that ruin everything. I take 600 mg a day, 300 at morning and 300 at night."

10 / 10
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  • Penguin
  • April 27, 2016

For Bipolar Disorder "I have been on many different medications for my bipolar for the last 8 years, and have been on Trileptal for 9 months. This is the best mood stabilizer I have ever been on. With this in my treatment regimen, along with some other good meds (celexa, prolixin) I am the most stable I have been in my life. It also has minimal side effects. It has a nice calming effect without being sedating or causing cognitive impairment, and it doesn't increase appetite for me like so many similar meds do. I started on 300 mg twice a day and about two months ago had to be increased to 600 mg twice a day. I did experience about a week or so of dizziness when first starting this medicine and when increasing the dose, however no side effects now."

9 / 10
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  • Gano
  • Taken for 1 to 6 months
  • August 2, 2020

For Anxiety "I have been on this medication oxcarbazepine for about 4-5 months. I was better maybe 1-2.5 weeks and then suddenly I got worse. My therapist upped my dose and I have continually gotten worse. I’ve only now realized that it is because of this medication. I have tremors, sleep problems, agitation, obsessive thoughts, my mind races, mood swings, the list goes on and on. I’m hoping to get taken off of this and that it is a smooth transition."

1 / 10
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37 Report
  • Esta
  • Taken for 1 to 6 months
  • March 18, 2021

For Trigeminal Neuralgia "I was diagnosed with TN in January. Started out on very low dose and frequency . Doctor gradually increased because it wasn't working . I was about to give up but finally am taking a total of 900 mg/day and it's working! I was about to schedule Gamma Knife Procedure before it kicked in. I do get very sleepy in the daytime and am tired, but probably tired from the pain that wore me out !!!! Hang in there if you are just starting on this med"

8 / 10
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  • kimmu...
  • Taken for less than 1 month
  • December 5, 2015

For Bipolar Disorder "Gabapentin was a life saving drug In regards to getting my bipolar under control. Before then, I had taken just about everything there was out there for bipolar, some would work, short lived, others I would not work at all. I was so angry all the time, for no apparent reason, and Lord forbid someone say something to me that upset me, I'd bite their head right off and say mean, hurting words to those that I love. Finally, I was stable, no roller coaster moods, anger or rage. The medication also calmed my severe anxiety and I was able to get off of xanax, which I had to have or I'd be a nervous, shaking, tremor in wreck, all day everyday !!! I might also add, that my severe depression was lifted, finally, I feel alive,well, and stable again."

8 / 10
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  • Annoy...
  • February 14, 2018

For Trigeminal Neuralgia "Diagnosed with Trigeminal Neuralgia in 2011 after 2 root canals and 2 crowns. A new dentist sent me to an oral surgeon who knew what it was right away. Saw a neurologist and he confirmed the diagnosis and prescribed oxcarbazepine. It took a number of weeks to ramp up the meds to the correct level due to nausea. Currently taking 900mg at night. Really makes me feel loopy and drowsy. I have been pain free for most of the past 6 years. I also play trumpet daily, which amazes my neurologist. However, I feel I am not as sharp as I used to be (just turned 60) and have memory problems to the point of literally not recalling details of recent things. (Long term memory is fine.) There are also times during the day that I feel very sleepy."

8 / 10
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  • crust...
  • February 15, 2015

For Bipolar Disorder "This medication saved my life. Before, I was crying nonstop and having extreme fits of rage and woke up every day wanting to day. Now that I've had it in my system for about 3 weeks, I don't feel perfect obviously but I feel much evened out. I'm not euphoric but I'm not severely depressed either and they don't switch from one another like they used to. For a long time I could barely sleep and now I can finally sleep through the night. I'm much more rational and I feel that it's much easier to go about daily life and now I'm finally working on repairing my relationships with people. Great drug"

9 / 10
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  • ASJ
  • January 10, 2013

Trileptal (oxcarbazepine) for Seizures "My son of 7 has been on Trileptal for 2 weeks. Immediately the most evident side effect was solemness. A week into therapy he was playing outside and complained of dizziness, weakness and pain all over. Thanks to literature at Novartis site is very comprehensive so I found out about Hyponatremia (sodium level becoming very low). A few drops of concentrated table salt solution in both ears immediately took care of the problem. As for seizures, he hadn't had any. But then, we only found out about his rare nocturnal seizures by coincidence. He did have night terrors twice a month before. We haven't had any of those yet."

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  • happyme
  • Taken for 6 months to 1 year
  • March 19, 2017

For Anxiety "My son's in his late teens and has anxiety and A.D.D. He had also gone through episodes of depression. Other prescription drugs left him zombie like. Oxcarbazepine has been a miracle drug for him. It took about 2 months to get to the right dosage. Please keep in mind everyone is different. He was only allowed to move dosage up once a week then every 3 days after a few weeks. Yes he felt tired for 1-2 months but after a few months he says it's life changing and we haven't seen him this happy in years. He's been taking it for almost a year now with no problems. He takes 200mg caffeine for his ADD and it calms him down so he's doing great in college."

10 / 10
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  • LisaG
  • Taken for 1 to 6 months
  • May 6, 2019

For Bipolar Disorder "Trileptal has changed my life for the better. The only reason I give it a 9 is because it's been a bit sedating for me. But because it works so well, I've continued to take it. In fact, Trileptal is the only reason I am able to physically leave this review... otherwise I am emotionless and numb. I am happier over all and able to appreciate life since starting Trileptal. I wish the best for anyone willing to give Trileptal a shot. ~ Lisa"

9 / 10
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  • crazy...
  • Taken for 1 to 6 months
  • April 9, 2016

Oxtellar XR (oxcarbazepine) for Bipolar Disorder "This is a cleaner way of taking trileptal, it really does make both medication management and the side effects easier to manage. On generic trilepetal I needed to medicate twice daily & the morning dose really put me in a fog, not to mention how intense the headaches could get about 30 minutes after my 3x evening dose. Now the headaches still come but are far less intense & the onset is hours later. Also, the lethargy factor is greatly reduced, I take 900 mg. @ 6 PM & I'm ready for bed at 10:30, not focused on getting to my pillow all night like I was previously. This medication does interfere with my ability to urinate within 2 hours of taking it. As for the positives, I'm a rapid-cycler & days are most certainly more stable. Give it time"

8 / 10
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  • mtncl...
  • Taken for 1 to 6 months
  • August 7, 2012

Trileptal (oxcarbazepine) for Trigeminal Neuralgia "Stopped the incapacitating seizures. Side effects are bothersome but not as awful as the seizures: Sugar-sweet taste of all food, fatigue, occasional nausea, memory issues, sight issues, balance problems."

8 / 10
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  • Panca...
  • October 1, 2010

Trileptal (oxcarbazepine) for Trigeminal Neuralgia "This medicine has been a LIFESAVER for me, because quite frankly, facial nerve pain can drive a person over the edge. It can be very good for those suffering from Trigeminal Neuralgia. I give this medicine a A . Thank You "

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  • Glad...
  • Taken for less than 1 month
  • August 3, 2013

For Trigeminal Neuralgia "I was taking Tegretol for about 2 years and it suddenly stopped working. The pain was insane and uncontrollable. My neurologist prescribed Oxstellar XR, but it was too expensive so he gave me samples of Trileptal and it worked extremely well. He then prescribed oxcarbazepine which was less expensive, it is a life saver. I'm probably taking too great of a dose but it's out of paranoia of the pain. Looking to have the surgery in case the medicines stop working."

10 / 10
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  • mads
  • Taken for 2 to 5 years
  • March 13, 2021

Trileptal (oxcarbazepine) for Seizures "THIS WAS THE MEDICATION I had epilepsy for 8 years mainly during puberty years. I was on trileptal once before the last time but due to the low dosage the medication was ineffective. I went to a new doctor and he placed me back on trileptal but increased the dosage of the pill and that was the beginning of being 4 years seizure free and then I was given the news after 5 years that I had officially outgrew my epilepsy."

10 / 10
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  • Sarah
  • Taken for 2 to 5 years
  • August 17, 2021

For Anxiety "Oxcarbazepine made my anxiety go away. I was a mess of rumination, severe worrying, couldn’t sleep, worrying about the future, and had thoughts of suicide daily because I was so depressed. My doctor prescribed this but I was skeptical. Now I take 300 mg once daily at night. It has changed my life. I will never stop taking it if I don’t have to. I’ve been on it for 2 years, and all those symptoms are gone! It never made me feel sick, just sleepy, so I take it at night. I wish I had gotten help sooner. I didn’t do myself any favors as I went on YouTube watching people get sick from taking it, so I was scared to try it. None of that happened to me. Within about a week I was feeling better. Note, I also take 10 mg of Lexapro daily. I split it in half and take 5 mg in morning, and the other 5 in the evening. I started taking Lexapro first, but nothing really happened to help. Once I started the Oxcarbazepine, that’s when things changed for the better."

10 / 10
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  • BipoG...
  • Taken for 2 to 5 years
  • June 11, 2016

For Bipolar Disorder "Lithium put me in the hospital for a month. I was on a respiratory tube 10 days and in a coma for 2. It really worked before this stay. I was also in renal for 10 days. Once I was released my doc tried Trileptal with an anti-anxiety med and I have been episode-free for almost 3 years. Lithium is great but have your blood levels checked VERY frequently. If you're having trouble with other medz, please consider giving this a try. I feel like a different person!"

10 / 10
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  • Miran...
  • October 31, 2011

Trileptal (oxcarbazepine) for Bipolar Disorder "I've been taking Trileptal for bipolar disorder for years. I switched from Depakote as it made my hair fall out and I hated the monthly blood tests. I take a large dose of Trileptal, 2100mg/day and shortly after taking it I may have some short-lived side effects (tingling in my face, mild double vision and sleepiness) for about a 1/2 hour. My doctor says I might avoid these if I'd split it into morning and evening doses but I have no doubt I'd forget the morning dose regularly. Trileptal has been very good to me! I still take a low dose birth control (Norethindrone 0.35mg/day) to help with "monthly" ups and downs and we've added Lamictal for it's antidepressant effects (I found out anti-depressants may increase cycling). I've never felt this "Normal" before!"

9 / 10
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  • Anonymous
  • Taken for less than 1 month
  • February 20, 2018

For Anxiety "I was having bad anxiety at night that would prevent any sleep. Some nights if lucky I'd only sleep 3 hours at most. So then my Dr told me to take this and instantly noticed a difference I'm actually able to sleep now!!!"

8 / 10
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  • Anonymous
  • March 12, 2018

For Bipolar Disorder "I am BP2 and have been on so many drug combinations for the Disorder. I gained about 30 lbs on Depakote/Zoloft combo. The absolute worst is when I was put on Topamax. Anyway, I was recently moved to Trileptal. I thought to myself here we go again. The first week sucked because I had a never ending headache and nausea. The second week I debating going off the drug, because I was seriously sick and tired of feeling sick. But, I decided that I would try something different by eating small meals every couple of hours and that ended the nausea right away. The headache went away about midway through that week. This has been the absolute best I have felt in years!!!! I am so happy not to he hungry all the time like I was on the Depakote. I am hoping that my hair starts growing back, because on the Depaoke half of it fell out. My quality of life has really improved. My moods are stable, and I feel great and want to go to work everyday!"

10 / 10
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  • Yukon...
  • December 27, 2015

For Bipolar Disorder "I have been on Triliptal for a few years and it helps a lot. Did see that it has a pain relieving effect, big time. It decreases anxiety, helps with sleep, mellows me out and at times I can't feel like my legs which is amusing since I realize this med. has a big effect on decreasing nerve pain, muscle pain ..... any pain? So, now onto the side effects: Low sodium, decreased heart rate (for me anyway) I also can't remember things, and when I read -- well that doesn't work out too well, but I try. I can't remember what I read. I space out a lot. I also don't feel like eating. I used to take Tegretol and that was awful, so I am pleased with this med. I take 1200 mg per day. It is hard with the 600 mg in the morning (I want to sleep)"

9 / 10
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  • girlw...
  • November 21, 2017

Trileptal (oxcarbazepine) for Seizures "I started taking Trileptal when Tegretol stopped working for me. I love this medication. I developed epilepsy following a head injury (diving accident) when I was 8 years old. I've had seizures (daytime absence, daytime partial, nocturnal grand mal) since then. Tegretol worked for me for years, then stopped working. Trileptal has been my only seizure medication for the past 11 years and I couldn't be happier. I have to add salt to my diet, and I get very flush whenever I exert myself, but being completely seizure free is worth these small inconveniences."

10 / 10
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  • Anonymous
  • April 7, 2008

Trileptal (oxcarbazepine) for Bipolar Disorder "I have been on Trileptal for a month now, combined with a small amount of Zoloft, I feel wonderful. I have taken other mood stabilizers in the past, and this by far is the best one for me. I am a lot calmer (not a zombie)."

10 / 10
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90 Report
  • nik
  • Taken for 6 months to 1 year
  • January 30, 2024

Trileptal (oxcarbazepine) "Truthfully, I have not had bad experiences with this med. I currently take 600mg. I have Bipolar 2 and my anger outbursts when I have hypomania have decreased with Trileptal. I also take Seroquel 100mg for sleep and anxiety along with Sertraline 100mg. I actually take a fourth of my Seroquel (Doctor approved). But Trileptal has, I think... unless it's all in my head... has done wonders. No side effects, neutral feelings, a little foggy at times that it kind of annoys me. When I talk to people, I go, 'uh... I can't think of the word or place I'm trying to describe...' I was never like that. Oh, I get stomach aches... but I don't know if that's just my anxiety or a side effect. I'm extremely thankful for this med. I've tried a lot, except lithium... I could never. Also, Sertraline... best antidepressant I've had."

9 / 10
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  • Happy...
  • September 29, 2011

For Trigeminal Neuralgia "This has helped me tremendously. No face pain at all having Trigeminal Disorder. The pain can make you crazy. No pain pills helped at all. Take 450 mg every night and go right to sleep. Slept in a chair for 6 weeks keeping my head up and not being able to lay down in my bed to sleep. Cried every night with pain. Feel a little drowsy, fatigued and weakness some days but I'd rather deal with that instead of the pain. It's been two months now and I feel so much better. Good luck to all."

10 / 10
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74 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.