Gabapentin for Trigeminal Neuralgia User Reviews (Page 2)
Brand names: Neurontin, Gralise, Gabarone, Fanatrex
Gabapentin has an average rating of 7.5 out of 10 from a total of 35 reviews for the off-label treatment of Trigeminal Neuralgia. 71% of reviewers reported a positive experience, while 17% reported a negative experience.
Reviews for Gabapentin
- Raef
- Taken for 10 years or more
- September 11, 2017
"First prescribed gabapentin for trigeminal neuralia 25-30 yrs ago. It was great! Since then I have used it anytime Tylenol couldn't control any pain. Usually extreme stiff - sore muscles. I always worried I would build up a tolerance for it - consequently having to continually increase the dosage. To prevent this I never take it constantly and always get off it asap! Tremors are getting worse & I have never tried it for this condition. Just never occurred to me to try it. I will start tomorrow if it helps I'll not take a second dose until the tremors return. Treating as needed - not constantly. Hoping to ward off the tolerance factor. If the tremors are just an occasional nuisance - I can live with that."
- MIsta...
- Taken for 1 to 2 years
- November 30, 2021
"I was diagnosed with TN about two years ago. At first I tried Gabapentin but I didn't find the relief that others here are talking about. I switched to carbamazepine which calmed my face. However I was non functional and high as a kite while awake, but sleeping all day. I just noticed that the dose for gabapentin my doctor has me on is only 200mg 2X a day. This seems low based on others reviews. What worked for me was botox in the jaw muscles. I get it ever 6-7 months, and it works wonders after a week."
Frequently asked questions
- Lyrica vs Gabapentin: What's the difference?
- Does gabapentin help treat nerve pain?
- Is gabapentin considered a painkiller?
- How long does gabapentin withdrawal last?
- deser...
- Taken for 1 to 6 months
- July 31, 2021
"I was prescribed Gabapentin for TN as I am allergic to Carbamazepine. Initially (at 100mg 3 x day) I felt jittery but that subsided after a week or so. Once at 300mg 3 x day I began experiencing pins & needles in my arms/hands and legs/feet. My dose was reduced to 200mg x 3 and 5mg Baclofen added. The pins & needles remained in my arms/hands - which was more severe while driving (hands at 2 and 10). This was/is perplexing because that is the type of pain this drug is supposed to eliminate. As I stepped down to 100mg x 3 the jittery feeling returned. Through all this the TN pain was not reduced at all and the pins & needles remains. If you have Type 2 TN, which I do - before you start Gabapentin I would try to assess when your MD feels you should begin to notice a change in the pain. If it doesn't budge at that point in time - I would ask to stop taking this. I am now on 5mg Baclofen 2xday and although pain remains - it hasn't gotten worse which is a blessing with this disease."
- anise...
- Taken for 6 months to 1 year
- September 18, 2021
"I was diagnosed with Trigeminal Neuralgia in Feb 2021 (I am 50) and prescribed Carbamazepine, which caused an allergic reaction. Then I was placed on Gabapentin and slowly increased my dosage as it did nothing for my pain. At 900mg/day I still had no pain relief but my blood pressure dropped to just about 90/60. I also began experiencing tingling in my hands and feet. My dose was decreased to 600mg/day and we waited to see if it would provide relief. I became so fatigued and had such trouble concentrating I had to quit my job in June 2021. When the tingling became "zaps" accompanied by muscle aches and joint pain we began eliminating my dose. In Sep 2021 I have been off Gabapentin for a month. My fatigue and concentration are greatly improved, but I still have the tingling/aches/pain. I am told, although uncomfortable - it is not life threatening and may take months for it to completely heal. It very rarely is ever permanent. This side-effect, although known, is also extremely rare."
Are you taking this medicine?
- TMJ...
- October 23, 2015
"I am a nurse, never thought it would help, I had to retire. I awoke the second day with out a crippling head ache and facial pain. I really am able to do more and hurt so much less. I love it."
- Trish
- Taken for 2 to 5 years
- April 24, 2013
"I found that Gabapentin & Topamax reduced my Trigeminal Neuralgia pain by far but I couldn't think straight. So I stopped taking them and now I am in daily pain."
More FAQ
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- Anonymous
- March 14, 2011
"This medicine does not help me at all with Trigeminal Neuralgia. "
- Toffee
- Taken for 1 to 6 months
- August 2, 2020
"Am on maximum dose not helping at all in fact nerve pain worse than ever"
- Anonymous
- April 17, 2009
"Once my doctor prescribed this medication my pain was relieved within days. I have not had any problems since."
- Anonymous
- April 18, 2009
"I've had pins and needles in both hands from a pinched nerve in my neck. Muscle relaxers, stretching, new pillow, heat, nothing was working. This works really well."
- Anonymous
- March 13, 2009
"400mg life saver for normal flare ups but not strong enough for bad attacks. Good when used in conjunction with Topamax"
- Popcorn
- December 16, 2021
"It helps with restless leg syndrome but does nothing for alveolar nerve pain do to damage of nerve from root canal"
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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"In June of 2018 I was prescribed 300mg/ day of Gabapentin after having allergic reactions to other more effective drugs used to relieve the trigeminal nerve pain. Through the course of the next 6 months my dosage was increased to 3600/mg/day. Over that time period I began to experience pain in my feet, I'm on NO other medication. In Jan. 2019 I underwent Microvascular decompression (MVD) surgery so have been weaned off Gabapentin. I told neurologist about my neuropathy in feet but it was always discounted. Now, I have continued neuropathy in feet, hoping it will go away."