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Everolimus for Neuroendocrine Carcinoma User Reviews

Brand names: Afinitor, Zortress, Afinitor Disperz

Everolimus has an average rating of 5.2 out of 10 from a total of 4 reviews for the treatment of Neuroendocrine Carcinoma. 50% of reviewers reported a positive experience, while 50% reported a negative experience.

Everolimus rating summary

5.2/10 average rating

4 ratings from 4 user reviews.

Compare all 46 medications used in the treatment of Neuroendocrine Carcinoma.

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  • mimi
  • Taken for 1 to 2 years
  • March 22, 2018

Afinitor (everolimus) "I started taking Afinitor on 20 May 2016, and I've given the drug a 9 because I'm still very much alive, able to work (computer work), take a 25-minute walk every day, and receive visitors. I have had side effects, including diarrhea, neuropathy (feet and ankles), loss of energy, and mouth sores (very infrequent now). I take paracetamol (6 x 500 mg daily) for pain. My tumors (lung and liver) shrunk a tiny bit and then remained the same. I have CT scans, x-rays, blood and urine tests. My appetite is good. I do not live in the USA."

9 / 10
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11 Report
  • Anonymous
  • Taken for 6 months to 1 year
  • January 20, 2018

Afinitor (everolimus) "I started this April 2016 the side effects did not start until June. It started with diarrhea, then hemorrhoids ,then itching, weight loss, loss of appetite. I kept telling my doctor something was wrong but he told me to eat anything I wanted but the final situation was I got an infection in my right eye I was in hospital for 10 days. He only came once to tell me to stop taking the Afinitor. Upon release I had to go to a doctor who specializes in infectious diseases for 2 months and this was everyday. Weight wise I went from 162 to 124 I am now just skin and bones also the tumor just kept growing I went to another cancer doctor he performed surgery to remove the tumor. This medication is the worse"

1 / 10
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9 Report
  • Dakota...
  • Taken for 1 to 2 years
  • April 12, 2019

"Started taking everolimus orally 10mg daily December 5, 2017 for pancreatic neuroendocrine tumor metastatic to the liver in combination with a once every four week injection (30 mg) of Octreotide LAR. Tumors actually shrunk some during the first year; since have remained stable to April 2019. Do have occasional side effects - mouth sores, some weakness and fatigue, loose stool to occasional diarrhea. For the most part I function very normally. Good appetite. My weight is reasonably stable, and I do well in spite of a stage IV cancer diagnosis. For "PNET", pancreatic neuroendocrine tumors, this drug appears to be very effective - at least for me."

9 / 10
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5 Report

Frequently asked questions

  • BOB
  • Taken for 1 to 6 months
  • February 1, 2023

"I was prescribed to take this medication and had terrible side effects. The initial side effects of nausea and diarrhea were manageable however the rest of the side effects were not. I had a bloody nose that continued after using a humidifier and mupirocin, then I developed a large rash on my abdomen and waist that was like a mild sunburn with peeling. I also had a weight loss of 8-10 pounds and a loss of muscle mass which was not ideal as I am already underweight. Despite the side effects the medication was helping ease the skin flushing associated with carcinoid. I will not be continuing this medication as the side effects were too extreme for me."

2 / 10
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0 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.