Solriamfetol for Narcolepsy User Reviews (Page 2)

• Nad...
• Taken for 1 to 6 months
• July 26, 2022

Solriamfetol "I suffer from narcolepsy. When I used Sunosi for the first time, I can say it was effective from the first hour! That was like magic! But when I had to wake up so early at 5 a.m., it wasn't enough for the rest of the day, I was getting very tired in the middle of the day. I contacted my doctor, and he told me to double the dose from 75 mg to 150 mg if it wasn't enough for the rest of the day. But on the contrary, it got worse, and after 2 weeks of 150 mg of Sunosi, I felt as if the effect had become reversed! So he told me to return to 75 mg. Now I feel like a normal person, there are some days when I wake up late, so I don't take Sunosi to avoid staying up at night, but at other times when I use it, I can do my daily activities normally without having to sleep all day. For me, I didn't see any noticeable side effects from it, such as high blood pressure, that I monitored before and after using the drug for 10 days, and nothing happened so far. I have been using it for about 6 months."

• Ran...
• Taken for less than 1 month
• June 20, 2023

Solriamfetol "I have struggled with sleeping for more than 20 years. I'm 55. I was diagnosed with sleep apnea about three years ago, but CPAP did nothing to make me feel better. After an additional sleep study, I was diagnosed with narcolepsy as well. Typically would fall asleep around 11 pm, wake up at 3:30 am or 4:00 am, would feel fine until around 10 am, then be exhausted all day until bed. Very difficult to focus and complete tasks. Started on Sunosi about 10 days ago and have noticed a huge difference. I feel much more alert, not in constant brain fog, much more focused, and motivated to complete tasks. I forgot to take it one day and definitely noticed the difference. So far (short period of time, but hopeful), it has been great for me. I feel it about 45 minutes after I take it, and it seems to last me all day. Luckily, I have not had any side effects so far."

• Sle...
• Taken for less than 1 month
• December 19, 2022

Solriamfetol "I have narcolepsy and was on armodafinil for 3 months, and it worked great at first, but then all of a sudden it stopped working. My doctor gave me samples of Sunosi to try, and I didn’t think it was working well at first…but then I went back to the armodafinil, and it was like a 180 negative change. I had forgotten how bad it was without (working) medication! So I tried Sunosi at 150 mg for 2 weeks, and everything was better. No side effects. Some of the reviews here worried me, but I haven’t experienced anything negative yet. I am praying this continues to work because I am absolutely miserable without medication."

• Nuk...
• June 20, 2021

Solriamfetol "If insurance pays for this medication, give it a try. If not, don’t waste your money. I've been on every stimulant there is. I was excited about this, unfortunately, it's done little to nothing. There is no way this can be abused. It is only controlled because it supposedly treats narcolepsy. The only effective meds for narcolepsy are stimulants, so they put this in the same category."

• Anonymous
• Taken for 1 to 6 months
• March 5, 2022

Solriamfetol "I was put on Sunosi 75 mg after my insurance refused to cover my Adderall XL to help me with my narcolepsy. Long story short, I feel tired as if I’m not taking anything. I take Sunosi at about 6:30 a.m., and by 10:00 a.m., I’m feeling like I need a nap. This medication's cash price was $868.25 for 30 tabs, copay was $9.00. Seriously...! This medication has not helped, but I have not had any side effects."

• Bob...
• Taken for 6 months to 1 year
• January 30, 2023

Solriamfetol "I have chronic fatigue. We are not all the same. I get about 3 hours of awakeness and then sleep until about 8 p.m. Then by 11:00 I sleep for an hour and a half unless I take diazepam. At maximum dosage, I get 5-6 hours of sleep. What works for some will not work for others. We know the source of the problem - hypothalamic dysfunction. I go this week because the left vestibular artery is missing, which feeds oxygen and blood to the brain. For most doctors, this is all a big guess. Sunosi was my 4th medication to basically fail. But for others, it may work well."

• nap...
• Taken for less than 1 month
• September 22, 2021

Solriamfetol "Have tried Provigil, Nuvigil, and now Sunosi, all max doses, over the recommended doses, with Dr. instruction. They work for about a month, but then the cons greatly outweigh the benefits for me. Either they only last 4 hours, then I crash and burn, or I'm still struggling to stay awake, or I feel sick, or have brain fog and am unmotivated and totally useless. This has been very difficult for someone who has to work two jobs to make ends meet. I did not want to have to use the stronger stimulants because addiction runs in my family. And the crashes are harder, so I hear. But I don't think I have a choice. I don't want to live like this. Hopefully, this works better for others, but based on these reviews here, seems like the majority say not really."

• Nik...
• Taken for 1 to 2 years
• April 5, 2023

Solriamfetol "I have severe narcolepsy, cataplexy, fibromyalgia, and migraine (they all feed off narcolepsy). I have had these disorders since I was a teenager, although I was only recently diagnosed properly. I have tried multiple stimulants, antidepressants, and pain medications with little to no relief of symptoms. I tried Sunosi at 75 mg for a few months before increasing to 150 mg. I have been on the larger dose for about a year before my heart rate and blood pressure raised. I ended up having multiple seizures due to a sudden severe spike in blood pressure for no reason at all. I no longer take this medication and will be trying Zyrem. The theory is that the medication stored too much adrenaline in my brain, overdosing my body and causing near-death seizures. Please monitor your blood pressure regularly, even if you feel fine. It will hit out of nowhere. Otherwise, the medication helped quite a bit with agitation, increased heart rate, and insomnia being the noticeable side effects."

• ILj...
• Taken for less than 1 month
• January 10, 2023

Solriamfetol "Been dealing with symptoms of a sleep disorder for 15+ years and have now been diagnosed with narcolepsy with cataplexy along with idiopathic insomnia. After trying armodafinil and having adverse reactions, I was then subjected to try Sunosi. I had half a tablet daily for a week, then went to a full tablet after that. This medication helped me almost instantly. I had energy, I was able to think clearly, and able to process multiple things happening in my environment. It did, though, cause insomnia, I am getting roughly 4-5 hrs of sleep in a 24 hr span. Today marks day 22 of Sunosi, and the effects of the medication are reducing. I’ve been consistent with taking the medication and have no alcohol or drug use. My emotions are haywire, and I’m spouting anger outbursts. I’m overwhelmed by almost nothing. I’m trying to not get defeated or angry. I just thought I had been given an answer to a prayer, and now it’s not working. I’m hoping that my doctor will be able to provide help."

• Gra...
• Taken for 2 to 5 years
• February 25, 2024

Solriamfetol "I absolutely love Sunosi and have been taking it for 3 years. It helps significantly with my excessive daytime sleepiness and I have no side effects other than keeping in mind to not drink too much caffeine with it or I’ll get jittery. I take 150mg though, 75 didn’t do enough for me."

• Dan...
• Taken for 6 months to 1 year
• August 20, 2024

Solriamfetol "I have been on Sunosi (150 mg) for a few months now, and I fear it has lost its effectiveness over time. For the record, I have the Narc + Cataplexy package deal, woop woop. I used to do 6 a.m. to at least 10 p.m. for school/work days, with maybe a nap at 4, but now I can barely get through 8 a.m. to 8 p.m. I can tell the meds are less effective when my appetite is through the roof for sweets and whatnot. This has happened to me on Wakix, which is a common experience for Wakix users around the 6-week mark. And also with the methylphenidate. My insurance covers 80%, which is nice."

• Tra...
• Taken for 6 months to 1 year
• March 3, 2024

Solriamfetol "Sunosi has been a life-changer for me. I suffer from narcolepsy, and my doctor added Sunosi to my therapy. It has improved my ability to maintain wakefulness. My only complaint is that my pharmacy does not carry it and has to order it every month, and I sometimes experience interruptions in my medication."

• Joe...
• Taken for less than 1 month
• September 24, 2019

"I started with 1/2 of a 75 mg solriamfetol pill, which seemed like it helped, but it was over a weekend when I could sleep in. No noticeable help during weekdays, so I tried 75 mg on waking at 4:30 am. It was barely noticeable. I tried taking 1/2 when I woke up and 1/2 around 9 am. Still very sleepy in the morning and afternoon. Doctor told me to try 150 mg, so I am trying 75 mg on waking and 75 mg at 9 am. Still foggy and falling asleep at work, but now I am having horrible headaches, my jaw is sore from tensing, and my heart feels like it’s racing or trying to come out of my chest. I’m not thrilled, but I’m going to try a few more days and hope it gets better."

• Anonymous
• Taken for 1 to 6 months
• September 20, 2023

Solriamfetol "It takes a while for it to work. I also do not metabolize it very well. I have to take it every day, and so if I miss the dose due to oversleeping, I have a very short window to take it. After that time has passed, it's too late. I'm a single parent, so it's very inconvenient. It increases the incidence of insomnia and this year I have had a significant increase in migraine breakthrough as well. However, it has been available whereas the generic Adderall has not been. This was a better option to stay awake and somewhat functional than nothing at all. But I will request to switch back once the shortage is corrected. This is just not working. Also, my insurance barely covered this, and I will be losing my coverage at the end of the year since I am disabled and there was a mix-up with the state and the end of some pandemic funding."

• hon...
• Taken for 1 to 6 months
• February 8, 2023

Solriamfetol "I was diagnosed with narcolepsy back at the beginning of 2021. I've been on modafinil, phentermine, and now on Sunosi 150 mg and just started Adderall 10 mg twice a day. It's only been 4 days, but so far no real changes. I feel awesome at 5:30 am, take my medications, and all is good till about 9:30 am, then all heck breaks out. My eyes start with the cement feeling, my eyesight starts with the kaleidoscope episodes, I fall asleep for about 30-40 seconds, my whole body jerks real hard and feels like I've been electrocuted, and I'm awake and back to normal. This affects my life so much and it's so frustrating because others don't understand what is happening. I videoed myself at work so I could show my doctor exactly what was happening. I hope this combination of meds finally works."

• Mic...
• August 17, 2021

Solriamfetol "Male, 70 years old, and have been on Sunosi for the last 4 months. I got COVID in July 2020, coasted through initial contact, wife hospitalized twice. I thought I was going to be OK, last five months miserable, made my successful living as a studio singer. My voice is ruined now, and I am unsteady on my feet."

• Joa...
• Taken for 6 months to 1 year
• October 11, 2020

Solriamfetol "I get nauseous and feel like my sinuses are full an hour after taking Sunosi. It only lasts me 4 hours, and I crash. I have been taking it for six months, and it has not improved my quality of life."

• Rea...
• Taken for less than 1 month
• September 13, 2019

Solriamfetol "I take 150 mg Sunosi, and I’m awake but feel tired. Sometimes still nap in the afternoon, but for a shorter duration."

• Add...
• Taken for less than 1 month
• February 23, 2020

Solriamfetol "For the first time in years, I feel awake. Energetic."

• Lon...
• Taken for 1 to 6 months
• January 26, 2020

Solriamfetol "This medication raises my blood pressure, and I felt like I had stroke symptoms on my total left side. My pressure was 189/114. Even half a tab made no difference."

• Bea...
• Taken for 1 to 6 months
• November 23, 2021

Solriamfetol "I feel like I’m going to crawl out of my skin. I’m cold, shaky, no sexual desire. I’m in autopilot or highly anxious. My teeth hurt, my head hurts, I have indigestion."

• Sta...
• Taken for less than 1 month
• February 28, 2022

Solriamfetol "So far, I am having a positive effect while using it. I am able to focus and stay up during work. I have energy, and I am happy, plus, I lost a few pounds."

• Hea...
• Taken for 1 to 6 months
• October 18, 2021

Solriamfetol "I take it for narcolepsy. It doesn’t raise my blood pressure high like the other meds did. It gives me a little more pep in the AM but worn off by noon."

• Iza...
• Taken for 6 months to 1 year
• January 11, 2023

"I had high expectations, and unfortunately, it did not give the desired results."

• Sle...
• Taken for 1 to 2 years
• February 23, 2024

Solriamfetol "Sunosi changed my life. I am able to stay awake for the day, and I don’t experience any side effects!"