Xyrem and Tremors: What Users Say

• Joh...
• Taken for 1 to 6 months
• April 23, 2013

For Narcolepsy "Took my first dose Saturday night. Wow! What a difference the next morning. I was wide awake, alert, and hot to go to my work and my college lessons! As I write this, I have been on Xyrem for about three months and recently started having hand tremors occasionally. I noticed that one other person ('Anonymous') mentioned shaking; once in a while, my tremors are strong. Xyrem certainly has cured my severe narcolepsy, which began about a year ago without warning. I am glad to see that several people have been on Xyrem for years without any adverse side effects and no withdrawal symptoms when they stopped briefly."

• Joh...
• Taken for 1 to 6 months
• April 23, 2013

For Narcolepsy "Took my first dose Saturday night. Wow! What a difference the next morning. I was wide awake, alert, and hot to go to my work and my college lessons! As I write this, I have been on Xyrem for about three months and recently started having hand tremors occasionally. I noticed that one other person ('Anonymous') mentioned shaking; once in a while, my tremors are strong. Xyrem certainly has cured my severe narcolepsy, which began about a year ago without warning. I am glad to see that several people have been on Xyrem for years without any adverse side effects and no withdrawal symptoms when they stopped briefly."

• Anonymous
• May 4, 2009

For Narcolepsy "I have found this medicine to be extremely helpful, although I do have some side effects from it. I have been on Xyrem for about 4 months now. I wake up feeling better than I have in years, but I have a trembling feeling (like being very cold) on the inside of my body that lasts for about 1 hour, and my hands shake very badly for about 3 hours. Both of these side effects occur upon getting up in the morning. I will say I can tolerate the shaking because this medicine is truly amazing."

• Sle...
• June 5, 2020

For Narcolepsy "Xyrem was more of a last resort drug for me, as it's not approved for use in IH (Idiopathic Hypersomnia) and also the fact that I'm being treated for anxiety and bipolar II. Modafinil and Vyvanse helped me at least stay awake for a good chunk of the day, but actually waking up was basically impossible. I could set an alarm at 8 a.m. and snooze through all the alarms. My brain was literally craving for me to stay sleeping, it was horrible. With Xyrem, even if I still feel sleepy enough to fall asleep after my alarm goes off, I still hear the next one go off and not have that desperate need to go back to sleep. It caused me to be able to lower my stimulant doses. I'm going up 0.25 g every 2 weeks until I hit 9 g total. The higher the dose, the more refreshed I feel. Side effects for me were muscle twitching in my arms and legs, which did go away when I started increasing my potassium intake and taking magnesium twice a day to balance my electrolytes since Xyrem is literally drinking sodium-and a lot of it!"