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Ruxolitinib User Reviews & Ratings (Page 2)

Brand names: Jakafi

Ruxolitinib has an average rating of 7.4 out of 10 from a total of 42 reviews on Drugs.com. 67% of reviewers reported a positive experience, while 17% reported a negative experience.

Reviews for Ruxolitinib

Commonly mentioned side effects
  • Anonymous
  • Taken for 5 to 10 years
  • November 11, 2024

For Graft Versus Host Disease "Before Jakafi, I was on supplemental oxygen therapy due to lung cGVHD. Ruxolitinib allowed me to go off oxygen therapy, taking 10 mg twice daily. Dosage eventually halved. No known side effects. Easy use."

10 / 10
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  • Bea...
  • Taken for 2 to 5 years
  • September 13, 2021

For Myeloproliferative Disorders "Overall, Jakafi has done what it is supposed to do, and I've been very happy with my blood work. Side effects have included swelling that is not related to gout, cellulitis, clots, or any other condition. I have also lost eyelashes, hair has thinned to a lesser extent. It is easy to take, and the majority of side effects are minimal."

10 / 10
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  • Joh...
  • Taken for 6 months to 1 year
  • March 10, 2023

For Myelofibrosis "I have been on ruxolitinib for about 9 months now. I started at 40 mg/day and am down to 15 mg/day now. My RBC has deteriorated significantly (even at a low dosage), which has led to some significant fatigue. I was on hydroxyurea for 10 years prior to this until I started to experience some uncomfortable side effects (quite painful neuropathy), night sweats, etc. I am quickly coming to the conclusion that this drug is not for me. With hemoglobin levels less than half of normal, it is hard to function properly. My doctor just started me (6 weeks) on Eprex to try and stimulate more red blood cells, but the results have not been positive so far. I am becoming somewhat despondent and not sure where to turn for an alternative course of treatment. Ruxolitinib is just not working."

2 / 10
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Frequently asked questions

  • Kar...
  • Taken for 2 to 5 years
  • February 13, 2020

Ruxolitinib for Polycythemia Vera "It's either have to get a phlebotomy every month and become anemic or take Jakafi and be fat!"

5 / 10
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  • Jus...
  • Taken for 1 to 2 years
  • November 26, 2023

Ruxolitinib for Polycythemia Vera "It has worked very well for me. However, I have gained quite a bit of weight since taking it."

9 / 10
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  • Woo...
  • Taken for 2 to 5 years
  • August 2, 2023

Ruxolitinib "My platelets were over 800,000, and I could not tolerate hydroxyurea. It has kept my platelets in the low 500,000s. It is working great for over 4 years."

9 / 10
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  • Sli...
  • Taken for 1 to 2 years
  • March 19, 2021

Ruxolitinib for Myelofibrosis "Been on Jakafi for over a year. Twice a day varied from 5 to 20 mg. Frankly, it has done little or none for me."

2 / 10
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  • Lau...
  • Taken for 5 to 10 years
  • February 22, 2022

Ruxolitinib for Polycythemia Vera "Gained weight, especially in the waist. And dieting does not help."

1 / 10
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  • TBs...
  • Taken for 6 months to 1 year
  • March 23, 2023

Ruxolitinib for Graft Versus Host Disease "I’ve been on Jakafi for 7 months to get rid of my GVHD rash, which helped. My dose was 5 mg twice a day. Gained 30 lbs of weight and fluid. Getting weaned off now. Hoping I can lose the lbs."

10 / 10
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  • Kel...
  • Taken for 1 to 2 years
  • April 27, 2019

Ruxolitinib for Polycythemia Vera "It works, feel fine!"

10 / 10
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  • mar...
  • Taken for 1 to 2 years
  • February 4, 2024

Ruxolitinib "It's brought my platelets right down, but lately my stomach has been killing me after I eat. Not sure if it's the Jakafi that's causing it."

7 / 10
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  • Jan...
  • Taken for 2 to 5 years
  • May 21, 2023

Ruxolitinib for Polycythemia Vera "I have benefited from Jakafi, maintaining my platelet count. I have experienced a UTI and am not sure Jakafi caused it. I also experience gas and diarrhea."

8 / 10
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  • Mic...
  • Taken for 1 to 6 months
  • August 12, 2023

Ruxolitinib for Myelofibrosis "No side effects, on 5 mg, twice a day, raised my hemoglobin levels, decreased my tiredness."

10 / 10
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  • FWA...
  • Taken for 1 to 2 years
  • December 11, 2021

For Graft Versus Host Disease "Works great. Hardly any side effects. Had mostly mouth cGVHD after transplant 4 years ago. This helped me to greatly reduce prednisolone."

9 / 10
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  • Srw...
  • March 20, 2023

Ruxolitinib for Graft Versus Host Disease "My platelets were affected, but so far, my liver GVHD has improved."

9 / 10
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  • Scu...
  • Taken for 6 months to 1 year
  • September 6, 2018

For Polycythemia Vera "Has anyone's weight stayed the same or even lost weight on Jakafi? Please share your review."

6 / 10
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  • Kur...
  • Taken for 1 to 2 years
  • September 7, 2023

Ruxolitinib for Graft Versus Host Disease "Taking Jakafi for 1 year 3 months, working well with no side effects. Take 5 mg daily. I take it for GvHD of the skin, and it has done a great job controlling it. I have had no flare-ups."

10 / 10
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Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.