Perampanel User Reviews & Ratings (Page 3)
Brand names: Fycompa
Perampanel has an average rating of 5.6 out of 10 from a total of 66 reviews on Drugs.com. 52% of reviewers reported a positive experience, while 41% reported a negative experience.
Reviews for Perampanel
- Phil...
- Taken for 1 to 6 months
- May 6, 2022
Fycompa (perampanel) for Epilepsy "A little background for context first: 39 year old male with right temporal lobe epilepsy. Focal point evolving to secondarily generalized convulsive tonic clonic seizures. Over 15 years of uncontrolled seizures. I had 3 open brain surgeries since March 2020, two temporal lobe resections and a hematoma evacuation. Continuing to have convulsive seizures, every six weeks on average. Current AED regiment: 150mg Briviact 2x daily and 6mg Fycompa nightly. I have been on Fycompa for 6 weeks now and continue to have focal point seizures and occasional g.t.c. Seizures. The first and primary side effect I noticed was an overwhelming sedation. Even for seizure drugs I’ve never been so “drugged” feeling. I take it before bed and wake up extremely sedated. I’ve noticed that it takes about 16 hours from dosing until I can function. It also messes with stomach and gives serious balance and gait problems after dosing. I wouldn’t recommend this drug for anything but a last resort treatment."
- Gordo...
- Taken for 1 to 6 months
- December 20, 2021
"I’ve been taking this drug for just 4 weeks for Primary Orthostatic Tremor. I am experiencing almost complete resolution of my leg tremors when standing. Orthostatic tremor has dominated my life for the last 10 years. I had to retire from my job as a nurse practitioner. I was unable to stand and talk to friends in the street. I couldn’t stand to do hoovering, ironing, cooking, hanging out the washing, having a shower, standing in any queue or standing to sing hymns in church. I was always looking for somewhere to sit. I could walk for 5 miles but if I had to stop for any reason I couldn’t do it. So Perampanel has changed my life. I’ve had no side effects whatsoever. I’ve tried loads of other drugs with no effect at all. Im in the UK so I don’t have to pay for my medications."
- Ahmed
- Taken for 10 years or more
- May 30, 2022
Fycompa (perampanel) for Epilepsy "Before any thing Many thanks to the organizers of this wonderful website I've only been taking this medication for 10 days and go from 2ml to 4ml I was greatly affected by (abdominal gas - difficulty defecation - increased appetite - severe pain in the lower back and pain in the left side of the body from the shoulders to the feet) I tested it with Vitamin B12 and saw improvement. I've taken many medications before, most recently and still Vimpat, which has greatly affected my memory and focus. Friends call me Alzheimer's. My main problem is the seizure after ejaculation and sex. I then go into insomnia for a period of between 1 week to a month, then the seizure comes after eating any meal directly or at bedtime. I have not yet found a doctor who can determine the causes and know the final treatment."
- dan...
- Taken for 1 to 2 years
- September 30, 2021
For Epilepsy "Have been taking this medication at max level in addition to lamotrigine & lacosamide for quite some time (a couple of years or so). Also have a VNS implanted. Over the years I've been on and off various meds carbamazipane etc and cocktails of them. All to no avail, and still having attacks on quite a regular basis. Have not had side effects from any. Or assistance from them. But so be it. Acceptance of the condition is the key. That way you don't get upset or frustrated. Never had any suicidal thoughts but I do get really frustrated at the consultants for all the help they have given me to cure the problem."
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- Jay
- Taken for 1 to 6 months
- September 6, 2019
Fycompa (perampanel) for Seizures "My 72 yr old sister had 2 mg of fycompa added end of March. By August she cannot walk or stand. Ataxia. Side effect. It’s the inability to move! Stopped the drug. She also sleeps almost 24/7 now."
- Dhani...
- Taken for 5 to 10 years
- May 7, 2017
Fycompa (perampanel) for Epilepsy "Started on this medication during its study phase. Just makes me real tired and in a "fog" in the morning. If still up an hour after taking it I sometime feel "drunk", balance is altered."
- notyo...
- Taken for 1 to 6 months
- September 18, 2017
Fycompa (perampanel) for Epilepsy "This medicine has made me more angry than usual and it doesn't help with my seizures. It also makes me sleepier than usual."
- Evad
- Taken for 2 to 5 years
- November 1, 2019
Fycompa (perampanel) for Seizures "FYcoma is the best anti seizure medicine I have ever had,. I had a Grand Mal in 1969. I have been on countless ones over the years."
- Kw60218
- Taken for 1 to 6 months
- March 26, 2022
Fycompa (perampanel) for Epilepsy "This is a very good medicine for epilepsy but it makes me hungry , off balance and sleep for almost 10hrs"
- Bcar
- Taken for 1 to 6 months
- February 15, 2021
Fycompa (perampanel) for Seizures "It’s one off the most HORRIBLE DRUGS OUT THERE!!!! DONT' DO IT!!! Absolutely fowl"
- never...
- January 6, 2017
Fycompa (perampanel) for Epilepsy "frequent bowel movements, later diarrea especially durning the morning hard to tell if it helped my seizures, as I had 4 seizures in a 5 month period"
- Dhani...
- Taken for 5 to 10 years
- April 19, 2017
Fycompa (perampanel) for Epilepsy "I started on it during its study phase. The only side effects are it makes me very tired. And it does take me longer to wake up. I think it is an awesome medication."
- Rose...
- Taken for 6 months to 1 year
- October 28, 2021
Fycompa (perampanel) for Epilepsy "This is the most worse drugs for kids the side effects are real I do not recommend it for no one it causes mental problems. This is an awful drug should not be on the market"
- Anonymous
- Taken for less than 1 month
- June 30, 2022
Fycompa (perampanel) for Epilepsy "Good med. I like it. It has helped me a lot. It has not been a problem as far as side effects. I feel pretty good and have had no problems since I started talking it."
- PatHe
- Taken for 1 to 6 months
- December 24, 2015
For Epilepsy "Increased seizures, suicidal thoughts, depression, walking ability is unsteady. I really am not having much success with this drug."
- Ker
- Taken for 1 to 6 months
- May 25, 2022
Fycompa (perampanel) for Epilepsy "Was on it one month and stopped. Worst med I’ve ever taken. Caused severe memory and concentration issues. Was even let go from my job due to the side effects."
- Anonymous
- Taken for 1 to 2 years
- April 9, 2022
Fycompa (perampanel) for Epilepsy "I had to increase the mg slowly and have found it made me extremely tired or dizzy when not taken with food. Overall I have gone from 5 seizures a month to 2 in the past 8 months and am on 6 mg."
- DDM
- Taken for 1 to 6 months
- November 11, 2022
For Epilepsy "Great for seizure control for me. I had none of the listed possible side effects except clumsiness. But, did anyone else have nipple pain?"
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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Fycompa (perampanel) for Epilepsy "Started on 2mg and increased gradually to 10mg (recently). My seizures have decreased very slightly which I'm very pleased with. Side effects are feeling dizzy, can't walk straight, slurred speech and make me feel very tired and relaxed. I take it at night before bed, so by morning I'm back to normal. I take Clobazam and Tegretol at night and Tegretol in the morning. I do not drink alcohol and do not have any suicidal thoughts or aggression."