Votrient User Reviews & Ratings (Page 3)

• Debi...
• Taken for 1 to 6 months
• May 24, 2017

For Renal Cell Carcinoma "Out of the blue, diagnosed after ct scan, stage 4 renal cell carcinoma, spots on liver also, spot on lung, adrenal glands involved, was told should expect to live 1-5 years. started Votrient 800 mg on April 13th and have not had a repeat scan yet. Side effects are horrendous to me. Scalp sore like a sunburn type feel, tender, have noticed hair thinning on top of scalp. Mouth is on fire to where I can eat few foods- puddings, water, ice cream mostly melted, soups. Some days mouth hurts so badI can not eat. Can not taste salt. A few days did not take votrient because I did not eat all day. Burning with urination, scalded. Burns with diarrhea also. Cracking of lips on each side of mouth. Keep telling myself it could be worse. God bless."

• Jeff
• Taken for 1 to 6 months
• August 21, 2020

For Soft Tissue Sarcoma "Stage 4 soft tissue sarcoma I was on 800 mg of Votrient. After 3 weeks the doctor took it down to 600mg because the side effects were too much for me. On 600mg they were still bad, but he said he couldn't go lower. After 3 months the cancer had grown and spread to my spine. Now I am having radiation on the spine then Chemo, I was told if I do nothing I have "weeks to months" left. If I do Chemo. "months to a year" some choice huh? I'll try the Chemo, but if the side effects are not worth it, I'll stop"

• CCR
• Taken for less than 1 month
• September 15, 2023

For Soft Tissue Sarcoma "I started Votrient 10 days ago on 400mg. I feel no side effects. I was diagnosed one year ago with a rare soft tissue sarcoma called 'epithelioid hemangioendothelioma', stage IVB. We did 2 surgeries, which were very successful, but I still have some nodules on both lungs and liver. All nodules left have been stable for the last year, but one nodule on the upper right lung showed some growth, so that's why we decided to start the medication. We did a test using a live cell biopsy that showed good results for Votrient. I hope to see some good results on the CT scan in 3 months. I maintain a very healthy lifestyle; I only eat healthy meals, no processed food, no sugar, no gluten, or dairy. I also exercise, do yoga, attend dancing classes, and try to live my life as normally as possible."

• Sunray
• Taken for 1 to 6 months
• September 10, 2020

For Renal Cell Carcinoma "I am a 72 year old female. Diagnosed 2010 large kidney tumour. Radical right side nephrectomy. 2014 recurrence of cancer in left kidney and remaining adrenal gland. Tumours were progressing very slowly. Started on 800mg dose in January 2020. Reduced to 600mg after blood pressure spikes. By mid March all tumours had shrunk by 5mm. Due to Covid-19 treatment put on hold until mid July. I have a scan every three months and am due for my next one in October 2020. I am fortunate to be free from side effects up to now and I feel I’m lucky to have the best care through our NHS in the United Kingdom."

• Tamas...
• January 3, 2017

For Renal Cell Carcinoma "1/3/16. Was told had cancer bottom of kidney and it got large Dr. Said and is pressing into spine. Was on voltrient about 2 1/2 months and scan showed tumor size had not changed. After taking voltrient about 5 months I got very sick and could not eat or drink about 10 days. Did lot of vomiting. Stomach hurt for many days. Need to ask Dr if I should get back on it (mass must shrink a lot Dr says before they would consider surgery). This has been very scary as mass pressing and causing tightness twisting of left leg but I'm doing lot of praying for self and all cancer patients. We desperately need cures. I get scans Jan 16. "

• Bose...
• Taken for 1 to 6 months
• February 5, 2017

For Renal Cell Carcinoma "I have undergone radical nephractomy of my left kidney in November, 2014 with staging T2 N0 M0. Doctor said that I am now ok. During 2015 I have undergone quarterly check up by USG of abdomen and chest X Ray. In November 2015 CT scan of thorax and done and found two suspicious small nodes in left lungs but positionwise very small. Next scan done after six months, there was no change in size of those nodes or new growth. Pain started in left shoulder joint and in back since October, 2016. Went for CT scan followed by bone scan, which detected tumors in left shoulder and D4 spine, also increase in size of lung tumors. mRCC confirmed by biopsy. Started Votrient 800mg daily from 14th December, 2016. No major side effect except testlessnes"

• twh
• Taken for less than 1 month
• September 10, 2018

For Renal Cell Carcinoma "RCC Stage 4 - Dec 2015 Unfortunately, cannot comment on efficacy of Votrient; was only on it for about a few weeks. Yeah, the gastro side effects started on about day 3, but it was the fevers that drove me to the hospital. Liver enzymes thru the roof. Was taken off med immediately, followed by a 3 week recovery period, then placed on Cabometyx (which Dr wanted me on in the first place). Cabo has worked wonders for me - into 15th month now - no side effects, dramatic reduction in tumors. Best Luck to you all"

• sre
• April 14, 2017

For Renal Cell Carcinoma "My husband's left kidney was removed in March 2015 . No signs of cancer for one and a half years. In October 2016 he had cough and lower back pain. Did PET CT and found mets in lungs and spine . Started taking votrient since December 2016. After 3 months tumours in lungs are found shrinking. Major side effects are vomiting ,muscle and bone pain. Nowadays he is full time on bed due to muscle pain. Acid reflux is overcomed with Pan D . We are hoping and praying for positive results."

• Faith
• Taken for 1 to 6 months
• April 4, 2019

For Renal Cell Carcinoma "Votrient nearly killed me by attacking my liver. I tried it twice. First time was for 4 weeks. During that time I had just about every side effect possible change in taste, diarrhea, white hair, tiredness. I finally had brick red urine and turned yellow as it attacked my liver. Found out side effects were so bad because a previous cancer drug, Opdivo, was still in my system. After 6 weeks of steroids, I tried Votrient again. This time, I got tired and had a fever within a week. Blood test showed it was attacking my liver once again. I was back on steroids. It did reduce the size of my tumors while one it, but was killing me by attacking my liver."

• Tiny...
• July 18, 2015

For Soft Tissue Sarcoma "Hello Group, I just started Votrient 3 days ago, I have no side effects at all. I've felt great the past several days, just like my old self before I was diagnosed with a 11.2 cm tumor in my pelvis that was surgically removed in Feb of 2015. However the leiomyosarcoma mets to my liver, lung and I was told bones. After 6 treatments of Gemszar and taxatere the liver and lung mets spread and grew. I was sent to another hospital for Phase II trial trial drug to build the immune system charging the T-cells to go after the caner, while Dixol chemo attack the cancer. The Dixol could only be used 10 due to possible problems with heart pump. I said no thanks, thats when I asked what else they had so I was put on Votrient."

• dku
• December 19, 2015

For Soft Tissue Sarcoma "My mother went on this wonderful drug and it was bad, it burnt and blistered this inside of her mouth and throat to the point she could not eat solids anymore. She lost all her strength to the point we had to carry her to the bathroom, and finally she lost her life."

• Sunray
• Taken for 1 to 2 years
• May 1, 2021

For Renal Cell Carcinoma "Update.... on Votrient 800mg the since January 2020 with short period of treatment paused because of the pandemic. I resumed July 2020. Only side effect is elevated blood pressure ( controlled ). Latest scan showed dramatic shrinkage of RCC mets in remaining kidney, pancreas and adrenal gland. Also, lung mets no longer visible on latest scan. I feel very fortunate that this drug is working for me. My thoughts are with you all. Keep fighting."

• SSir
• August 28, 2017

For Soft Tissue Sarcoma "I am on Votrient from 1st Jun and yesterday had my first Scan (3 month on Votrient, 800mg dose). It has shown the marginal increase in the size of the tumor but SUV uptake has gone down from 4.6 to 2.7. As per my doctor, the tablets are working and we will continue the same. Is it really working?"

• Lee
• Taken for 1 to 2 years
• June 11, 2020

For Renal Cell Carcinoma "January 2017 left kidney, adrenal and 5 lymph nodes removed. 45 weeks into a trial came back in t9 vertebrae cleaned out. 2019 January started 800 mgs bad side effects went to 600 now 1and 1/2 years spot on left lung shrinking right adrenal sight reduced. Occasional diarrhea white hair. Medical marijuana helps with appetite and nausea, sleeping and anxiety. I will stay on until it stops working."

• meo...
• Taken for 6 months to 1 year
• August 4, 2017

For Renal Cell Carcinoma "Update-tolerating Votrient 400mg. Last 2 scans status quo. Diarrhea controlled with immodium. Pattern of a couple good weeks followed by fatigue and general awful feeling. Medicinal marijuana has been a godsend for these bad times. Almost like setting a reset button both mentally and physically. Only do it when I feel awful and won't be leaving the house."

• 3...
• October 17, 2021

For Renal Cell Carcinoma "I was diagnosed with renal cancer 6 years ago. My left kidney was removed. I received no chemotherapy or radiation due to the fact it was ineffective on a clear cell carcinoma. I had 3 nodules on my lungs at the time it was diagnosed. 5 years later a CT scan showed the 3 nodules grew and two more appeared on my right lung. A wedge section was removed from my left lower lung. The Metastasis was confirmed to stage 4 cancers. After 2 opinions I tried a combination of Keytruda infusion and Inlyta tablets. I had a severe reaction to the Keytruda thankfully the doctor and nurses saved me. I had several options and went for Votrient. I have had no serious side effects. My blood pressure became elevated but was brought under control with an increase of blood pressure medication. I just had a CT scan. The 3 remaining nodules shrunk and 1 disappeared. No other signs of cancer. I am a new user but so far I think this drug is a miracle."

• Clem
• April 25, 2020

"I started on Votrient in mid Janaury for Nueroendocrine Tumor and have been on for a little over 3 months at 600mg day. It was rough at first. Felt bad , upset stomach, diarrhea, mouth sore, food tasted bad and all my hair turned white. Lost weight as well. My blood counts were not affected and only slightly raised my blood pressure. I have toyed with when I take the medicine to try to mitigate symptoms. A couple times I've stopped for 4-5 days due to horrible diarrhea. It would clear up after 24-48 hours of stopping the medicine. My taste would return as well. After 3 months I now take the medicine around 3AM or when I wake up to use the restroom in the night, when my stomach is most empty. This made a huge improvement. I always take 2 Imodium before breakfast , 1 before lunch and 1 before dinner. This leveled out the diarrhea. Other than my white hair, all other symptoms have mostly subsided and I am able to carry on as normal. CT scan coming up next month."

• Kiwib...
• Taken for 5 to 10 years
• March 9, 2021

For Renal Cell Carcinoma "Using Votrient Jan 2013 until July 2020 Had right kidney removed Nov 2011 on diagnosis of my cancer. Metastasised in my submandibular and parotid glands in Sept 2012 starting Votrient Jan 2013. SE’s appear to improve over the years, main issue was blood pressure and diarrhoea. I stopped Votrient to try SRT which appears to be working."

• Anonymous
• December 27, 2021

For Renal Cell Carcinoma "My husband had a nephrectomy of his left kidney, it had spread to his left testicle and had the testicle removed as well. Before the operation, the surgeon said that the mass had been slow growing for roughly ten years. He is 67, and in mostly good health outside of the cancer. It has been a year and a half on Votrient. The first dosage was too high and caused him a few hospital visits to stabilise his liver function. Now he is on half that dose, the only prominent side effect is the occasional nausea, fatigue and vomiting/fainting spells. Of course his hair has also gone completely white. He is very thin and struggles to put on weight but has a healthy appetite. It seems that this dosage is working, his cancer cells have shrunk. He goes for a PET scan twice a year and has been clear so far. In 4 months will be 2 years since diagnosis. So far the medication is working. The diet seems to be the trickiest part and I would recommend that you see an expert dietician. A specific diet is NB."

• For...
• Taken for 1 to 6 months
• November 24, 2021

For Renal Cell Carcinoma "Daddy has Clear cell renal cell carcinoma. He was first put on Opdivo and Yervoy--an immunotherapy. This worked great! It was shrinking my dad's tumors that he had in his stomach, liver, lungs, and right atrium (heart). It even got rid of all the cancer in his stomach. The cancer spread to his brain and he had to be put on chemotherapy. Votrient had a lot of side effects. Nausea, super high blood pressure, major fatigue, and chemo brain fog. He lost 80 pounds on votrient from not eating. Became frail and fragile and we were afraid he would die from malnutrition. We begged the doctor to take him off it because she even said he wouldn't live much longer on it, but the issue was the votrient was SHRINKING the tumors in his liver. This was a sign it was working. His doctor put him on dexamethasone 2mg which helped his energy levels and his appetite tremendously. He gained 40 pounds! He was on votrient 6mos but BP and brain fog got worse though so she then put him on Avastin."

• Breed...
• December 21, 2010

For Renal Cell Carcinoma "This is my husband's second month on Votrient. He had a CT today and it shows significant shrinkage in the tumors in his lungs. The only side effect he is experiencing is high blood pressure."

• Colette...
• Taken for 1 to 2 years
• April 27, 2014

For Soft Tissue Sarcoma "Felt it is time for an update. It's April 26, 2014 and I've been on Votrient since August 2012. So far tumors remain stable and continue to show shrinkage. I'm still taking same dosage, 800mg per day."

• Anonymous
• May 8, 2011

For Renal Cell Carcinoma "Taking 600mg of Votrient. Taken at night seems to reduce the side effects significantly."

• MrsCN
• Taken for 1 to 2 years
• January 12, 2016

For Renal Cell Carcinoma "My husband has been on Votrient for a year...some gastric issues,foot pain....but overall his tumors are shrinking"

• rcbri...
• January 30, 2011

For Renal Cell Carcinoma "Very effective. Have lost a lot of weight, but side effects not as extreme as Sutent for me. Started taking 9/20/10 still on it 2/11."