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Paliperidone for Schizoaffective Disorder User Reviews (Page 4)

Brand names: Invega, Invega Sustenna, Invega Trinza, Invega Hafyera

Paliperidone has an average rating of 4.8 out of 10 from a total of 194 reviews for the treatment of Schizoaffective Disorder. 37% of reviewers reported a positive experience, while 46% reported a negative experience.

Reviews for Paliperidone

  • Dude
  • Taken for 6 months to 1 year
  • February 9, 2021

Invega Sustenna (paliperidone) "I've been on Invega Sustenna for about 6 months. I feel like a zombie. I have no emotions, I feel flat. I have no motivation to do anything. I sleep 11 to 12 hours a night. I feel very tired all the time and I have anedonia (lack of pleasure). Don't take this medication. It will steal your soul. You won't want to do anything. I would rather have my symptoms than be on this. Im going to talk to my doctor about getting off this."

1 / 10
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  • allig...
  • Taken for 1 to 2 years
  • September 5, 2016

Invega (paliperidone) "this medication is weird. you can be doing really well and be normal and then all of a sudden you get a manic episode or psychotic episode out of nowhere when you were normal like 2 days ago. It doesn't help you sleep although it's good because it didn't stop me from waking up in the morning. I was able to go to for my morning class as I was waking up at 5:30am. Although couldn't concentrate in class and I never cooked. from what I remember I was doing better on risperdal although I was more out of it and way more paranoid and it was really scary but I had good friends and never got manic and never had to go to the hospital for almost 10 years and also did well in school. I think invega is too inconsistent and can't take the mood stabilizer I want to"

7 / 10
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  • danger...
  • Taken for 1 to 2 years
  • January 28, 2018

Invega (paliperidone) "Hey well as soon as I took this drug I was happy enough. The rushing thoughts began to subdue. I will say one thing - if you going to take this be careful there some sucky side affects like weight gain. I didn't get the weight gain but I did get low libido and it got a little better once I stopped taking it completely and went back on. I still have some high blood pressure, high white blood cell count and high cholesterol so watch that. So that's all my side affects. One more thing don't let these punks mess you around - once you're on it they might try making your life a drug induced nightmare. It's your body, you're choice if it works you will know. If you're really bad stick to a low dose and test if its the right drug for you. Then you're not going to get one: addicted and two: not aware of if its the right drug for you. I'm on 3mg tablet now and I hope to go cold turkey soon after 6 months wish me luck."

5 / 10
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Frequently asked questions

  • BIbij...
  • December 17, 2015

Invega Sustenna (paliperidone) "Would be an absolutely perfect drug without the side effects. Constant tiredness and dizziness makes it almost impossible to work. It definitely has high effects on motor skills and sexual ability. But, hallucinations and delusions are gone. No more voices, and paranoid thoughts after only a month. It's a good drug if you want to sleep all day."

8 / 10
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  • Rambl...
  • Taken for 1 to 6 months
  • July 5, 2021

Invega (paliperidone) "Our Adopted Son was born with prenatal alcohol exposure and has permanent brain damage. He was diagnosed with FAE and various other Disorders associated with it. He has suffered from sleep issues, explosive rages and psychosis. He has been prescribed over 40 different drugs with some disturbing side effects. He just started Invega Sustenna in March and there was an immediate change in his mood and overall behaviors and is stable. He has now moved up to Trinza and doing very well."

10 / 10
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Are you taking this medicine?

  • Inveg...
  • June 3, 2021

"This drug should be prohibited. Since I've been on it I felt like rubbish. I've felt depressed a lot of the time since on it, and nearly took my own life. Since about three-four months I have been completely emotionally flatlined (anhedonia). I had this to some extent since the beginning but its now gotten to a point where I barely enjoy anything at all. Also I have developed low testosterone since taking this drug which leaves me too tired to work out and even going for a walk feels like climbing a mountain on most days. It used to help keep psychotic symptoms at bay though. Although some of the paranoid delusions when I developed when I tried to switch antipsychotic medication have stayed."

1 / 10
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  • Nim
  • Taken for less than 1 month
  • June 10, 2019

Invega Sustenna (paliperidone) "I had to take Invega sustenna after running away from being treated 5 times. It helps eliminate the delusions and voices. I love it as it does not make me believe that the Kings Son is in love with me; or Adam Sandler is talking to me through every thought with another person in my head and sharing tips for his movies while looking at an image. But I hate the fact that it has a weight gain affect that have muscle constraints. Feeling happy through space is barely not there... natural life is much better ... and keeping all the craziness of Schizophrenia is way more intresting than waking up."

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More FAQ

  • Bless...
  • Taken for 1 to 6 months
  • October 12, 2021

Invega Sustenna (paliperidone) "Wow where do I even begin with this horrible drug. About 3 days after I received my injection, I started to experience severe restlessness.I couldn’t sit still and had to constantly move. My sperm was gone. I was literally counting every hour, praying so that the drugs half life wears out (which is 1 month so you can imagine how torturous that was).I couldn’t think straight I was only focused on counting the hours. I had no pleasure in doing anything. I literally got turned into a vegetable that you see in movies about psychiatric patients. PLEASE,only try this drug AFTER you tried other antipsychotics that proved to not work. Stay healthy"

1 / 10
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  • Inveg...
  • Taken for 1 to 6 months
  • March 25, 2022

Invega Sustenna (paliperidone) "Yeah it controlled my hallucinations, but at what cost? This drug should not be prescribed to anyone, especially young males. Literal chemical castration. Invega robbed me of my erections, sex drive, and sperm. When I ejaculate nothing comes out. High prolactin and low T levels. My memory is awful, no pleasure in doing anything at all. Restlessness, brain fog, no thoughts or emotions. This injection will leave you bed ridden. Literally all I do is lay down and hope for the day to pass by fast nowadays. My depression got a lot worse on this drug. Stay far away."

1 / 10
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  • Hira
  • Taken for 2 to 5 years
  • May 9, 2020

Invega Sustenna (paliperidone) "Invega 156mg every three weeks have been good to me. I no longer have voices and I am able to maintain my weight .....I don’t menstruate that’s a negative. I can’t drive or work get out of the house by myself because of agraphobia caused by invega as I suspect. I don’t have anxiety that’s a plus no panic attacks that a plus ....."

8 / 10
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  • fred
  • Taken for 1 to 6 months
  • September 18, 2021

"I was given the paliperidone depot for a case of schizoaffective disorder. In all honesty, I had no idea what they were talking about when they diagnosed me. In my ‘doctor’ educated opinion (and I never went to university) I just had manic depression. Believe me, I would know if I was hearing voices or not. My only symptoms were that I spoke a lot. I actually got sectioned by a doctor who had poor management skills. I told her I wanted to come off the drug that I was on as you need to take monthly blood tests with it and I was planning on going overseas. The next thing I know I have doctors in my house with police then I was carted off to hospital. Talk about unfair treatment. Long story short, I wanted to get out of there so I agreed to take this depot. Big mistake. I have really bad side effects which includes tooth decay which is not something that is going to heal. I’ve read other people have suffered from paliperidone. If you have, don’t suffer in silence."

1 / 10
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  • Million...
  • January 7, 2017

Invega Sustenna (paliperidone) "Took just one 156mg a month ago (33 days). I was given this by force to control my irritability. I was misdiagnosed as my irritation is caused by a physical condition that I kept mentioning to the Drs who did not listen, and said I had mood swings. Unable to get sore from workouts. Have lost muscle tone. Loss of strength and stamina. Constant sore throat and thirst. 0 sexual interest and completely impotent. Heavy increase in urination. Have occasional feeling of tight band around head after slight arousal. Rarely some left ab pain. Blood ast & alt lvls increased by 30 points I have noticed my 15 inch arms shrink to 13 inches in just a month. I cannot exercise or pick up weights all. I am not getting even slightly sore from intense work."

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  • newk
  • Taken for 2 to 5 years
  • May 5, 2016

Invega Sustenna (paliperidone) "Before i was on this injection i was taking up to 7 pills a day and lucky me i had a good social worker and nurse who talked to my doctor to find something better too for me to take i was having episode and tripping out like i was in the spirit world tvs were talking to me and people were turning in too demons but after takeing this medicine it clears my mind and keeps me sane i have quit my medication a couple of times but the episodes come back this medicine is really good i did gain weight but rideing my bike too school helps the longer you stay on this medicine the better it works i find but i was always getting head akes i thought it was the medication but really i just needed glasses the medicine works i get it in my arm"

8 / 10
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  • Michael...
  • April 20, 2017

Invega (paliperidone) "After taking 6 mg Invega for 3 years, I asked my physician what was making me gain so much weight....He told me it was the Invega and suggested I stop taking it...So I stopped taking it the next day! That was horrible advise (to quit cold-turkey) but I lost 40 pounds in 2 months. I kept the weight off until I developed psychosis/delusional thinking...After about 6 months and a suicide attempt I am back on it but shots only. Within 2 months I gained the 40 pounds back and gained an additional 40 lbs, making it a total of 80 lbs gained. Time for something else! I am in pain from bad knees & can hardly walk, now....Great mood helper but terrible on the body!"

4 / 10
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  • Gsuite
  • March 27, 2020

Invega Sustenna (paliperidone) "I've been on haldol, aristada, zyprexa, and invega and so far these medications just give your brain time to heal not actually heal your your disorder. They help manage your symptoms. So far I've had delusions, hallucinations, and voices. Invega may be harmful but when you have schizophrenia like me you have to be on something so far invega helps the most but has the worst side effects works kinda like that. I advise taking it over the ones I mentioned for me personally."

6 / 10
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  • White...
  • December 13, 2018

Invega (paliperidone) "I have struggled with horrible voices and delusions for four years and invega is like a miracle after I attempted suicide. It took away the voices and delusions. The only problem I have with this drug is the weight gain and sensitivity to cold and heat. I gained 60 pounds in 6 months...its really hurt my self esteem and I'm going to stop taking it next month. Another thing after the voices stopped I had visuals and voices late at night and early morning that would wear off 3 months into taking it. My mood also seems a little more irritable but not too bad and I'm think I'm starting to have anhedonia, which at first was a giant relief after being so charged and emotionally torn apart with voices but now I'm starting to feel like it's not the best option. Though I will say if the voices torture me again I'll gladly take it again."

8 / 10
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  • Tried...
  • Taken for 1 to 6 months
  • January 18, 2018

Invega Sustenna (paliperidone) "Best medication if you get the right dose that works for you. I went from being miserable on this drug to “this is the best medication I’ve ever been on”. It only took 8 years with trial and error and giving this med another try. I still can’t do as much as I could before the illness set in, but my motivation and joy have returned. I never thought recovery was going to be possible, now filled with hope for the future. Don’t give up it’s worth the fight!"

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  • MiGor...
  • Taken for 6 months to 1 year
  • May 23, 2019

Invega Sustenna (paliperidone) "Invega Sustenna will make it easier to take your medication as it’s an every 4 week shot in the arm (or butt). However the side affects are many. This drug, though stopped all hallucinations and mania, caused my skin to flake, my face to get puffy, my overall weight to increase by 40 lbs, incur symptoms of depression and other personality changes and lastly, caused me to sleep for hours on end. If you enjoy sleeping your life away, this is the drug for you. However I myself miss living my full life!"

5 / 10
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  • Cainin
  • September 5, 2017

Invega Sustenna (paliperidone) "This is the most effective medicine I've ever been on for not only the psychosis, but for the depressive symptoms too. The only slight problem I have is that it seems to wear off the week before I get my next shot, but that's and easy fix by getting the injections closer to around every three weeks instead of every four."

10 / 10
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  • mimi
  • January 22, 2015

Invega Sustenna (paliperidone) "I have being on Invega Sustenna now for 4 month. It has been great medication but I started to have facial movement small, but I'm afraid it might increase. I will ask my doctor to reduce the dosage so I might not have side effect."

8 / 10
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  • Anonymous
  • Taken for 1 to 2 years
  • April 9, 2022

Invega Sustenna (paliperidone) "I was on invega from almost 2 years. The drug worked it did what it was suppose to do I was leading a good life and my relationship was great for about 2 months then the symptoms came and it was the one symptom a man did not want of all of them. Erectile dysfunction is really a problem for a guy in his late 20's. My girlfriend left me cause she thought I was no longer attracted to her. I went without and erection for 18 months and decided to get off the Invega shot and for about another 6 months I was unable to get an erection still and I have never been the same since. I've been prescribed to 150mg Viagra, Cialis, and Levitra none of them worked for me.. i took 2 of the Viagra and nothing. My condition has now gotten worse and I've become extremely aggressive and irritable since getting off this drug. Worst thing that ever happened to me. I feel we should all file a class action lawsuit for this particular symptom and the damage it has cause to our brains and bodies."

4 / 10
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  • Leano
  • Taken for 1 to 6 months
  • May 20, 2020

Invega (paliperidone) "I’m on Invega approximately 6 weeks I am diagnosed about 5 years never settling on any drug as they have me reactions. I am extremely sensitive to medication and always suffer high prolactin levels. On one of my previous medications after 6 weeks milk started coming out of my breasts. I was switched to invega and so far so good, it has brought out my creative side and I am much more alert, although it’s hard to get up in the morning as I keep falling back to sleep. I am demanding another blood test for tomorrow as I want to know if my prolactin levels have gone down at all. If not I’m getting off this drug as that’s not good for your body and it’s terrifying having milk coming out when it’s not supposed to. I’ve heard of caplyta the new drug and that has less side effects but the reviews online aren’t great"

7 / 10
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  • Jjano
  • Taken for 1 to 2 years
  • November 19, 2020

Invega (paliperidone) "It has been a year since I started taking the Invega Sustenna injection I think it is around 250mg. It has also been one year since I quit drinking, so that may sully the exact nature of my experience thus far. I have been on several antipsychotics over the last 10 years but Invega stands out as more powerful and, in terms of symptom reduction, more effective. While at times it can blur my thoughts it has definitely given me the ability to recognize when I am becoming delusional about things. Invega does not stop me from starting down the road of psychosis it just allows me to somehow acknowledge it and stop it. Side effects I have: constant restlessness and one time the injection itself ended up making my whole arm hurt like anything for 24 hours."

9 / 10
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  • Ibs
  • Taken for 6 months to 1 year
  • June 17, 2019

"I am an ex-boxer, fit, 74kg, I always had relapses because I fail to take my medication. I had a relapse in September that when I was taking respirodone and invega I shot up to 84kg, I am still using it once every month dosage been lowered from 200 to 75mg. I was on my way to become successful before I took this medication, I was attractive fit and full of testosterone. I had ambitions and dreams, sharp and a role model. Firstly the medication made feel like I had brain damage and I couldn't move or walk it took a month to to be able to move properly again. I feel depressed, dark, stupid and like I lost a part of myself. I have no emotion and I can't hold a conversation, I lost confidence and all future hope. I wake up with bad anxieties. But on the good side I stopped hearing voices and hallucinations but I would advise you to not take it and instead find an alternative"

5 / 10
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  • Whoh
  • March 2, 2017

Invega (paliperidone) "Exceedingly dry mouth causing broken sleep and frequent drinks, blood sugar ebbs and reduced stamina, encourages me to eat up to five times a day. Osteoarthritis worsens with the dryness however mentally stable. Wary of this drug being only a stop gap and apprehensive what's next on the medication menu as all have unbearable side effects."

5 / 10
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Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.

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