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Nortriptyline for Vulvodynia User Reviews

Brand names: Pamelor

Rating: 7.5

Nortriptyline has an average rating of 7.5 out of 10 from a total of 11 reviews for the off-label treatment of vulvodynia. 73% of reviewers reported a positive experience, while 9% reported a negative experience.

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27%
9
18%
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27%
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5
18%
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1
9%

Reviews for Nortriptyline

  • Pai...
  • Taken for less than 1 month
  • July 20, 2021

"For anyone out there searching for answers to their neuropathic pain, this was mine. I have only been taking this drug at 10 mg for 3 weeks, and I have already begun to see huge improvements. I suffer from pudendal neuralgia and have tried nerve blocks, gabapentin, pregabalin, physical therapy, acupuncture, NSAIDs, benzos, the list goes on. Nortriptyline was my last resort, and it has changed my life. My pain has reduced by 80%. I can wear the clothes I want, sit for longer periods of time, and be intimate with my SO. Don’t let the fact that it is an antidepressant deter you from taking this drug. It is a lifesaver."

9 / 10
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24 Report
  • Anonymous
  • Taken for 10 years or more
  • February 27, 2013

"This medicine completely helped my vulvodynia. At my worst before the medication, I was in constant burning pain and could not sit down for extended periods of time. Nortriptyline started working for me after about two weeks. At first, I was a little dizzy and very sleepy. I did have more constipation. But the sleepy/dizzy feeling did wear off, and I was so happy to have the edge taken off the pain, I didn't mind the side effects. I was on it for about 10 years with minimal pain flare-ups. I am doing better now. The pain is not completely gone, but nortriptyline was the answer I needed."

8 / 10
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45 Report
  • Nat...
  • Taken for less than 1 month
  • May 2, 2019

"I started taking nortriptyline at only 10 mg for vulvodynia. As soon as I started, I noticed difficulty in urinating. After a week, I saw my GP, who told me to increase the dose to 20 mg. The pain was getting considerably worse, and when sitting, I was getting shooting pains. My mood has changed dramatically: dark thoughts, severe depression, and anxiety. I now have panic attacks, and my nerve pain has skyrocketed! I was told to tolerate the side effects, but they have become so severe that I am now unable to sit without a toilet seat! I saw a consultant who diagnosed me with pudendal neuralgia. I never had these symptoms before taking nortriptyline! This medication has ruined my life! There is no one out there that can offer me an explanation? I only took this medication for four weeks. I have been off this now for 6 1/2 weeks, and there has been no improvement whatsoever, the nerve pain is so bad! I wish I’d never heard of this dreaded medication!"

1 / 10
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29 Report

Frequently asked questions

  • mar...
  • April 24, 2015

"Started at 10 mg & pain lessened overnight! After a few weeks, stepped up to 20 mg, more improvement. In the last few days upped to 30 mg & I am almost discomfort-free. This is after suffering on & off for some years. Plus, my recurrent migraines have stopped. And pain from both knee osteoarthritis & wry neck very improved. So, yes, this medicine worked for me. Side effects were transient & tolerable."

10 / 10
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24 Report
  • sal...
  • October 27, 2015

"I had vulvodynia for around 11 years. Nortriptyline helped a great deal, but I gradually reduced the dose from 30ml to 10ml. What really helped was Activan medical honey, every night, a small amount on a cotton wool bud helps heal the tissues in the vulva. I am 78 years old and was determined to find a cure."

8 / 10
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15 Report

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  • Dee...
  • March 31, 2021

"This medication took the pain away completely, however, I started having dark thoughts and felt depressed, and my heart rate elevated dramatically. I had suicidal thoughts. Such a shame, as it worked, but I had to come off it. Still trying to find a medication without unbearable side effects."

5 / 10
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5 Report
  • Dan...
  • Taken for less than 1 month
  • March 11, 2021

"Took the pain away immediately after suffering for years of undiagnosed vulvodynia. Side effects: awful, dizzy, nausea, constipation. Past after a week. However, started to get depressed and anxious. Was feeling suicidal. My heart rate elevated. Had to come off, pain returned, but moods improved."

10 / 10
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4 Report
  • 555...
  • Taken for 1 to 2 years
  • June 19, 2024

"I noticed at 20mg the Aventyl worked better than at 10mg. For my vulvodynia/vestibulitis. Helped reduce the burning, stabbing chronic pain in the vulvar region including the pelvic area as well. Side effects I experience are fatigue and dizziness. Definitely, this medication is worth a try."

8 / 10
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0 Report
  • Anonymous
  • January 27, 2012

Nortriptyline "It totally resolved my vulvar pain, and it also made me more patient and less irritable with my children."

10 / 10
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58 Report
  • Sar...
  • Taken for 1 to 6 months
  • January 12, 2021

"I use 75 mg of nortriptyline for vulvodynia, and it has cured me. I am so relieved. No side effects at all. So much better than amitriptyline's awful side effects."

9 / 10
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7 Report
  • Anonymous
  • January 4, 2011

Nortriptyline "Nortriptyline lessened the discomfort for maybe a couple of months, but then it stopped working."

5 / 10
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19 Report

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Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.

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