Skip to main content

Norethindrone for Endometriosis User Reviews (Page 4)

Brand names: Jencycla, Errin, Heather, Camila, Incassia, Gallifrey, Sharobel, Deblitane, Lyleq, Affodel, Meleya, Emzahh, Norlyda, Norlyroc Lyza Nor-QD Tulana Orquidea …show all brand names

Reviews for Norethindrone

Commonly mentioned side effects
  • Anonymous
  • February 28, 2021

"This medicine was absolutely the worst for me! I was put on it to treat endometriosis in addition to having an IUD. I started this medicine on the 18th, then had to go to the ER for such bad cramping two days later. I was constantly nauseous, getting sick every time I ate. I lost so much weight after a week that my ribs were showing, and people were commenting on my face looking “sickly.” My ADHD meds were no longer effective during the time I was taking this, it even got to the point where water would make me sick. While at the ER, they gave me tramadol for the pain (I hate pain meds! But every time I could feel them wearing off, I would get the same intense pain and pass out like the night I went to the ER). My periods before were intense, and I would pass out every month, but nothing was as bad as this! I should have questioned my doctor more before going on, and that’s what I recommend anyone do before starting this! I’m only 20, my period should not be this bad! Or this hard to fix!"

1 / 10
Was this helpful?YesNo
2 Report
  • Smi...
  • Taken for 6 months to 1 year
  • August 28, 2018

"I was prescribed norethindrone back in September 2017 for my endometriosis. But at the time, I was taking the Lupron depot shot as well. To help regulate my endometriosis. The norethindrone at the time was fine as long as I was taking the Lupron. But afterward, in April, I had a month-long spotting/period month. Then, in May and June, I didn't get a period at all. Then, at the end of July, I started spotting around July 23, then, the spotting went on until the first week of August. Then, I had a period. But not just a period, a non-stop period with lots of clotting (clots are very large). I had never had clotting before taking the norethindrone pill. Just a very painful period. It is now August 28, and I am still getting my period a month later. What do I do?"

1 / 10
Was this helpful?YesNo
3 Report
  • Chi...
  • Taken for 1 to 6 months
  • February 2, 2021

"I started this pill (0.35 mg) 1x daily about 3 months ago. I noticed a few weeks in that I was getting horrible mood swings and lashing out at everyone around me. I would cry very easily for no reason. I chalked this up to starting a new career until other side effects started-my breasts started hurting me and were swollen, I got 2-3 yeast infections in 2 months and completely lost my sex drive. The newest thing is my legs have been cramping me, and I have a cyst on my face which was discovered after a facial. (I've never had a facial cyst in my life.) I started this due to severe cramping each month with my period but have decided to stop taking it. If there are any alternatives that you can take for pain-definitely try that first!"

3 / 10
Was this helpful?YesNo
2 Report
  • Fan...
  • Taken for less than 1 month
  • February 11, 2021

"Absolutely terrible. My doctor prescribed this after I had to get off of Daysee (which I liked before I had problems two months in). The first day I took it, I got so nauseous and sick. I was taking it in the morning and would be nauseous all day, so I switched to taking it at night before bed, and I would wake up so sick and unable to eat until evening. Anything I ate made me sick, and I lost about six pounds in just the first three days of starting. Well, the nausea never went away, and I ended up quitting this after four days because I threw up so bad, which I never do. Honestly, this medication did nothing except make me sick twenty-four seven, and I couldn’t take it anymore."

1 / 10
Was this helpful?YesNo
2 Report
  • MJC...
  • Taken for 1 to 2 years
  • October 11, 2017

"I really thought this was the perfect pill for me. I couldn't tolerate anything with estrogen because of migraines. Plus, I was getting really bad PMS and heavy periods. So last October, I started this pill. For months, it seemed pretty good. I only spotted a bit the first month, and my periods seemed better. I had unprotected sex a few times and did not get pregnant either. But exactly one year on since taking this pill, I gained 20 pounds-20!! This shocked me because most of my clothes still fit, and I only thought I gained a few pounds at most. So my body is basically carrying around a massive amount of water weight (!!), which has bad side effects too... I feel bloated and achy all the time, and sadly my PMS is still really bad! So I think I'm done!"

5 / 10
Was this helpful?YesNo
4 Report

Are you taking this medicine?

Your review helps others make informed decisions.
Write a review
  • Pap...
  • Taken for 1 to 6 months
  • September 26, 2017

"I have a history of side effects from synthetic hormones and was on Prometrium for a year, but still having very heavy periods. My new doctor suggested norethindrone might take my period away entirely, but I started bleeding and have been for 12 days with cramps and really feeling on edge! Also having interrupted sleep and night sweats, no libido, and my body odor seems different. I'm going back on the Prometrium but hoping this bleeding will stop. I can't wait to go back to not having to bleed every day. Jealous this works for some, but it's definitely not for me."

4 / 10
Was this helpful?YesNo
3 Report
  • Lyn...
  • Taken for 6 months to 1 year
  • August 21, 2018

"I was diagnosed with endometriosis at 41 years old. My periods were so incredibly painful I would turn white and almost pass out from the pain. My doctor put me on birth control and the painful periods ended, but I started to get migraines. He switched me to POP, and I don’t get a period anymore, so the pain issue is solved. However, my appetite went through the roof, and I gained 10 pounds within the first 4 months. I strength train, and I’m on a high-protein, moderate-carb eating plan, and I can’t lose one pound. I have not ever struggled to lose weight like I have while on this pill. I’m thankful that I have no periods and no pain, but my confidence took a nosedive with the weight gain."

5 / 10
Was this helpful?YesNo
3 Report
  • Jex...
  • Taken for 1 to 2 years
  • August 14, 2021

"This was the second medicine I was put on to try and help my endo. At first, it worked well, although I had to go to max dose within a month because the others just were not cutting it. But after several months of using it, it just wasn't enough. I've had to take max dose of this medication on top of every other med I've tried. It helps a lot while paired with other meds, but nothing is enough to stop my pain, unfortunately. Definitely worth a try in my book, especially if your case isn't as severe as mine. It'll probably help a lot!"

6 / 10
Was this helpful?YesNo
1 Report
  • Cal...
  • Taken for 1 to 6 months
  • March 5, 2021

Norethindrone "Took for a month to treat heavy bleeding and extreme pain from endometriosis, and it only got worse. Doctor suggested taking it for 3 months to see results, but I’m afraid to, given the increase in flow and pain. It did make me a little more depressed than usual as well. But the side effects weren’t noticeable. No spotting either, and period came on time."

2 / 10
Was this helpful?YesNo
1 Report
  • Sol...
  • April 14, 2019

"Been taking this medication for a month now. I'm 26 and have endometriosis. In the past month, I have seen great results with my cystic and hormonal acne... But that's it. I am CONSTANTLY exhausted, I can't get out of bed. I'm literally crying 80% of my day. I am not an emotional person either. I haven't had ANY improvement in pain... I have even been having very dark thoughts... Yesterday, I literally felt like I wanted to die. Emotionally, mentally... It's not a good medication for me WHATSOEVER. I am forgetting to do basic things like feed the cats or pay the bills. I'm forgetting simple things that shouldn't be something to forget... I feel like I'm extremely depressed, and I can't get into a doctor for another 5 weeks. But I'm scared that if I stop taking it, my pain is going to get even worse and my cystic pimples will come back, and I'll be just as depressed."

1 / 10
Was this helpful?YesNo
2 Report
  • blu...
  • November 18, 2015

"After a PCOS diagnosis, Camila was recommended to me to treat high blood pressure and regulate my cycle. It has dropped my blood pressure considerably, but I either spot or have my cycle 80% of the time. I've gained roughly 20 lbs in 6 months and am bloated beyond period bloating. I only had 6 cycles a year before, so I was doing better without."

1 / 10
Was this helpful?YesNo
2 Report
  • Kan...
  • May 9, 2016

"Terrible, terrible depression; discharge; major mood swings. I was put on this medicine in January, and I'm going to stop it after this week. Ever since I've been taking it, I've been getting bad headaches, and I'm always irritated. My stomach is always hurting, and I've been late every month on my period because of this pill. I was put on it to 'prevent' cysts from growing, and I'm more likely to have a blood clot."

2 / 10
Was this helpful?YesNo
2 Report
  • Anonymous
  • Taken for 1 to 6 months
  • January 20, 2025

"I’m 42 and have been on this for two months now due to endometriosis pain and horrible periods. So far, so good, no period since I started taking it, and the endo pain has improved. I’ve had 4 days where I have had some pain instead of every day. It also has improved some of my perimenopause symptoms. The side effects I have noticed are some weight gain, dryness, and headaches. Overall, so far, this is a great drug for me. Also, I normally have bad anxiety and have had no increased anxiety from this medicine. Overall, it works for me."

10 / 10
Was this helpful?YesNo
0 Report
  • Nor...
  • Taken for less than 1 month
  • April 21, 2021

"I've been on this med for just over 2 weeks after learning I had endometriosis during fertility treatment screenings. My doctor thought this would be a better tolerated treatment than Lupron, but I have to wonder how bad Lupron is because this med is not my favorite. It's not awful, but it definitely has had its side effects for me. Bloating, weight gain, constipation, extreme fatigue, decreased sex drive, and trouble achieving orgasm, worsening anxiety and depression. I'm supposed to be on this for 4 more weeks, and if I wasn't doing this because I wanted to have a baby, I would go off it tomorrow. It's doable, given the desired outcome, but I really look forward to getting off of it and feeling like myself again."

6 / 10
Was this helpful?YesNo
0 Report
  • Sco...
  • Taken for less than 1 month
  • November 8, 2018

"I started taking this pill, and it made my stomach cramp. Nipples were so sore, and it made my vagina so dry! And it made my period last about 2 weeks longer. Then, the next month, I didn’t have a period. So, I stopped it after a month and a half, and finally, I’m on my period. Not knowing what to expect."

3 / 10
Was this helpful?YesNo
0 Report
  • NR9...
  • Taken for 1 to 2 years
  • April 13, 2023

"As with others, the horror stories did scare me. But as someone living with endometriosis and the horrible symptoms that come with it, I got to a point where I said F it. So glad I did! I'm also on this as a contraceptive. I had been on multiple different kinds of combo BC for a decade, helped with the pain but the side effects were horrific. My libido tanked multiple times, my pre-existing depression got awful, acne, everything. Finally, I just wanted a change, less hormones. Within two months, my libido was back, my brain fog was lessened a bit, and I just felt more 'normal' for the first time in a long time! The only (huge) downside was I got my period twice a month for the first 6 months, it finally evened out for 3 months then started getting wonky again. I attribute this mostly to my endometriosis though as I finally had my surgery to excise it, and my period is so normal and manageable!"

8 / 10
Was this helpful?YesNo
0 Report
  • Ano...
  • May 6, 2016

Norethindrone "My Dr. prescribed it for me for endometriosis. I took the first one today, but after reading reviews from this site and others, I will not take it anymore. I would rather be in pain than have all the side effects."

1 / 10
Was this helpful?YesNo
11 Report
  • Anonymous
  • Taken for 1 to 6 months
  • June 21, 2017

Norethindrone "Side effects, side effects, side effects! Rapid weight gain, headaches, fainting, cholesterol raised to high levels, severe abdominal cramping."

2 / 10
Was this helpful?YesNo
12 Report
  • Pho...
  • Taken for 1 to 6 months
  • February 23, 2021

Norethindrone "This birth control was really detrimental to my mental health, which I found out after taking it for 2 months. Such a bummer. The panic attacks and depression were terrible. Did not work for me."

2 / 10
Was this helpful?YesNo
6 Report
  • Bre...
  • Taken for 1 to 6 months
  • October 5, 2018

Norethindrone "Errin gave me the worst acne I have ever had in my life. I took it for four months. Never again..."

3 / 10
Was this helpful?YesNo
7 Report
  • Boo...
  • July 14, 2018

"Light headache, some cramping, mood swings, increased appetite, gained 10 lbs over the last 3.5 months."

6 / 10
Was this helpful?YesNo
8 Report
  • ell...
  • December 25, 2016

Norethindrone "Does a great job as both birth control and helping with my endo symptoms! My only complaint is the spotting, and sometimes it makes my period still a bit irregular (i.e., longer) and odd."

9 / 10
Was this helpful?YesNo
7 Report
  • Anonymous
  • December 14, 2009

"This was added to my therapy to help with the insomnia and moodiness. Well, the moodiness is a bit better. I still have the insomnia and really weird dreams!"

4 / 10
Was this helpful?YesNo
4 Report
  • Ang...
  • December 7, 2021

"Horrible acne, stomach cramps, back and breast pain. Would not recommend."

1 / 10
Was this helpful?YesNo
0 Report

Are you taking this medicine?

Your review helps others make informed decisions.
Write a review
Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.

Learn more about Endometriosis

Care guides

Symptoms and treatments

Medicine.com guides (external)