Norethindrone for Endometriosis User Reviews (Page 3)

• Danie...
• Taken for 1 to 6 months
• February 12, 2020

"I was prescribed Norlutate in December 2019 for stage 4 colorectal endometriosis. For the first couple of weeks I experienced depression, crying, emotional instability, painful periods, and difficulty sleeping. My partner was able to convince me to give the medication time to work. I am very happy to say that by giving it time that the depression has subsided, I don't cry without reason, I am still moody but can feel it coming before I react to a situation unreasonably. I started meditating and stretching before bed which helps me be in a better state for sleeping. As for my diagnosis, its working - I no longer have bleeding rectally during menstruation and the constipation is gone. I am no longer in constant pain - but manageable pain. It kind of sucks having a bit of acne at age 31, and a small amount of weight gain, but its a small price to pay in order to have the quality of life back you desire."

• Anony...
• Taken for 1 to 6 months
• October 29, 2018

"So far so good! Switched to this from Microgestin 1/20 due to high blood pressure. My BP went back to normal after only the second day of being on Norethindrone. I’ve been on it for two months now and I’m loving it so far! Still no period (continuous use) which is awesome. Only complaint is that my nips hurt pretty darn bad. However, I’d rather my nips be tender than have monstrous periods. Only knocking the score down a point because my nips feel like they got ran over."

• Rita
• Taken for 1 to 6 months
• October 23, 2020

"I was giving norethindrone to help with my endometriosis and I’m anemic. I have very painful cramping, very heavy periods, bad headaches and some other symptoms that have been getting worse over the years. This is my last option before getting a hysterectomy. Starting taking this medicine the beginning of September at 5mg once a day. I had light bleeding for the first 3 weeks. My OB uses my dosage to 10mg to help stop the bleeding. Upping the dosage made my bleeding worse along with very bad cramping. Called my OB and was told to stop taking it and that was Monday. I have been heavy bleeding every since. I’m hoping it will only last for a week while the medicine is leaving my body."

• desir...
• May 3, 2015

Jolivette (norethindrone) "I was on this medicine for about 7 weeks and I gained a lot of weight and on the start of my 3rd pack I got extreme migraines when I crouched down. I was in crazy pain so I stopped the birth control. After about 3 weeks my migraines stopped. I got MRI's and the doctor didn't see anything wrong with my brain."

• Ashley
• Taken for 1 to 6 months
• September 7, 2018

Camila (norethindrone) "I originally took this pill to ease the pain of my endometriosis. I didn’t make it to the 3 month mark. My periods have gone from 4 days to 10. It drys me out and makes inserting tampons very painful. Instead of having one day of excruciating pain, I ended up having 10 days of moderate pain with very bad nausea. My skin has become so oily and painful that it’s affecting my well being. Although I did not give this pill a fair chance, I simply could not wait it out to see if things got better."

• green...
• Taken for 6 months to 1 year
• June 29, 2016

Errin (norethindrone) "Due to blood clot and diagnosis of autoimmune clotting disorder (anti-phospholipid syndrome), I had to be put on a non-estrogen birth control to help with my endometriosis. The pill has caused me to spot just about every single day and I have been on it for over 6 months. It has not been able to control the cramps and I have to have 800mg ibuprofen on hand at all times. It has cut down on my 7-10 day very heavy period, but since I spot every day; not sure if its really helped with the blood loss and anemia. When I started, I had just about every symptom of pregnancy; but I was not pregnant. This went away after about 1 month of use. Unfortunately, this is my only option at the moment, so I'm kind of stuck with this."

• Anony...
• August 26, 2017

"This pill is great, I've been on it for over a month and no really weird side effects. My boobs have gotten bigger and I put on a few pounds but probably from eating badly. I'm in no pain form my endometriosis and it doesn't interact with my antidepressants Zoloft and trazadone. I love this so much more than my old skyla that almost perforated my uterus. I recommend this pill to those in endometriosis pain and those who can't handle estrogen/combo pills due to other medications and illness."

• Anonymous
• September 19, 2019

"This pill is the absolute worst. I only took it for 3 weeks. It broke my skin out so bad. My cycle stayed in for 9 days or more had heavy clotting and spotted several days. I wouldn’t recommend taking this pill find other alternatives for heavy cycles. For some reasons doctors say it takes a while to work but it didn’t take long for it to have a negative affect on my body."

• choco...
• Taken for 1 to 2 years
• November 30, 2022

Aygestin (norethindrone) "Got put on this after lap for endometrioma and finding out that I had "a war zone" of endometriosis (direct quote from my doctor). I was started on 5mg daily and 10mg when bleeding, but I started having more depression symptoms than usual, so I dropped it to 2.5mg and 5mg when bleeding. Bleeding decreased a LOT and I had very little pain. Now I'm out and just waiting to see my doctor again to get another supply!"

• LTano
• Taken for 1 to 6 months
• October 15, 2020

Ortho Micronor (norethindrone) "HORRIBLE. I'm open minded to trying meds IF a logical & necessary reason. I was desperate for SOMETHING to manage my endo, acne & act as birth control. I was told this was safest. I was 26 then. Within 2 days my face broke out with crazy cystic acne. But I kept taking it cuz told it could take "8-10 weeks for my body to regulate". Each day got worse. Swollen, scarred, I lost my youthful tone & had low self esteem. No support from gyno. After 10 wks I went off Micronor yet my body couldn't reregulate & kept producing painful acne for 1 yr. In that time I found hope in Exposed Skincare products & PRP microneedling. Doctors are qualified, but still HUMAN. Trust your gut if it doesn't feel right. Don't wait like I did just cuz they tell you "8-10 weeks"."

• Steph
• Taken for 1 to 2 years
• April 18, 2019

"This pill has done great for my endometriosis - a tubal pregnancy I had 20 years ago caused endometrial cells to escaped and reproduce outside of my uterus so I was getting internal bleeding during my periods. My periods were pretty horrible after a copper IUD removal - time in between periods was about 14 days, and would last up to 10 days. Menstrual hemorrhaging was making my commute horrible. I have been taking norethidrone for about 1.5 years, and gained a bit of weight, ~10 lbs. My periods are completely gone with no spotting and no cramps whatsoever, which took about 3 months. However, I think I have developed hives from the generic Norethindrone, so I am attempting the name brand Aygestin. Good luck to all!"

• Anonny
• Taken for less than 1 month
• July 24, 2017

"I had the skyla IUD for a year with no problems, I've actually recommended it to a lot of people. Unfortunately after one year my skyla fell out of place and ended up somewhere it shouldn't have been, I almost needed surgery to get it removed. I've now been taking this pill for a few weeks and I feel no different than how I felt with my skyla. So far I like this pill. I was put on this pill due to endometriosis and I suffer from depression so I need no estrogen."

• AndreaW
• September 29, 2015

"I was prescribed this medication a month ago after finding strange cysts. It was supposed to stop my period. I had finally gotten my period down to 4 or 5 days, once a month, after my second surgery last year. But, now I'm bleeding pretty much everyday. I need to wear a pantyliner at all times, which is no fun. I still have endo pain. I've gained 6 lbs in one month. I keep snapping at people. When I'm not easily irritated, I'm extremely depressed.I've also been quite forgetful, but I'm not sure if that has anything to do with this medication since I haven't seen anyone else write about it. I tend to have breakouts, so I don't think that has changed. I hope that I won't be on this much longer."

• OkieE...
• Taken for 2 to 5 years
• June 28, 2022

"I have mostly great things to say about norethindrone. I take 10mg once per day for 365 days a year, unless I feel I need a hormone reset then I'll stop taking it to have a single menstrual cycle. It completely eliminated my cycles with consistent use and thus eliminated my pain. Four years after an endometriosis surgery, the Endometriosis did not recur in the areas it was removed from. The only complaint I have is that by default of being a hormone treatment consistent use does lead to facial hair growth (not like becoming a man but just more of the peach fuzz we all generally have some of). It's annoying and I do have manly type beard hair that grows on my neck and one on my back thanks to this med. That being said, I wouldn't go off of this medicine until I have a hysterectomy, planned for age 35."

• Madderz
• Taken for 2 to 5 years
• August 14, 2019

Nora-Be (norethindrone) "I got on this Nora-Be pill maybe 3ish years ago. Thought it was helping my Endometriosis. But my Gyno and hormone doctor told me it wasn't great for helping Endo. I'm taking progesterone as a hormone pill. Nora B has made my life change for the worse. Horrible acne, weight gain and unwanted hair on my face. Also my mood has changed since I've been on it. I stopped taking Nora B today and I know once it gets out of my system I'll be way better. In the near future probably 2-3 months I do wanna get back on a better birth control that will help it better. I do not recommend this birth control to any women with Endo. Does not help and makes things worse for you. I am 26 years old and without insurance right now. Without it, the pill for 3 months is over $130. Again I do not recommend this birth control"

• Anna
• Taken for 1 to 6 months
• July 8, 2019

"I was prescribed norethidrone as form of birth control that would prevent my endometriosis from worsening. I’m on a separate medication for that. This has caused me to me more hungry between meals. However, increased snacking has not caused weight gain. I did have all-day headaches in the first month that were fairly intense, but those have subsided. I have far more acne now than before, and my breasts have gotten a bit smaller. However, I have not had a period or spotting since I began, which is what my OB intended. I actually increase my dose from 5 to 10 to alleviate negative symptoms caused by my endometriosis medication, and it’s while the hunger has worsened, everything seems to be going quite well. Compared to the half dozen I had to try in the last two years for Endo management, this is great!"

• rach
• January 2, 2021

Heather (norethindrone) "I have tried the combo pill twice before using Heather. I mainly started for horrible, heavy periods and intense cramps. The combo pill (both times) was absolutely horrible and I’ve never felt worse in my life. Heather has been good for me, but has cons. I have irregular periods now, but they’re not very heavy and I barely get cramps anymore so the periods aren’t bad at all. The periods are also short (4-5) compared to my usual 8-10. Using Heather now has made me capable of doing my usual day to day activities while on my period. The downside is the hormonal acne. My skin is oily and acne prone but I’ve been getting painful cysts from this birth control. The irregular periods and acne are worth it for me personally because my endo made my periods a living nightmare before. When I first started it, I was on my period for a month, but after that they’ve been pretty short aside from the one time that I missed a pill."

• Bella...
• May 8, 2017

"I was on this for endometriosis after 3 surgeries, went off last week to try for a baby, on the plus side it worked for me no pain at all (had pain everyday not just that time of the month before it),no bleeding/ periods. on the negative side now have cystic acne and have spent $100 with my derm. trying to get rid of it, hopefully it will clear now. I did gain about 30 lbs over 5 years but not 100% sure it was the pill, but not a big deal for me was under weight before it. Everyone is different but it worked for me, w/o it I would have had a hysterectomy at 23."

• Missy
• Taken for 1 to 6 months
• July 23, 2021

"I started taking this because my usual 7 day long, heavy, painful period suddenly made it to day 10. It didn't seem like it was ever going to stop. After 2 days of taking 5mg of norethindrone twice a day, my period finally stopped on day 12. I was so relieved but then the nausea started kicking in. It lasts from the morning until bedtime. Eating is a struggle and yet I managed to put weight on somehow. I was put on a lower dose but the nausea still persists. I'm glad that this medicine made me quit bleeding but the nausea feels like when I was pregnant and had severe morning sickness."

• Maddy
• Taken for 6 months to 1 year
• November 12, 2020

Errin (norethindrone) "I had god awful endometriosis, when I get my period I have cramps so bad I cannot function, diarrhea, and nausea. I started Errin to help fix this issue. The first month I didn’t bleed but had god awful cramps (per expected). After the first month my periods came twice a month and lasted about 7 days. My cramps weren’t as bad as when not using birth control. 8 months later and it’s still the same. I’m actually getting off Errin because my active lifestyle isn’t really fitting with having my period half the month. With Errin my acne skyrocketed too. My chin and cheeks have never been so broken out in my life. I used to never wear makeup and now I can’t bring myself to be in public without it. I’m go glad I have to wear a mask in public because of how bad my acne is. Altogether, I didn’t get pregnant, my cramps got slightly better, and my acne is uncontrollable. Wouldn’t really recommend."

• Smiley...
• Taken for 6 months to 1 year
• August 28, 2018

"I was prescribed norethindrone back in September 2017 for my endometriosis. But at the time I was taking the Lupron depot shot as well. To help regulate my endometriosis. The norethindrone at the time was fine as long as I was taking the Lupron. But afterwards in April I had a month long spotting/period month. Then in May and June I didn't get a period at all. Then at the end of July I started spotting around July 23 then the spotting went on until the first week of August then I had a period. But not just a period a non-stop period with lots of clotting (clots are very large) I had never had clotting before taking the norethindrone pill. Just very painful period. It is now August 28 and I am still getting my period a month later. What do I do."

• Chinkyb
• Taken for 1 to 6 months
• February 2, 2021

"I started this pill (0.35mg) 1x daily about 3 months ago. I noticed a few weeks in that I was getting horrible moods swings and lashing out at everyone around me. I would cry very easily for no reason. I chalked this up to starting a new career until other side effects started- my breasts started hurting me and were swollen, I got 2-3 yeast infections in 2 months and completely lost my sex drive. The newest thing is my legs have been cramping me and I have a cyst on my face which was discovered after a facial. (I've never had a facial cyst in my life.) I started this due to SEVERE cramping each month with my period but have decided to stop taking it. If there are any alternatives that you can take for pain- definitely try that first!"

• avera...
• Taken for 2 to 5 years
• December 29, 2022

"I was prescribed norethindrone .35mg after a new gyn listened to my complaints of extremely painful periods, painful bowel movements, cramping most of the month, pain after sex, etc, and said she suspected endometriosis. I had tried several combined oral contraceptives prior, but after a few months, my pain would always worsen, probably due to the estrogen. I’ve been on norethindrone now for just over 2 years and it has helped significantly. I did have breast swelling/tenderness for the first 3 or so months on it, but it has since stopped. I also had spotting initially, which my gyn then emphasized to me this medication must be taken at the *exact* same time every day. When taken at the exact same time daily, I have no issues with spotting. After about 12 months on it, I started getting my period less, and now I often don’t get it all, or I will have a much more manageable, short-lived period with little or no flow. If you have endo or similar symptoms, I think it’s worth a try."

• MJC
• Taken for 1 to 2 years
• October 11, 2017

"I really thought this was the perfect pill for me. I couldn't tolerate anything with estrogen because of migraines. Plus I was getting really bad PMS and heavy periods. So last October I started this pill. For months it seemed pretty good. I only spotted a bit the first month & my periods seemed better. I had unprotected sex a few times & did not get pregnant either. But exactly 1 year on since taking this pill & I gained 20 pounds-- 20!! This shocked me because most of my clothes still fit & I only thought I gained a few pounds at most. So my body is basically carrying around a massive amount of water weight(!!) which has bad side effects too... I feel bloated & achy all the time, & sadly my PMS is still really bad! So I think I'm done!"

• Solol...
• April 14, 2019

"Been taking this medication for a month now. I'm 26 and have endometriosis. In the past month I have seen great results with my cystic and hormonal acne... But that's it. I am CONSTANTLY exhausted, I can't get out of bed. I'm literally crying 80% of my day. I am not an emotional person either. I haven't had ANY improvement in pain.. I have even been having very dark Thoughts.... Yesterday I literally felt like I wanted to die. Emotionally, mentally... It's not a good medication for me WHATSOEVER. I am forgetting to do basic things like feed the cats or pay the bills, I'm forgetting simple things that shouldn't be something to forget.. I feel like I'm extremely depressed and I can't get into a doctor for another 5 weeks. But I'm scared that if I stop taking it my pain is going to get even worse and my cystic pimples will come back and I'll be just as depressed."