Modafinil for Narcolepsy User Reviews (Page 5)

• Gas...
• Taken for 1 to 6 months
• November 6, 2018

"Difficult getting prescription. I would wake up and take a 200 mg dose and fall right back asleep. If awake, it would help me stay awake through the day. I still need my other prescription medications. Not a substitute for sleep. I do not find cognitive enhancement, increased awareness/productivity, or mood improvement. Must take early since it is more difficult to get to sleep. Try not to take it daily, but only when I need to be functional at work. No impairment with driving, jitters, or manic symptoms. Unlike amphetamines. I feel the efficacy of modafinil is hyped. Needed to appeal to health plan: documentation from my doctor, a letter from my employer, and a letter from myself. The letter from my doctor is what got my health plan to accept my appeal. Given the cost and coverage difficulty, this drug is of minor benefit for me."

• Bea...
• Taken for 10 years or more
• November 20, 2021

"Been taking this for 10 years or so. I take 800 mg a day along with Concerta 36-50 mg. My opinion? I don't like it. Never did from day one. I took Desoxyn for years before this. One small pill a day. My original Dr. gave me 5 mg. Desoxyn worked like a charm. He retired and my present Dr. decided this combo is better, it's not. What I find it to be is, it keeps you in an awake state without the Concerta, a 'foggy' awake state. (Regardless of dosage) I feel like I'm full of pills because the tablets are so large. I got used to this 'dip' you get where you feel like you're in a trance for about 20 minutes... (even with one of the pills, and it takes hours to peak). No matter how I juggle them, I seem to stay more alert at night... Desoxyn was 3 dollars and something for a month's supply. THESE? Thank God I have a prescription card. I felt myself with the Desoxyn. It activated in minutes and lasted all day. No comparison. Great if you want to be a nightwatchman."

• too...
• July 24, 2009

Modafinil "I started taking Provigil about a year ago when it was suspected I had narcolepsy. I was tested and found it was Idiopathic Hypersomnia (lack of melatonin). They call it idiopathic because they don't know what causes it. Provigil works one day for me, then not the next. You can only take 200 mg max per day. I went off it and on Ritalin. I am awake without any ill effects. I have recently been tested again for narcolepsy and was found that I am narcoleptic. The test given last year was done incorrectly (without my CPAP), it was supposed to be done with it on during my sleep study. All is good now."

• Anonymous
• September 1, 2016

"Modafinil gave me no relief from my daytime sleepiness at all. The medicine gave me headaches and made me nauseous all day long. I stopped taking it and tried to deal with living with narcolepsy without medicine, but that only led to more problems for me."

• Anonymous
• November 4, 2009

Modafinil "Provigil has worked well at treating my narcolepsy. I had to stop taking it when I was pregnant and resumed taking it after my daughter's birth. If you choose to take Provigil and have children, you need to be driven around for the duration of your pregnancy and up until you are back on the medication."

• Jam...
• Taken for 5 to 10 years
• May 7, 2018

"I have had very little side effect on this medication, and it helps a lot. There are stronger drugs out there, but I cannot stand their side effects. So, this is good for me and maybe others that dislike the side effects of other medications."

• Anonymous
• Taken for 2 to 5 years
• August 7, 2012

"Useful for narcolepsy, gives you more awakening and alertness. Recommended low dose with a little caffeine for use over several years. Not useful for long-term depression if you have problems with modafinil. It makes you more alert and awake."

• Flo...
• Taken for less than 1 month
• December 1, 2020

"I suffered debilitating myalgia in my upper back that also traveled up to my jaw. I have TMJ, and this med negatively affected that as well (frequent to constant lockjaw). I only took it for a week, and by the seventh day, I couldn't move because the back pain and my jaws were hurting so badly. This med was definitely not a good fit for me in treating narcolepsy."

• Sle...
• Taken for 1 to 6 months
• June 12, 2023

"I have narcolepsy without catalepsy. I end up getting so sleepy, fatigued, and feeling like my head is full of cotton. This medication did absolutely nothing for me. They even increased my initial dose to twice the amount I initially started with, and it had no effect. In fact, the ONLY effect it had (and maybe TMI) is that it made my urine smell TERRIBLE! Like celery. This is apparently a rare genetic side effect, but it's so unpleasant. I'm now on Adderall XR, and it is like night and day with how well it works."

• Cel...
• June 1, 2009

"This is the first and only drug I've ever taken for narcolepsy, and my standard of life, work, etc., has improved incredibly since then. I do get the side effects (dry eyes, dry mouth, crawling skin, headaches, tummy problems, and ironically enough, sometimes tiredness too), but these are subsets of one main side effect - massive dehydration. So I just drink lots of water and am mindful of it. Once you get over the main onset headache (which admittedly took me a few weeks), the benefits far outweigh the cons. I'm lucky with the costs, as I live in the UK, so 6 boxes x 30 tabs (200 mg) only costs the price of a prescription (about"

• Ema...
• Taken for 2 to 5 years
• January 27, 2021

"I got diagnosed with narcolepsy in 2017, and I was given modafinil after my Ritalin lost its effectiveness. I started with 100 mg 1x a day, then moved to 200 mg 1x a day. It gives me terrible body aches, and at times I wake up feeling like I got hit by a bus, but I also have a genetic connective tissue disorder, so they put me on baclofen. The baclofen counteracts the pain, and I no longer get the body aches. 200 mg wears off after about 5 hours, though, and I find myself very sleepy by noon, so I'm also supplementing 20 mg of Ritalin with the 200 mg of modafinil. With this combined regimen of medication, I am finding myself with more energy than I've had in years and feel like a fully functioning human being again. Beware of some nausea and body aches and it not lasting very long, but other than that, it's great."

• Men...
• Taken for less than 1 month
• July 7, 2021

"Have had Adderall before to treat narcolepsy and loved it! Then I had a doctor switch me to modafinil because it's 'less addictive' and not as high of a controllable with the government. It made me feel completely crazy and about made me come out of my skin and lose my mind! As a drug, I feel like it was just a step above bathtub crank! No thanks, never again will I ever consider taking it again!"

• Dia...
• February 17, 2018

"This drug has made my husband have ED, he now is so moody, irritable, and nasty to live with. I have to live on the other side of our home to avoid getting blasted with his daily insults, demeaning, belligerent horribleness!"

• Lou...
• Taken for less than 1 month
• December 5, 2020

"I may have narcolepsy (from reviews here with people who have been diagnosed with it). I have the exact same symptoms but without cataplexy. I slept up to 14 hours a day plus 1-2 naps. I walked out of 3 jobs as I could not stay awake. My sleep doctor (which I now have) plus my respiratory therapist have been working with me for 13 months now, looking for the right sleep apnea mask and settings for me. Nothing kept me awake, so the doctor put me on 100 mg Modafinil, 1 or 2 pills, up to twice a day. The dose that works for me is 2 pills. I am hyper all day long, and it's fantastic. Modafinil has given me my life back. I am in Ottawa, Ontario, Canada, and I am now 67 years old. I retired with a tiny pension from the Government of Canada at age 58 because I became too exhausted to work."

• rep...
• Taken for less than 1 month
• October 9, 2022

"Generic Modafinil is a dirty, nasty drug; it made me paranoid and my skin crawl. Had previously taken name-brand stimulants with no side effects. Modafinil made me feel downright insane! I'll never take another generic stimulant ever again!"

• Big...
• Taken for 1 to 2 years
• January 24, 2022

"Yes, it works, you just need more and more till it causes other problems. I just want to stay awake. Cataplexy, anxiety. The side effects list must be read by the consumer, the docs never told me the side effects or showed me the list. My parent was shocked after research."

• Med...
• Taken for 10 years or more
• July 18, 2016

Modafinil "You get used to this and need to take more, or not take it (therefore not drive) for about a week. But only 'helpful' insights will be printed (after editing). So my saying $3600 a month for 60 pills? Really? Are they worth their weight in gold? They don't seem to have any side effects, for me. Other than tremors. So that's a plus. Should they cost more than most people make in a year? I am disabled and receive $10,000 a year. After researching, I'm not finding any major payouts from the company, due to lawsuits. (I realize awards are confidential, but there haven't been many cases. Who am I kidding? This won't be printed. I just had to say something because the cost is abominable. Ok. I c $$ How did you do the A-spam thing? Impressed!"

• Anonymous
• April 30, 2008

Modafinil "Compared to Ritalin I was taking, Provigil works much better and has fewer side effects. Hasn't affected my blood pressure."

• Anonymous
• June 24, 2008

Modafinil "Works great for my narcolepsy; the only complaint I have is that the price is prohibitive. It is the only medication that has worked effectively for my condition and with dramatic results."

• Anonymous
• Taken for less than 1 month
• November 13, 2012

Modafinil "Felt like the Energizer Bunny! Within an hour, I was racing around work. Pain I normally have (back surgery) disappeared, but after 6 hours when I slowed down finally, I ached everywhere!"

• CM5...
• Taken for 1 to 6 months
• August 16, 2016

Modafinil "Over 2 months on Provigil. Still tired, can't remember words, yawn all day. Only side effect was appetite suppressant, which is all I felt. Waiting for Dr. to prescribe something else."

• Sag...
• July 25, 2013

Modafinil "Wide awake, enhanced reflexes, but too expensive."

• Mil...
• Taken for 5 to 10 years
• July 11, 2014

Modafinil "This was more effective than any others tried, including Ritalin and Vyvanse, which made my heart rate rise to the 140s. Modafinil worked quickly but not suddenly and lasted for the entire day."

• Wil...
• Taken for less than 1 month
• December 10, 2019

Modafinil "Does not work for me at all. It gave me bad headaches, and I still slept all the time."

• Inf...
• Taken for 2 to 5 years
• September 16, 2015

Modafinil "Sensational medication. Provigil taken alone for my narcolepsy kept me awake and alert when needed, yet allowed me to take my short nap(s) throughout the day when needed."