Imbruvica for Chronic Lymphocytic Leukemia User Reviews (Page 2)
Imbruvica has an average rating of 6.5 out of 10 from a total of 41 reviews for the treatment of Chronic Lymphocytic Leukemia. 56% of reviewers reported a positive experience, while 32% reported a negative experience.
Reviews for Imbruvica
- Sad
- Taken for 2 to 5 years
- August 24, 2021
"My husband did very well on Imbruvica taking one pill three times a day when he was switched to same dosage once a day within months he had a VF heart attack went on Life support never recovered never had cardiac issues or was told to get a cardiologist high BP and smoked I suspect the med but don't know for sure. My advice is get a cardiologist if you take this medication."
- Ray
- Taken for 1 to 6 months
- February 22, 2024
"Thus far I have done well on Imbruvica. My swollen lymph nodes have been reduced by almost 100%. I am on week 5 and am in the early stages of taking the medication. I have had one mouth sore which cleared up and has not returned. I am fighting a bad chest cough. I see my doctor tomorrow."
Frequently asked questions
- How long can you stay on Imbruvica (ibrutinib)?
- How much does Imbruvica cost?
- How quickly does Imbruvica (ibrutinib) work?
- Does ibrutinib cause hair loss?
- Del
- Taken for 5 to 10 years
- June 23, 2023
"On Imbruvica for almost 7 Years. I had to do 2 cycles of RCHOP first as Imbruvica was a second-line treatment. It was very effective at reducing my tumor load and keeping it away with 420 mg a day. I had side effects that were managed for most of the time. The neuropathy, diarrhea, heart palpitations, and lung damage were the most persistent. Fifteen months of bleeding from the lungs was the reason for stopping Imbruvica."
- irkee
- Taken for 2 to 5 years
- March 19, 2024
"If my mother had had this drug, she wouldn’t have died of CLL 25 years ago. Wonderful drug. Very few side effects. Hard to know what symptom to pin on what (including age). I’ve maintained excellent blood counts, life activity, general well-being for 4 years now. Side effects: blood pressure, red spots under the skin of arms, slight decrease in energy, greater tendency toward bruising/bleeding, recent slight urinary incontinence. 420mg pill/day makes it easy to administer."
Are you taking this medicine?
- Jinjari
- Taken for 6 months to 1 year
- May 13, 2023
"I was diagnosed with CLL in 2013. Treated with Rituxan and Bendamustine. Went into remission but CLL returned in 2022. The oncologist prescribed Imbruvica 420 mg daily. My WBC level is now in the normal range. I suffer a great deal from rash and fatigue since my hemoglobin level and red blood cell count are below the normal range."
- rspre...
- April 17, 2016
"My husband took 3 Imbruvica before bedtime and died from sudden cardiac arrest the next morning."
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- jim
- Taken for 5 to 10 years
- April 26, 2024
"Using this for a few years now with no side effects so far."
- Genicon
- Taken for 1 to 6 months
- March 25, 2017
"Shrunk lymph glands in back of neck first week of taking 3 capsules a day second week swollen glands in armpit are gone minor side effects ."
- Poor...
- July 7, 2017
"My husband took 3 Imbruvica before bedtime and died the next day from Sudden Cardiac Arrest"
- Nicole
- January 24, 2017
"My 78 year old mother was taking this and in her third month she had vomiting one day back and neck pain for 3 days, then passed away in her sleep, Didn't get a chance to lower the dose."
- Eddie...
- October 27, 2016
"Medication has effectively arrested my father's CLL. From 140,000 WBC to 5,000 within two months."
- BBano
- January 3, 2019
"My mother has been given thus medicine and when the her dose increased it shut down her internal organs she nearly died. She now gets blood transfusions."
- Simon...
- Taken for 2 to 5 years
- December 1, 2020
"Taking this drug for over 3 years. Thankfully, never had any side effects. It is a lifesaver. Dropped my numbers from 160 to 13."
- Tbano
- March 14, 2021
"Arm sores so bad had to stop using."
- Anne
- Taken for 2 to 5 years
- May 31, 2024
"Brought white blood cell count back to normal. On it for three years. Today I found out I now have atrial fibrillation!"
- Chas
- Taken for 6 months to 1 year
- March 29, 2024
"I have taken Imbruvica from May 2023 until this week when it was stopped due to a severe rash on my torso, head, and arms."
- Anonymous
- Taken for 5 to 10 years
- December 1, 2023
"Has kept me alive - I had recurring Hodgkin's Lymphoma 7 years or so ago. Has side effects though - bruising easily - eyesight changing - increased blood pressure and fatigue"
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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"I've been on it a little over two years after relapsing from FCR in 2014, was in remission till May of 2019. I haven't had much in the way of side effects, mouth sores that can be controlled with mouthwash. My counts are all in the normal range & waiting on the results of an MRI I had for another issue to see what my lymph nodes are looking like."