Fingolimod for Multiple Sclerosis User Reviews (Page 4)

• MCF
• February 2, 2024

Gilenya (fingolimod) "Diagnosed in 2001. Used Avonex for 10 years. I hate needles! And hate weekly flu-like symptoms! My doctor predicted that I would be in a wheelchair in a year. Immediately, I changed my diet to fresh fruits and fresh veggies. Gradually returned to a normal diet. Also immediately prayed for healing. And must have a positive outlook/attitude. I had two relapses in the first ten years, each time affecting my sight. Thank God for the daily pill medicine, Gilenya. I started Gilenya in 2011 and have not had a relapse since, and it is February 2024! My MRIs come back looking better each time. And thank God I don't have the flu symptoms every week from my medicine. Everyone may not have the same result, but my experience has been fantastic. And thankfully, I haven't been in a wheelchair EVER for MS."

• Joce
• Taken for 5 to 10 years
• November 1, 2021

Gilenya (fingolimod) "Anyone loves the idea of taking a pill vs. giving themselves a shot. I have really enjoyed the ease of taking my medication as a pill, however I have developed recurrent sinus infections over the course of 6 years. It has gotten progressively worse and is affecting my excessive absences from my job, which is undesirable. Looking into an alternative medication. Have previously been on Copaxone and Avonex. Overall I would say that this has helped with my lesions in my brain and spinal cord. There have been new ones and some have gotten smaller."

• Great...
• Taken for 1 to 2 years
• April 2, 2024

Gilenya (fingolimod) "I, like many, really hesitated starting on treatment when I was diagnosed 2 years ago. I tried 6 months of alternative therapy but felt pretty awful with symptoms and my check up MRI showed more lesions. With two kids under 5 to look after, I sucked it up and went on the Gilenya as recommended by my neurologist. The hospital admission to get started was uneventful and I drove home fine. Then I felt like total crap for about 2-3 weeks as my body adjusted to the drug. Then my symptoms and side effects (dizziness, nausea, headache) started to resolve! My latest MRI showed no new lesions! I am back riding my horse, trail running, and chasing my two kiddies around. I still get some mild symptoms sometimes but overall feel really happy on this drug. Note - I was happy to only have two kids, but definitely a consideration if you haven't completed your family."

• Anonymous
• January 20, 2011

Gilenya (fingolimod) "I have been on this medication for a month and I have not experience one side effect. SO MUCH better than the shots. We will see later if it is as effective as they say it is."

• deero...
• Taken for 2 to 5 years
• January 9, 2015

Gilenya (fingolimod) "Gilenya is by far the best medication so far in treating my multiple sclerosis. Easy to take and with few to any side effects. Highly recommend."

• carpa...
• March 9, 2011

Gilenya (fingolimod) "I have been taking it for 3 months and I have not really had any side effects from it. I have noticed that the heavy shooting pains I was having in my legs and feet have stopped which is a big relief."

• Anonymous
• July 28, 2011

Gilenya (fingolimod) "I have been on Gilenya for 8 weeks and just recently noticed my hair has begun to thin. As I brush, numerous strands fall out. I am a 32 year old female so this is very concerning. "

• Anonymous
• August 3, 2011

Gilenya (fingolimod) "I have been on Gilenya for 3 months now for my Multiple Sclerosis and am very very impressed. I have had no side effects."

• Remir...
• September 7, 2015

Gilenya (fingolimod) "Been on Gilenya for 3 months, I haven't seen any improvements! In fact I think I got worse! But who knows what will happen, injections/pills whatever but make it work!!"

• AZSteve
• April 15, 2012

Gilenya (fingolimod) "So far, no problems except a sore throught. It's only been 4 days I'll update later as I'm expecting good things from what I've read"

• Tammy...
• Taken for 5 to 10 years
• May 5, 2017

Gilenya (fingolimod) "After 5 yrs Gilenya is no longer working for me"

• Marty
• June 21, 2017

Gilenya (fingolimod) "Was on rebif over 10 years, went on Gilenya for trial. Stayed on it after trial ended. Tired, slight headache sometime. Better than taking Rebif. I will take these symptoms any day."

• Mano
• Taken for 1 to 6 months
• July 31, 2019

Gilenya (fingolimod) "I would not recommend Gilenya for MS. It made me worse. I could only take it for 5 months Then hair thinning, heavy period, halted my walking"

• Disgu...
• March 9, 2019

Gilenya (fingolimod) "I would NOT recommend Gilenya to anyone. The side effects are simply atrocious. It can cause such severe fatigue ."

• Anonymous
• Taken for 1 to 6 months
• October 4, 2017

Gilenya (fingolimod) "Hair loss, persistent headache"

• Crystal
• Taken for 6 months to 1 year
• February 12, 2020

Gilenya (fingolimod) "I have been on this medication about 8 months now and have experienced no side effects, I feel a lot better and am able to continue working and doing my everyday life activities."

• Cstokie
• Taken for less than 1 month
• November 20, 2016

Gilenya (fingolimod) "The drug lowered my blood pressure after first dose so I was not able to continue"

• mathg...
• Taken for 6 months to 1 year
• March 13, 2017

Gilenya (fingolimod) "Terrible stomach pains. How long does it last even when I'm off the med."

• Didys...
• Taken for 1 to 2 years
• August 6, 2020

Gilenya (fingolimod) "Gilenya is an awful drug!!!"

• Ms pp
• July 5, 2017

Gilenya (fingolimod) "Stabilized my MS symptoms and make it under control But the medicine already covered by my insurance so far"

• Kpoteet
• Taken for 6 months to 1 year
• November 2, 2017

Gilenya (fingolimod) "I like the convenience of it being a pill. The other medications I've taken for ME have been injections. Problems I'm having are thinning hair & hair loss."

• dusty...
• January 26, 2011

"1 month on this medication and no side effects. Love not giving myself shots. Will see Doctor in March to see how it is helping. Hoping for the best."