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User Reviews for Prolia

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Condition Avg. Ratings Reviews Compare
Osteoporosis
3.6
   
89 reviews 152 medications
Summary of Prolia reviews 3.6 89 reviews

Reviews for Prolia

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For Osteoporosis "I have only had one shot of prolia but I haven't felt well since then. My symptoms are intermittent fever, shivers, Bone and joint pain, severe fatigue and jaw pain"

   
1.0

una healy April 10, 2018

3 users found this comment helpful.
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For Osteoporosis "I received my first Prolia injection, June, 2017, and the second injection, December 19, 2017. I did experience back, hip, and jaw pain with the first; however, it has been much worse after the second. I’m taking six Advil per day with little relief. The pain is interfering with activity at work, home, etc...I will have to talk to my nurse practitioner. My bone density has improved; however, due to the pain, I wish I had not taken the medication."

   
3.0

margoh (taken for 6 months to 1 year) April 4, 2018

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For Osteoporosis "I have taken Prolia for six years. Last summer my muscles in my knee ,that I had a replacement, would tighten up so I couldn't walk. I had another shot in November 2017 not knowing that the Prolia shot could be causing my pain. My Endocrinologist told me in December that it was the shot causing my problem. The muscle spasms have been severe this last month. I am afraid to go anywhere by myself. The pain will come on in a matter of seconds. Other pain in hands, feet and arms. Can anyone tell me how long it will take to get this out of my system? No more Prolia!!!!"

   
1.0

gcruse1952 (taken for 5 to 10 years) March 5, 2018

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For Osteoporosis "I received the injection in December ‘17 and the shot was easy to take. I initially had no local side effects to the injection. Three weeks after receiving the injection of Prolia I started to feel numbness and tingling all over my body and I developed diarrhea. I ended up going back to my Doctor who took my calcium level and it dropped to 7.1. I started increasing my calcium intake and it went back to normal after two weeks. I still have multiple spasms in my body. The diarrhea really did resolve in two weeks and after losing my appetite it came back after three weeks. I am now 2 1/2 months into the shot and still getting quivering and spasms all over my body including my arms legs and face especially around my mouth hands and feet. There are times I feel foggy and extremely fatigued. The feelings do come and go. This drug is a nightmare. I would not waste my time taking this drug I already lost two months of my life. Too bad there is not a way to reverse it."

   
1.0

Lousy March 4, 2018

4 users found this comment helpful.
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For Osteoporosis "It took one full year after my second injection of Prolia for the excruciating back pain and paralyzing fatigue to stop. Still have some remaining nerve pain and muscle soreness. Very difficult to get my doctors to believe it was side effect of the drug but finally convinced a new Endocrinologist I went to see that it was from Prolia. Very scary year."

   
1.0

Suse March 4, 2018

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For Osteoporosis "I had my first shot on 2/13/2018 (my Dr. didn't tell me name of shot or any side effects of this drug) because of bone density test due to medication for breast cancer. Feb. 25 had the worst gum infection and sore jaw. Went to immedicare and they gave me a antibotic , then on Mon. I found a dentist that would take me in and I wanted to have the tooth extracted that was causing the problem. Dentist had numbed me etc, just before procedure he asked if I was on any bone treatment and told him about the shot. He stopped and called by Dr. and was told what I was taking, so he has now referred me to an oral surgeon. The dentist explained the drug I was taking and what could have happened if he had done the extraction. I will not be taking this again. Preventative isn't worth the other risks."

   
1.0

Always Ask February 28, 2018

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For Osteoporosis "59 years old. First injection December 2017. Now Feb 2018. No side effects at all. Also taking 4000iu vitamin D and Caltrate. Yoga, weight and resistance training. Discovered epilepsy medication zonisamide contributing to bone density loss. Hoping to cease depletion and restore somewhat. Watch this space...."

   
8.0

Meandering (taken for 1 to 6 months) February 26, 2018

4 users found this comment helpful.
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For Osteoporosis "I have had one injection of this drug and will not be taking another one. Before taking this drug I spoke the infusion Dr, a dentist and my primary care. They assured me it was ok to take. I read common reactions and worried a little but broken hip sounded worse. Boy, big mistake, a 10 on the pain scale of bone pain in thigh. Lucky to have Tramadol on hand or it would have been emergency room. Not one doctor will admit it is this drug, and they only did a xray after I threw a fit. Five months later the pain is less, but still there and make walking very difficult. Also the ear pain with no indication why. How come this is still on the market when adverse reports out number good reports. Make a CDC report too."

   
1.0

tm5276 (taken for 1 to 6 months) February 26, 2018

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For Osteoporosis "Originally I took Actenol for 2 years for my osteopenia. After two years of having heartburn and not realizing it was from this drug, I had a severe case of gastritis that took one year to get over. I was put on Prolia. I have had no side effects. It has increased bone density in my spine and my hips have some progress, keeping the bone loss from getting worse. I would have rated it a 10 if I had seen the progress in my hips that I have seen in my spine. But as long as it does not get worse, I am very happy since I have not developed severe osteoporosis."

   
8.0

TAKBB (taken for 2 to 5 years) February 20, 2018

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For Osteoporosis "I had a very bad reaction to my first injection and ended up in hospital a couple of times with colitis, which I had never had before taking Prolia. I have decided not to have further treatment with this medication as I have not felt well since then."

Her?r?i (taken for 1 to 6 months) February 17, 2018

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For Osteoporosis "Whew! Had the injection 3 months ago and haven’t been the same since! Excruciating pain in both knees and one shoulder! My knees hurt all night long. In the morning my knee joints are so stiff I can hardly walk. I cannot get up or down off the floor, can no longer kneel without pain! I was healthy and would walk several miles a day! Now it hurts to walk to the car! I too wish I had done more reading about this drug before taking it! Nervous to stop it but more nervous to ever feel like this again! Anyone hear anything about a class action suit?"

Not the same since,,,, Roberta (taken for 1 to 6 months) February 8, 2018

12 users found this comment helpful.
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For Osteoporosis "Great Fatigue and back pain. I doubt I'll do 2nd shot. Sad as I thought this would help. I have Osteopenia so hopefully there is something else."

   
2.0

1777ct (taken for less than 1 month) January 15, 2018

5 users found this comment helpful.
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For Osteoporosis "After the 3rd injection I started with left shoulder pain and a UTI I can’t get rid of."

   
2.0

Sandyz78596 (taken for 6 months to 1 year) January 11, 2018

8 users found this comment helpful.
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For Osteoporosis "After my 3 rd injection I did get some horrible side effects the worse is the intense itching over my entire body including my ears and head. It has taken over my life . Back pain muscle pain joint pain . I cannot do a normal days work . I am hoping that the drug will wear of . I will never ever ever use this awful drug again . It should be removed of the market after reading so many negative comments. I am not alone . Ellen de Man"

   
1.0

Anonymous December 28, 2017

16 users found this comment helpful.
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For Osteoporosis "One day after having the prolia injection, I woke up with swollen and dry lips and a sort of dry cough. It has been a month and the dry lips have gotten worse. I am constantly putting balm on my lips. My lips are scaly and dry and nothing seems to help. I also noticed that my gums have started bleeding. The doctor seems to think that I am having an allergic reaction to the drug so she prescribed an allergy medication. It did not help. I wish I had known before what the side effects were. I will not be taking any more of these shots ever!"

janmall December 22, 2017

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For Osteoporosis "Betty (83 yrs old) was given this drug in hospital after a hip replacement. Apparently this drug should only be given if other treatments for osteoporosis don't work, but Betty was never given any other treatment for osteoporosis prior to denosumab. Since receiving the drug her quality of life has significantly deteriorated. She has required 12 weeks of PICC line antibiotics because of a staph infection at the site of her hip replacement, and 12 weeks of oral antibiotics because of a urinary tract infection. Other symptoms include loss of appetite, weight loss, aching joints, weakness, and three hip dislocations. I would not recommend this drug."

MadSon December 14, 2017

19 users found this comment helpful.
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For Osteoporosis "I wish that I had never heard of this medication. I have been on it for about 6 months now and it has destroyed me and my families life. I can't do anything that I was doing before I started this. I was very happy, active, love to work and really enjoyed playing with my grandchildren and taking vacations with all of my family. I don't know what I would have done if it had not been for my wonderful husband of 52 years. I have so much pain all over my entire body and I feel so miserable all the time. My husband has had to take over the house cleaning , cooking and shopping. It is also impossible to sleep because of pain in both hips and back. I am also loosing a lot of my hair now. Prolia has taken the prize for being the worse med ever"

   
1.0

Nans8 (taken for 1 to 6 months) November 9, 2017

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For Osteoporosis "It’s worked very well for me. I started taking it at 55 years old when after falling and breaking 5 bones in my foot, the doctor had a dexa scan done. I was -2.8. I’ve now been on it for four and a half years with no side effects or problems. Last bone scan had my lowest score at -1.6."

   
10

Ks888 (taken for 2 to 5 years) November 3, 2017

16 users found this comment helpful.
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For Osteoporosis "4 months after the 3rd injection developed a gum abscess. Followed by loose teeth, inability to chew semihard substance such as apple and chewy vegetables. Also developed rash and bladder infection. Still has loose sensitive teeth 12 months after last injection. Precribing doctor has denied association. 2 Dentists found nothing wrong with the teeth just prior to the abscess developing. Recommended root canal, but treated conservatively."

   
1.0

Margont (taken for 1 to 6 months) October 30, 2017

22 users found this comment helpful.
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For Osteoporosis "I had my first Prolia shot in August, 2017 and have had no ill effects from it. I do not know if it is doing the job, but at least, I am feeling great !!"

   
10

Janlol (taken for 1 to 6 months) October 18, 2017

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For Osteoporosis "3 weeks ago had my 2nd Prolia injection. Several days afterwards, I started feeling excessive tiredness. Then shortly after that, it escalated into body aches. This has been continuing ever since. I take Tylenol at least twice a day. Needless to say, this has impacted my daily activities. Initially, I thought that I just came down with a cold with flu symptoms. Then, yesterday I reflected and recognized that the Prolia injection must be the source. Actually, I remember that I had similar symptoms after the first injection but lasted a shorter length of time. Just be aware that this medication directly impacts your immune system. I hope that my symptoms go away very soon and don't think I will get this injection again."

DebDeb3 (taken for less than 1 month) October 5, 2017

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For Osteoporosis "Prolia is killing me, too. My leg and buttocks are in constant pain that just doesn't stop. It's hard to lay down, it's hard to stand up, it's hard to just sit here without shifting position every three seconds. Here's the thing with stopping Prolia before finishing the drug. You are apt to have vertebrae break spontaneously. Which is worse? A broken back or pain that is almost unbearable? We should have been informed about these side effects. I bet Blyth Danner never even really took the shot or she wouldn't be happy up there on stage. Point is, don't stop till it's done. You could be sorry."

graylynmichelle (taken for 6 months to 1 year) October 3, 2017

35 users found this comment helpful.
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For Osteoporosis "Hi. I am 62. Diagnosed with Osteoporosis in 2008. Bone density has increased with Fomax (for 7 years) /calcium & walking 20 mikes plus a week. Had my first Prolia injection in July and 4 days later started to feel very bloated. At first I didn't link it to the jab as I do get a bit of IBS. After 2 weeks wasn't responding to anything - and I felt worse. Have since seen the GP had blood tests & an ultra sound scan has showed an almost impacted colon. GP agrees with me that it is due to the Prolia. Laxatives are helping - but the bloating is still terrible. I'm just desperate to know when this drug will wear off. No more Prolia for me folks!!."

   
1.0

Frankie1955 August 26, 2017

55 users found this comment helpful.
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For Osteoporosis "Received injection 02/20/2017, upon 3rd day overall body hurt. On the 8th day with no relief I contacted the infusion center, they stated it was unusual. On the 12th day they advised me to contact my primary care physician. I experienced severe thigh bone, muscle and joint pain in my hips, legs, arms and shoulders. This discomfort impeded my abilities to exercise. Prior to this injection I would swim 3 times a week, do daily light weight and yoga for exercise. I could not put any pressure on my knees if I attempted to kneel down because it felt like my thigh bone was going to break as well as getting sharp pain in my groin area. To date August 2017, still discomfort however not as severe. Refused 2nd injection. Do not recommend Prolia."

MTC103054 (taken for 1 to 6 months) August 12, 2017

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For Osteoporosis "I had first Prolia injection November 2016. Within a few weeks I gained 10 lbs very rapidly but put it down to changing time of taking Prednisolone meds that I am on long term for Polymyalgia. I had 2nd injection May 2017 and I can only say that since then I feel like I've been run over by a bus !! Bad insomnia, fatigue, neck pain, pain in upper legs and upper arms. Also numbness in face which is very annoying especially near eye as it feels like something is too close to my eye ! I will not take this drug again and am mad at myself that I did not check out the side effects before hand. I took the word of my consultant that it was the greatest thing !"

   
1.0

Margaret OC (taken for 6 months to 1 year) August 10, 2017

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