Cabergoline for Hyperprolactinemia User Reviews (Page 2)

• unknown
• Taken for 5 to 10 years
• April 21, 2022

"My husband was diagnosed with a pituitary tumor around 7 years ago. It was about 6 months to 1 year on the med I started noticing him looking at other women. I would bring to his attention and it was me being jealous. He has had several occasions that I found on his phone texting younger women and a sexual harassment was brought against him at work. Now I find out that after the last 6 years of our marriage he has been looking at porn and paying cam girls online. Mood changes horrible. He says it is me my (women hormones) need to be checked. You cannot carry on a conversation with him unless he gets mad and he is always right about everything. Never has said he is sorry for anything he has done in the past. We have been married 20 years and he just come home from work 3 weeks ago and said that we have grown apart in the last 6 years. I wonder why. I had no idea this med could cause these side effects."

• mptsy
• Taken for 1 to 6 months
• April 7, 2019

"I'm a 22 year old female who began with Dostinex in December 2018 with macroadenoma 12mm and a prolactine level of 237. In February 2019, prolactine decreased to 10 and the adenoma is now micro with 8mm. My body reacted incredibly well to cabergoline; it even helped me to lose weight (along with exercise and nutrition). However, I have experienced extremely painful periods, breast pain and runny nose (it’s like having the flu everyday)."

• Shelli...
• Taken for 1 to 2 years
• November 10, 2015

"I was on Bromocripton for two years. The side effects were depression, weight gain, extreme nausea and extreme constipation. I've now been transferred to Dostinex and spent the last year without the side effects and it's been life changing!!! I'm so thankful for this opportunity to feel normal again!"

• Najko
• July 28, 2017

Dostinex (cabergoline) "Three months ago have used dostinex for 4 weeks, two times a week half pill, so one pill a week! Before I have started to use dostinex my prolactine level was 589! After I used it for 4 weeks, prolactine level dropped down to 36. I was stupid I guess and I stopped using it. Now I am back on dostinex again because prolactine level went up to 600. Please if you are using dostinex regularly check with your doctor. That is my strong advice, don't be stupid like I was. Dostinex helped me with my prolactine. Thank you all"

• Gano
• Taken for 1 to 6 months
• July 23, 2019

"I was prescribed with this medication before and now again due to recurrent high prolactin (twice the normal). Before this I was feeling a bit depressed but it was manageable, U can recover right away. But this time I'm taking it with visanne due to endometriosis at the same time and the side effect is so magnified I feel so depressed all emotions are overwhelming. I'm still on 1/2 tab 2x per week and I'm taking it for more than a month now and can't sleep, I feel tired always, I can't find happiness and severing my relationship with others due to uncontrolled emotions. I feel like I'm going crazy I ask about the nurse regarding my feelings and she told me to just bear a little cause it is really the side effect and not me."

• Lindy...
• Taken for 10 years or more
• July 28, 2018

"I first went on cabergoline back in 1995 in Germany after my daughter was born and pituitary tumor was diagnosed. For 12 years it kept my tumor small. I’m 2007 I moved back to the USA, and was refused all treatment for my tumor as a pre-existing condition. I couldn’t afford the cost of the cabergoline without insurance covering it, so I stopped taking it. In 2010 my tumor got so large without my realizing what was going on that I almost died. Had surgery, back on cab, residual/tumor regrowth remains manageable. I’ve never had side effects and have had good results keeping my tumor in check with cabergoline."

• Candy
• Taken for less than 1 month
• December 1, 2019

"Recently (week 2) started this drug of .5mg twice weekly. Was very iffy about taking it due to the reports of the side effects but I must say I have not experienced any side effects with this medication so far. The first day, I did feel like I took a bunch of muscle relaxers and little headache but since then, nothing."

• Mafalda
• Taken for 6 months to 1 year
• April 20, 2021

"I was diagnosed with an 9 mm prolactinoma and I've been on Cabergoline for 8 months now, after 30 days prolactin levels were normal (tumor size wasn't re-evaluated yet). I was never a very sex driven person and I did feel in the first 3 months a considerable (abnormal) increase in libido, that was normalised. Also lost 7 kg (in the year previous to the diagnose - and 1 of the symptoms that set me to search medical help - I had gained 15kg). The only side effect that persisted this far are very (VERY) painful and abundant menses. Overall it I'm very happy, it saved my life (15kg gain where just one of the symptoms.) How Prolactinoma was affecting my thyroid somehow - some hormone wasn't being produced enough of and I felt tired, it was hard to walk as my achilles tendons hurt, and more."

• queen...
• May 31, 2015

Dostinex (cabergoline) "This drug reduced my prolactin levels really quick. I did not have a visible prolactinoma on my MRI but my doctor suspected it was really small. After 2 months my prolactin levels decreased from 2000 to 150. In the first month I felt a bit dizzy and wanted to sleep a lot more than usual (I had a few cat naps which is heaps out of character for me - I never usually sleep during the day) . This went away after about month and I generally feel fine taking Dostinex. I've been taking it for about 6 months now. I recommend you give it a go!"

• Walter
• Taken for 1 to 6 months
• October 23, 2018

"I started taking cabergaline a month ago. Hoping to lower my prolactin levels. Hoping it has worked, I have had a couple of side affects. One being slight head aches and the other is the huge sexual urge. It has changed my life completely. For the better."

• Malecka
• Taken for 10 years or more
• April 3, 2016

Dostinex (cabergoline) "I have been taking dostinex/cabergoline for 14 years. The main constant side effect is headaches. It feels like an ice pick is stabbing me in my head for a couple of seconds and then it goes away just as quickly as it started. It only happens maybe a couple times a month. I also find I get tired more easily and sometimes need to rest during the day. in addition, my vision has worsened. I stopped the medicine for about a year now and I'm getting dizzy quite often lately and my vision is worse. I fear my tumor has grown and need to see my endocrinologist again. God bless all"

• Kristin
• Taken for 10 years or more
• January 22, 2019

"I was diagnosed with a microadenoma 35 years ago. I’ve been taking 2.5mg/wk for my whole adult life. I have felt every negative side effect associated with taking this for years. I recently found a new Endocrinologist who order a new MRI. My last was about 8 years ago. Previous Drs usually monitored my adenoma by checking my prolactin levels. To my shock the MRI came back clean, no tumor present. My new Endo says he needs to slowly wean me off Dostinex now. I’m terrified of the side effect syndrome associated with this drug. I’m also on a low dose of Lexapro 5mg that I’ve tried to wean off of and thought I was going to come apart from the horrible side effects. Has anyone else been through anything like this?"

• Keyst...
• Taken for 1 to 2 years
• February 25, 2021

"Have been on Cabergoline .5 for over a year, male, late 50's. After being diagnosed with a macro adenoma 1.6 cm now is shrunk to 8mm. My prolactin levels less than normal and have been since almost start if treatment. Before treatment had no sex drive and was overweight. Now sex drive is through the roof, constant erections and vivid sexual dreams. Up side is tumour is reduced and I've lost 2 stone and a lot of fat around my middle. But get quite low in mood at times. They want to reduce dose, which might be better."

• Mcano
• Taken for less than 1 month
• July 16, 2018

"I have this bad headache and abnormal period. I went to OB for check up then she requested my prolactin and LH to be tested. My prolactin was 1154 last June 20 and now after 4 tablets of carbegoline it went down to 5.82.. thanks"

• carro...
• February 23, 2020

"Husbands had 'bulky' pituitary, prolactin level 29,000, taking dostinex since Oct 2019. Had virtual reality dreams, high sexual urges, erections at most inconvenient times. Sees me as girlfriend, married 45 yrs. Was caught on senior dating website last year, as I was not able or wanting to satisfy his sudden urges (which I did not even know he had, until it all came out suddenly). Had a lot of rows over it, no explicit warnings from Docs highlighting these extreme side effects. He wants me to change hair, makeup, buying sexual toys, underwear for me. Doc at hospital now halved his dose to half tablet a week BUT he's still taking the same dose. I can't make him change it. Been a real pain for me, I've wanted to move out a few times. Plus side: Prolactin now 300, pituitary shrunk down. Really reacted well to treatment."

• Have...
• Taken for 1 to 6 months
• October 25, 2021

"Was diagnosed with prolactinoma earlier in year after months of missed periods. MRI showed clear but SST gave a biochemical finding. After months of feeling blue, crying all the time, putting on weight (A LOT) and enormous boobs, being moody, exhausted all the time and having short but intense headaches. After four weeks of half a pill twice a week, I can honestly say I feel just like my old self and period returned, boobs went to nearly normal size, weight shifting and the energy level is back to nearly normal. It took a couple of weeks for the nausea to go away but it does and had no other side effects. I take before bed with a snack and it seems to stop the nausea.."

• Herwife
• Taken for 1 to 6 months
• January 12, 2019

"After years of being told I should loose weight for my pain and excessive bleeding, and lactating. Then the tumor was found. I have been on caberogline for 6 months. I was diagnosed with a macroadnoma. I was prescribed 1/2 tablet twice a week. Now I take .5 tablet once a week. I approached my endocrinologist with my symptoms of nausea, headaches, mood swings, confusion and complaint of extreme heavy bleeding and the solution was birth control. The medicine is shrinking my tumor but the side effects are leaving me in a horrible situation..."

• lif
• Taken for 1 to 6 months
• February 6, 2018

"I was on this for 3 months. I went off it because it made me feel like I had a low level flu and was always tired. The withdrawal I had from being on this drug has been horrible! Panic attacks, mood swings, highs and lows, nausea, sleep disturbances. Its called dopamine antagonist withdrawal syndrome. I've read since people go back on it because of how bad the symptoms of withdrawal are, and how long it stays. I've been off it for 3 months now and I am still having side effects from coming off of it. It lowered my prolactin levels into normal ranges within a month of being on it, and its easy to use. I was on 0.5mg once a week. I will not go back on this medication due to how it effected my mental health."

• Adimaan
• November 8, 2016

Dostinex (cabergoline) "Before I was using parlodel which is the same medicine for reducing prolactin. My prolactin is 49 and facing irregular periods. Previously I faced horrible side effects but with dostinex I am very happy no side effects just feel sleepy some time."

• Dolly
• June 19, 2017

"I am on week 9 pf 0.5 mg once/week for two micro-prolactinomas on my pituitary gland. I will have labs done at week 12 to see if my prolactin level has decreased. This condition and/or medication has given me side effects that absolutely challenge me and affect my quality of life. EXTREME fatigue, hair loss, excruciating head aches, depression, nausea/vomiting, menstrual (like) cramps, bloating, excessive urination (up every 90 mins all night) dizziness, vision loss, etc. It has been extremely difficult to go to work & function well ."

• Sheyi
• Taken for 1 to 6 months
• March 17, 2022

"I was diagnosed with hyperprolactinemia in November 2021, my level was 83.4ng,very high... I started using cabergoline in Januar. I used synergo cabergoline In January and dostinex cabergoline in February. I just went to retest and it has dropped down to 0.8ng(now very low) from 83.4ng in just 2 months of treatment...cabergoline is very effective"

• Anonymous
• September 16, 2011

"It did alleviate the uncomfortable symptoms of hyperprolactinemia; however, side effects were quite negative and possibly dangerous for me. I'm petite and despite a very small dose taken bi-weekly, the side effects were strong. The morning after taking a dose it was difficult to wake up and I slept through alarms on many occasions. My blood pressure also dropped to very low levels and I had to be cautious when standing up to avoid passing out. My prolactin levels are always elevated, but I only experience symptoms every 3 months for a week or 2 when I cycle to the off-week of my estrogen-replacement birth control pills. My doctor and I decided that the constant side-effects were worse than the occasional, though uncomfortable, symptoms for me."

• nkl
• Taken for 5 to 10 years
• August 9, 2016

"It has reduced my prolactin levels effectively, and it increases testosterone to some extent. The side effects are loss of motivation, and finding mental exertion more tiring, which can be a real problem at work. The side effects seem to be dose dependant so I break the pills into quarters or eighths and take them more often to eliminate the peaks after dosing. I've also been able to reduce the dose whilst still keeping the prolactin levels in the middle of the normal range, which has also helped with side effects."

• pat
• Taken for less than 1 month
• September 2, 2020

Dostinex (cabergoline) "i just started dostinex , it is my second week and the side effects are headaches and dizziness, I feel sick as ever, I did not get sleep, it is better to take it with meal at night to get less side effects. My prolactin was 77.4 waiting for next week to see if it decreases . I used parlodel 5 years ago but I stopped because of side effects and it has not decrease my prolactin, .So far dostinex is better"

• viva
• Taken for 1 to 6 months
• August 2, 2021

"i was diagonosed with PCOS and a high prolactinomia of 36.5ng. My fertility doctor placed me on cabergoline , metformin and ovofolic. I have taken 2 tablets per week of cabergoline for 8 weeks, test was re-run, and prolactin level is now normal. But have to continue the metformin and ovofolic due to the pcos. Its best to take the cabergoline at night before bed time to reduce the side effects. I am hopeful I test positive as soon as possible as I have been TTC for 2 years before I started treatment in June 5th, 2021."