Belimumab for Lupus User Reviews (Page 3)

• cin...
• Taken for 1 to 6 months
• December 8, 2023

Belimumab "I have been getting infusions of Benlysta for about 6 months. I haven't seen any difference in my lupus symptoms, except less severe rashes on my arms. I just contacted my Rheum. because I haven't started any other new drugs, but I have been having weird dreams consistently & exhaustion from lack of good night's sleep. He recommended I skip the next infusion for now."

• App...
• March 19, 2021

Belimumab "I was taking Benlysta for three years. I started with the infusion for about a year. Then I was put on the injection once a week. It does burn a lot the first 6 treatments, but then it eased up a lot. But about 7 months in taking the injectable Benlysta, my legs started to feel very weak and heavy. I told my rheumatologist. She told me to stop it for a few weeks. But I started back on Benlysta. I changed my rheumatologist and stopped taking the drug. But the leg weakness never left. My legs hurt all the time."

• ABe...
• Taken for 6 months to 1 year
• November 11, 2021

Belimumab "Benlysta has completely changed my life. It’s been almost a year of treatments, and my quality of life is so much better than before. Initially, I was really scared to start the infusions, and I was very nervous about side effects. I still get fatigue, headache, and a bit of nausea for 2 days after my infusions now, but it’s so worth it in exchange for everything I’m able to do with ease now."

• Sha...
• Taken for 1 to 6 months
• June 30, 2025

Belimumab "I have spent 10 years from one doctor to another. Finally, I got a rheumatologist who is experienced with lupus at Marietta Memorial in Athens named Melissa Burris. I had nasty lesions all over my face and arms. She suggested I try Benlysta. Thank God, because after only 3 infusions, my skin is amazing. Now I find myself staring in the mirror a lot, admiring how smooth and nice my skin is. I no longer feel embarrassed to go out, and I feel so much better about myself."

• She...
• Taken for 1 to 6 months
• December 4, 2023

"It eventually gives me increased daytime energy, for which I am grateful, but simultaneously causes insomnia that I haven't been able to defeat despite trying many sleep aids. It is also giving me unusual nightmares, and I'm definitely gaining weight despite eating less than usual. I believe I've ruled out other factors that could be contributing to the weight increase and should point out that I'm in that 50-59 age bracket that showed weight gain in a clinical trial. Having gone off for 2 weeks and restarting, I'm confident that it is also the reason for an increase in my autoinflammatory disease. Most concerning is I'm crying sporadically, and it's difficult to control. This went away during my break from Benlysta. Unfortunately, the side effects are outweighing the benefits so far."

• But...
• Taken for less than 1 month
• August 29, 2021

"I have SLE lupus and Sjögren's syndrome and OA. Diagnosed in 2020, 15 years of living in pain no one seemed to know what it was. Was told from depression/stress to just old age. I’m 49! I took hydroxychloroquine, methotrexate, and felt like a guinea pig, neither of them worked, made me WORSE! So my new RA doctor said let’s try the autoinjector Benlysta. I took it last night in my belly, and I feel like I’m 30 again. I feel fabulous. One injection! I had a little spine back pain last night after the injection and it did make me groggy, took it that night for that reason. I only drink water, so I was already hydrated. But today, no inflammation, no muscle spasm, little to no joint pain, and energy which I haven’t had in 15 years. They say days 2 and 3 are worse or later on injections, but taking it day by day! First time autoinjector, this is what I did with little pain. Ice the area for 5 minutes or more till numb, wash hands, clean area, do not pull skin taut or pinch, inject, after injection place ice pack. BOOM!"

• Dan...
• June 8, 2015

Belimumab "Infusion #2, and my joint pain and swelling went down almost immediately. I think I have finally, FINALLY found the answer for me!"

• PaG...
• June 29, 2014

Belimumab "I have had incredible results, but at week three I came down hard, the good effect did not last the entire four weeks."

• Gr8...
• Taken for 1 to 2 years
• October 26, 2013

Belimumab "This medication has been a lifesaver for me. Even though I do have some very minor side effects, I wouldn't dare think of changing it!"

• ilt...
• Taken for 2 to 5 years
• April 25, 2023

Belimumab "Benlysta has been a lifesaver for me. It did take some time for the medication to start working, but after a year of being on it, I felt better than I had in years."

• Smi...
• Taken for 1 to 2 years
• May 17, 2018

Belimumab "I’ve been back on Benlysta for the past 2 years this go around. Lately, I don’t feel the treatment is working anymore. I experienced increased shortness of breath, leg pain, and headaches."

• Dma...
• Taken for less than 1 month
• April 9, 2018

Belimumab "Exhaustion, bone pain, spine pain, ocular migraines, vertigo, potassium depletion, chest pain, heart problems, bone damage, memory problems, nystagmus, can't sleep due to pain, fevers, GI problems."

• RKG...
• Taken for 1 to 2 years
• March 25, 2025

Belimumab "I have only one issue, a stuffy nose. I receive Benlysta every month with no other issues."

• Arc...
• Taken for 1 to 2 years
• January 31, 2025

Belimumab "Had been taking Enbrel, then Humira with little to no results. Switched to Benlysta. It was life-changing!"

• Dug...
• Taken for 1 to 2 years
• October 3, 2024

Belimumab "Drug seems to make me tired. I don’t have any energy, a lot of leg pains, just don’t feel like doing anything, kind of depressing actually."

• Nad...
• Taken for 1 to 2 years
• March 16, 2024

Belimumab "I love it. Benlysta has changed my life for the better."