Benlysta for Lupus User Reviews (Page 3)
Reviews for Benlysta
- App...
- March 19, 2021
"I was taking Benlysta for three years. I started with the infusion for about a year. Then I was put on the injection once a week. It does burn a lot the first 6 treatments, but then it eased up a lot. But about 7 months in taking the injectable Benlysta, my legs started to feel very weak and heavy. I told my rheumatologist. She told me to stop it for a few weeks. But I started back on Benlysta. I changed my rheumatologist and stopped taking the drug. But the leg weakness never left. My legs hurt all the time."
- ABe...
- Taken for 6 months to 1 year
- November 11, 2021
"Benlysta has completely changed my life. It’s been almost a year of treatments, and my quality of life is so much better than before. Initially, I was really scared to start the infusions, and I was very nervous about side effects. I still get fatigue, headache, and a bit of nausea for 2 days after my infusions now, but it’s so worth it in exchange for everything I’m able to do with ease now."
Frequently asked questions
- What is the difference between Benlysta and Saphnelo?
- What's the difference between Lupkynis and Benlysta?
- Does Benlysta cause weight gain?
- Where do you inject Benlysta?
- Sha...
- Taken for 1 to 6 months
- June 30, 2025
"I have spent 10 years from one doctor to another. Finally, I got a rheumatologist who is experienced with lupus at Marietta Memorial in Athens named Melissa Burris. I had nasty lesions all over my face and arms. She suggested I try Benlysta. Thank God, because after only 3 infusions, my skin is amazing. Now I find myself staring in the mirror a lot, admiring how smooth and nice my skin is. I no longer feel embarrassed to go out, and I feel so much better about myself."
- Dan...
- June 8, 2015
"Infusion #2, and my joint pain and swelling went down almost immediately. I think I have finally, FINALLY found the answer for me!"
- PaG...
- June 29, 2014
"I have had incredible results, but at week three I came down hard, the good effect did not last the entire four weeks."
- Gr8...
- Taken for 1 to 2 years
- October 26, 2013
"This medication has been a lifesaver for me. Even though I do have some very minor side effects, I wouldn't dare think of changing it!"
More FAQ
- Can Benlysta cause an allergic reaction?
- How does Benlysta help lupus?
- How long does a Benlysta infusion take?
- Does Benlysta cause hair loss?
- ilt...
- Taken for 2 to 5 years
- April 25, 2023
"Benlysta has been a lifesaver for me. It did take some time for the medication to start working, but after a year of being on it, I felt better than I had in years."
- Smi...
- Taken for 1 to 2 years
- May 17, 2018
"I’ve been back on Benlysta for the past 2 years this go around. Lately, I don’t feel the treatment is working anymore. I experienced increased shortness of breath, leg pain, and headaches."
- Dma...
- Taken for less than 1 month
- April 9, 2018
"Exhaustion, bone pain, spine pain, ocular migraines, vertigo, potassium depletion, chest pain, heart problems, bone damage, memory problems, nystagmus, can't sleep due to pain, fevers, GI problems."
- RKG...
- Taken for 1 to 2 years
- March 25, 2025
"I have only one issue, a stuffy nose. I receive Benlysta every month with no other issues."
- Arc...
- Taken for 1 to 2 years
- January 31, 2025
"Had been taking Enbrel, then Humira with little to no results. Switched to Benlysta. It was life-changing!"
- Dug...
- Taken for 1 to 2 years
- October 3, 2024
"Drug seems to make me tired. I don’t have any energy, a lot of leg pains, just don’t feel like doing anything, kind of depressing actually."
- Nad...
- Taken for 1 to 2 years
- March 16, 2024
"I love it. Benlysta has changed my life for the better."
See also:
More about Benlysta (belimumab)
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"I have been getting infusions of Benlysta for about 6 months. I haven't seen any difference in my lupus symptoms, except less severe rashes on my arms. I just contacted my Rheum. because I haven't started any other new drugs, but I have been having weird dreams consistently & exhaustion from lack of good night's sleep. He recommended I skip the next infusion for now."