Benlysta for Lupus User Reviews (Page 3)
Reviews for Benlysta
- Den...
- Taken for 5 to 10 years
- May 25, 2024
"Since taking this medication, I have not had any flare-ups nor rashes. My fingertips are no longer subject to pain from cold water (I am now able to wash veggies in cold water without pain). Hair loss has been minimized. Chest no longer hurts with deep breaths. Episodes of fatigue issues are almost nonexistent. With the exception of the weekly injection (and additional medication), I am now able to live a mostly normal life."
- Dan...
- June 8, 2015
"Infusion #2, and my joint pain and swelling went down almost immediately. I think I have finally, FINALLY found the answer for me!"
Frequently asked questions
- What is the difference between Benlysta and Saphnelo?
- What's the difference between Lupkynis and Benlysta?
- Does Benlysta cause weight gain?
- Where do you inject Benlysta?
- PaG...
- June 29, 2014
"I have had incredible results, but at week three I came down hard, the good effect did not last the entire four weeks."
- Gr8...
- Taken for 1 to 2 years
- October 26, 2013
"This medication has been a lifesaver for me. Even though I do have some very minor side effects, I wouldn't dare think of changing it!"
Are you taking this medicine?
Your review helps others make informed decisions.- ilt...
- Taken for 2 to 5 years
- April 25, 2023
"Benlysta has been a lifesaver for me. It did take some time for the medication to start working, but after a year of being on it, I felt better than I had in years."
- Smi...
- Taken for 1 to 2 years
- May 17, 2018
"I’ve been back on Benlysta for the past 2 years this go around. Lately, I don’t feel the treatment is working anymore. I experienced increased shortness of breath, leg pain, and headaches."
More FAQ
- How long does it take for Benlysta injections to work?
- Can Benlysta cause an allergic reaction?
- How does Benlysta help lupus?
- How long does a Benlysta infusion take?
- Dma...
- Taken for less than 1 month
- April 9, 2018
"Exhaustion, bone pain, spine pain, ocular migraines, vertigo, potassium depletion, chest pain, heart problems, bone damage, memory problems, nystagmus, can't sleep due to pain, fevers, GI problems."
- Nad...
- Taken for 1 to 2 years
- March 16, 2024
"I love it. Benlysta has changed my life for the better."
- Arc...
- Taken for 1 to 2 years
- January 31, 2025
"Had been taking Enbrel, then Humira with little to no results. Switched to Benlysta. It was life-changing!"
- RKG...
- Taken for 1 to 2 years
- March 25, 2025
"I have only one issue, a stuffy nose. I receive Benlysta every month with no other issues."
- Dug...
- Taken for 1 to 2 years
- October 3, 2024
"Drug seems to make me tired. I don’t have any energy, a lot of leg pains, just don’t feel like doing anything, kind of depressing actually."
Are you taking this medicine?
Your review helps others make informed decisions.More about Benlysta (belimumab)
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"I've had SLE for 33 years. After I reached my mid-60s, the flares became worse and I was barely getting out of bed to use my bedside commode. I began seeing a new rheumatologist. He tried methotrexate, plaquenil, Ivig infusions, about everything. He put me on Actemra and I had an allergic reaction. Then he put me on Benlysta. I thought, 'Here we go again!' But it worked! I've been taking the subcutaneous injections for a little over 2 years. My life has done a 180. I'm up, active, happy, and have as much energy as a 70-year-old, wheelchair-bound woman can have. The injections sting a little, but I inject the medication very slowly with pauses in between pushing the plunger. It seems to help a lot. And it's a SMALL discomfort compared to the pain, fever, and profound fatigue that I would have without it."