Benlysta for Lupus User Reviews (Page 3)
Reviews for Benlysta
- ABe...
- Taken for 6 months to 1 year
- November 11, 2021
"Benlysta has completely changed my life. It’s been almost a year of treatments, and my quality of life is so much better than before. Initially, I was really scared to start the infusions, and I was very nervous about side effects. I still get fatigue, headache, and a bit of nausea for 2 days after my infusions now, but it’s so worth it in exchange for everything I’m able to do with ease now."
- Gol...
- Taken for 1 to 6 months
- June 18, 2025
"Been on the injections for 6 weeks. I have had blisters forming on my scalp, body aches, pain on the left side of my head... eye, cheekbone, ear, and lymph node, irritability, depression, and severe fatigue."
Frequently asked questions
- What is the difference between Benlysta and Saphnelo?
- What's the difference between Lupkynis and Benlysta?
- Does Benlysta cause weight gain?
- Where do you inject Benlysta?
- Dan...
- June 8, 2015
"Infusion #2, and my joint pain and swelling went down almost immediately. I think I have finally, FINALLY found the answer for me!"
- PaG...
- June 29, 2014
"I have had incredible results, but at week three I came down hard, the good effect did not last the entire four weeks."
Are you taking this medicine?
Your review helps others make informed decisions.- Gr8...
- Taken for 1 to 2 years
- October 26, 2013
"This medication has been a lifesaver for me. Even though I do have some very minor side effects, I wouldn't dare think of changing it!"
- ilt...
- Taken for 2 to 5 years
- April 25, 2023
"Benlysta has been a lifesaver for me. It did take some time for the medication to start working, but after a year of being on it, I felt better than I had in years."
More FAQ
- How long does it take for Benlysta injections to work?
- Can Benlysta cause an allergic reaction?
- How does Benlysta help lupus?
- How long does a Benlysta infusion take?
- Smi...
- Taken for 1 to 2 years
- May 17, 2018
"I’ve been back on Benlysta for the past 2 years this go around. Lately, I don’t feel the treatment is working anymore. I experienced increased shortness of breath, leg pain, and headaches."
- RKG...
- Taken for 1 to 2 years
- March 25, 2025
"I have only one issue, a stuffy nose. I receive Benlysta every month with no other issues."
- Dma...
- Taken for less than 1 month
- April 9, 2018
"Exhaustion, bone pain, spine pain, ocular migraines, vertigo, potassium depletion, chest pain, heart problems, bone damage, memory problems, nystagmus, can't sleep due to pain, fevers, GI problems."
- Arc...
- Taken for 1 to 2 years
- January 31, 2025
"Had been taking Enbrel, then Humira with little to no results. Switched to Benlysta. It was life-changing!"
- Dug...
- Taken for 1 to 2 years
- October 3, 2024
"Drug seems to make me tired. I don’t have any energy, a lot of leg pains, just don’t feel like doing anything, kind of depressing actually."
- Nad...
- Taken for 1 to 2 years
- March 16, 2024
"I love it. Benlysta has changed my life for the better."
See also:
Lupkynis
Lupkynis is used to treat active lupus nephritis in adults with SLE. Lupkynis for lupus is a ...
Saphnelo
Saphnelo is used for moderate to severe SLE (lupus) for adults who are also receiving other lupus ...
Afinitor
Afinitor prevents the growth of cancer cells and is used to treat advanced kidney cancer. Learn ...
Afinitor Disperz
Afinitor Disperz is used for subependymal giant cell astrocytoma, tuberous sclerosis complex
Arava
Arava (leflunomide) is used to treat the symptoms of rheumatoid arthritis and help reduce joint ...
Arzerra
Arzerra is used to treat chronic lymphocytic leukemia (CLL), usually in combination with other ...
Aubagio
Aubagio (teriflunomide) is used to reduce flare-ups in people with relapsing multiple sclerosis ...
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Your review helps others make informed decisions.More about Benlysta (belimumab)
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"Since taking this medication, I have not had any flare-ups nor rashes. My fingertips are no longer subject to pain from cold water (I am now able to wash veggies in cold water without pain). Hair loss has been minimized. Chest no longer hurts with deep breaths. Episodes of fatigue issues are almost nonexistent. With the exception of the weekly injection (and additional medication), I am now able to live a mostly normal life."