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Benlysta for Lupus User Reviews (Page 3)

Reviews for Benlysta

Commonly mentioned side effects
  • Den...
  • Taken for 5 to 10 years
  • May 25, 2024

"Since taking this medication, I have not had any flare-ups nor rashes. My fingertips are no longer subject to pain from cold water (I am now able to wash veggies in cold water without pain). Hair loss has been minimized. Chest no longer hurts with deep breaths. Episodes of fatigue issues are almost nonexistent. With the exception of the weekly injection (and additional medication), I am now able to live a mostly normal life."

10 / 10
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  • ABe...
  • Taken for 6 months to 1 year
  • November 11, 2021

"Benlysta has completely changed my life. It’s been almost a year of treatments, and my quality of life is so much better than before. Initially, I was really scared to start the infusions, and I was very nervous about side effects. I still get fatigue, headache, and a bit of nausea for 2 days after my infusions now, but it’s so worth it in exchange for everything I’m able to do with ease now."

10 / 10
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4 Report
  • Gol...
  • Taken for 1 to 6 months
  • June 18, 2025

"Been on the injections for 6 weeks. I have had blisters forming on my scalp, body aches, pain on the left side of my head... eye, cheekbone, ear, and lymph node, irritability, depression, and severe fatigue."

3 / 10
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0 Report

Frequently asked questions

  • Dan...
  • June 8, 2015

"Infusion #2, and my joint pain and swelling went down almost immediately. I think I have finally, FINALLY found the answer for me!"

9 / 10
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47 Report
  • PaG...
  • June 29, 2014

"I have had incredible results, but at week three I came down hard, the good effect did not last the entire four weeks."

8 / 10
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39 Report

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  • Gr8...
  • Taken for 1 to 2 years
  • October 26, 2013

"This medication has been a lifesaver for me. Even though I do have some very minor side effects, I wouldn't dare think of changing it!"

9 / 10
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41 Report
  • ilt...
  • Taken for 2 to 5 years
  • April 25, 2023

"Benlysta has been a lifesaver for me. It did take some time for the medication to start working, but after a year of being on it, I felt better than I had in years."

10 / 10
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8 Report

More FAQ

  • Smi...
  • Taken for 1 to 2 years
  • May 17, 2018

"I’ve been back on Benlysta for the past 2 years this go around. Lately, I don’t feel the treatment is working anymore. I experienced increased shortness of breath, leg pain, and headaches."

8 / 10
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19 Report
  • RKG...
  • Taken for 1 to 2 years
  • March 25, 2025

"I have only one issue, a stuffy nose. I receive Benlysta every month with no other issues."

7 / 10
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1 Report
  • Dma...
  • Taken for less than 1 month
  • April 9, 2018

"Exhaustion, bone pain, spine pain, ocular migraines, vertigo, potassium depletion, chest pain, heart problems, bone damage, memory problems, nystagmus, can't sleep due to pain, fevers, GI problems."

1 / 10
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24 Report
  • Arc...
  • Taken for 1 to 2 years
  • January 31, 2025

"Had been taking Enbrel, then Humira with little to no results. Switched to Benlysta. It was life-changing!"

10 / 10
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1 Report
  • Dug...
  • Taken for 1 to 2 years
  • October 3, 2024

"Drug seems to make me tired. I don’t have any energy, a lot of leg pains, just don’t feel like doing anything, kind of depressing actually."

3 / 10
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1 Report
  • Nad...
  • Taken for 1 to 2 years
  • March 16, 2024

"I love it. Benlysta has changed my life for the better."

10 / 10
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1 Report

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Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.

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Symptoms and treatments