Belimumab User Reviews & Ratings (Page 3)

• App...
• March 19, 2021

Belimumab for Lupus "I was taking Benlysta for three years. I started with the infusion for about a year. Then I was put on the injection once a week. It does burn a lot the first 6 treatments, but then it eased up a lot. But about 7 months in taking the injectable Benlysta, my legs started to feel very weak and heavy. I told my rheumatologist. She told me to stop it for a few weeks. But I started back on Benlysta. I changed my rheumatologist and stopped taking the drug. But the leg weakness never left. My legs hurt all the time."

• Den...
• Taken for 5 to 10 years
• May 25, 2024

Belimumab for Lupus "Since taking this medication, I have not had any flare-ups nor rashes. My fingertips are no longer subject to pain from cold water (I am now able to wash veggies in cold water without pain). Hair loss has been minimized. Chest no longer hurts with deep breaths. Episodes of fatigue issues are almost nonexistent. With the exception of the weekly injection (and additional medication), I am now able to live a mostly normal life."

• ABe...
• Taken for 6 months to 1 year
• November 11, 2021

Belimumab for Lupus "Benlysta has completely changed my life. It’s been almost a year of treatments, and my quality of life is so much better than before. Initially, I was really scared to start the infusions, and I was very nervous about side effects. I still get fatigue, headache, and a bit of nausea for 2 days after my infusions now, but it’s so worth it in exchange for everything I’m able to do with ease now."

• She...
• Taken for 1 to 6 months
• December 4, 2023

For Lupus "It eventually gives me increased daytime energy, for which I am grateful, but simultaneously causes insomnia that I haven't been able to defeat despite trying many sleep aids. It is also giving me unusual nightmares, and I'm definitely gaining weight despite eating less than usual. I believe I've ruled out other factors that could be contributing to the weight increase and should point out that I'm in that 50-59 age bracket that showed weight gain in a clinical trial. Having gone off for 2 weeks and restarting, I'm confident that it is also the reason for an increase in my autoinflammatory disease. Most concerning is I'm crying sporadically, and it's difficult to control. This went away during my break from Benlysta. Unfortunately, the side effects are outweighing the benefits so far."

• tak...
• Taken for 1 to 2 years
• July 13, 2024

For Lupus Erythematosus "It has changed my life. I have SLE which affects mostly my joints, skin, and energy levels. I have been on belimumab for nearly 2 years now and I am so much more functional. My lupus facial rash resolved and hasn’t returned. My joints still hurt in the morning and after sitting still for a while, but I am not seeing swelling and redness anymore. My fingers are permanently swollen but less sore than before. Most importantly, my labs have been normal for the past year, and my energy levels are so much better. I was receiving monthly infusions but I have just switched to the home autoinjector, which makes my life easier."

• But...
• Taken for less than 1 month
• August 29, 2021

For Lupus "I have SLE lupus and Sjögren's syndrome and OA. Diagnosed in 2020, 15 years of living in pain no one seemed to know what it was. Was told from depression/stress to just old age. I’m 49! I took hydroxychloroquine, methotrexate, and felt like a guinea pig, neither of them worked, made me WORSE! So my new RA doctor said let’s try the autoinjector Benlysta. I took it last night in my belly, and I feel like I’m 30 again. I feel fabulous. One injection! I had a little spine back pain last night after the injection and it did make me groggy, took it that night for that reason. I only drink water, so I was already hydrated. But today, no inflammation, no muscle spasm, little to no joint pain, and energy which I haven’t had in 15 years. They say days 2 and 3 are worse or later on injections, but taking it day by day! First time autoinjector, this is what I did with little pain. Ice the area for 5 minutes or more till numb, wash hands, clean area, do not pull skin taut or pinch, inject, after injection place ice pack. BOOM!"

• Dan...
• June 8, 2015

Belimumab for Lupus "Infusion #2, and my joint pain and swelling went down almost immediately. I think I have finally, FINALLY found the answer for me!"

• PaG...
• June 29, 2014

Belimumab for Lupus "I have had incredible results, but at week three I came down hard, the good effect did not last the entire four weeks."

• Gr8...
• Taken for 1 to 2 years
• October 26, 2013

Belimumab for Lupus "This medication has been a lifesaver for me. Even though I do have some very minor side effects, I wouldn't dare think of changing it!"

• ilt...
• Taken for 2 to 5 years
• April 25, 2023

Belimumab for Lupus "Benlysta has been a lifesaver for me. It did take some time for the medication to start working, but after a year of being on it, I felt better than I had in years."

• RKG...
• Taken for 1 to 2 years
• March 25, 2025

Belimumab for Lupus "I have only one issue, a stuffy nose. I receive Benlysta every month with no other issues."

• Smi...
• Taken for 1 to 2 years
• May 17, 2018

Belimumab for Lupus "I’ve been back on Benlysta for the past 2 years this go around. Lately, I don’t feel the treatment is working anymore. I experienced increased shortness of breath, leg pain, and headaches."

• Dma...
• Taken for less than 1 month
• April 9, 2018

Belimumab for Lupus "Exhaustion, bone pain, spine pain, ocular migraines, vertigo, potassium depletion, chest pain, heart problems, bone damage, memory problems, nystagmus, can't sleep due to pain, fevers, GI problems."

• Arc...
• Taken for 1 to 2 years
• January 31, 2025

Belimumab for Lupus "Had been taking Enbrel, then Humira with little to no results. Switched to Benlysta. It was life-changing!"

• Dug...
• Taken for 1 to 2 years
• October 3, 2024

Belimumab for Lupus "Drug seems to make me tired. I don’t have any energy, a lot of leg pains, just don’t feel like doing anything, kind of depressing actually."

• Nad...
• Taken for 1 to 2 years
• March 16, 2024

Belimumab for Lupus "I love it. Benlysta has changed my life for the better."