Azathioprine User Reviews & Ratings (Page 2)

• Mommy...
• August 15, 2015

Imuran (azathioprine) for Lupus "At the 2 wk mark of taking imuran, I started having a terrible headache. My body started to ache. I couldn't get comfortable not matter what I did and I had trouble sleeping. I had a fever, I had chills and I sweated worse than being at the gym. My urine was golden dark yellow and my skin was pale. I was tested for the flu which was negative and my blood test results were normal (as normal as can b for a lupus patient). My dr thought I had a virus but told me to stop taking the imuran. Within a little over 24 hours, the headache started going away, the urine went back to normal color and my body was feeling better."

• No...
• November 9, 2016

Imuran (azathioprine) for Ulcerative Colitis "Have been on Imuran for 6 years and it has helped some off and on. In the beginning I went to the bathroom about 10 to 12 times in a day thus losing a lot weight which I didn't expect. Now I go about 3 to 4 times a day and I do have a flare up every now and then. Was finally weaned off of prednisone. Have gained some weight back. Overall the medication has helped though my immune system has been weakened."

• chris...
• April 29, 2019

Imuran (azathioprine) for Inflammatory Bowel Disease "Shortly after commencing Imuran at a low dose (50mg/day) I developed a severe & persistent headache and also felt very tired and listless. One week later everything got a lot worse: within 24 hours of commencing the higher dosage (100mg/day) I began to feel extremely nauseous, and about a hour later non-stop vomiting commenced. I couldn't even swallow a mouthful of water without bringing it up almost immediately. That night all the joints in my body began to swell up and become very painful. By 3am I could barely walk, and by 7am my husband had to call in emergency services: my BP had dropped to 56/40, so I was immediately taken to hospital where I was treated with copious amounts of IV fluids, anti-emetics and high doses of corticosteroids. Over the next few days I very gradually began to improve & was discharged from hospital 6 days later, but it took many weeks before I was anywhere near back to normal."

• Ebbi
• Taken for 10 years or more
• March 14, 2016

Imuran (azathioprine) for Autoimmune Hepatitis "I've been taking imuran for 18 years also prednisone Stopped prednisone 3 years ago. And started on alluropinal with Imuran For last 3 years. Have now stopped alluropinal because I've got urticaria they think it's alluropinal . This has been for 6 weeks just started it again 2 days ago and rash back very painful. Not sure what I will take with imuran now if anything. Don't understand. Also take Lipitor Zoloft I'm a diabetic also and take metforam and insulin nova rapid and lantus. Also aspirin. I'm 50 this year and it's worrying"

• Soho
• Taken for less than 1 month
• May 24, 2018

Imuran (azathioprine) for Rheumatoid Arthritis "I was put on Imuran for RA and RA-ILD ( Rheumatoid arthritis, Interstitial lung disease). As another mentioned, this drug is not widely used for RA nor is it widely accepted as a treatment for ILD caused by RA. My docs are hoping to cover both bases with one drug. So far the side effects are monstrous. Willing to go back on a 'regularly prescribed' RA med and hope for the best in the lung flare ups."

• Big...
• Taken for 2 to 5 years
• October 2, 2018

For Autoimmune Hepatitis "I was diagnosed in 2015. Prednisone until levels came under control and they added the Azathioprine to 'keep me there'. Worked great, levels always in line, made a general conversational comment about getting older- almost 60- and feeling a little 'foggy' on name recall.They took me off immediately out of concerns around memory loss. I don't know if an actual side effect or just getting older. But now struggling to find a replacement. My experience positive until recently but I think I want to give it another try and just monitor more closely. I had NO side effects from the Azathioprine other than that potential."

• Buter...
• Taken for less than 1 month
• April 20, 2017

Imuran (azathioprine) for Lupus "At the 2 week mark on imuran 50 mg tid, I developed a high temp, severe muscle aches, chilling & started coughing up green mucous, I also had severe weakness. Went to md & put on antibiotics. Called rheumy & I was taken off med. Cbc & cmp lab was normal."

• PENWE...
• April 25, 2009

Imuran (azathioprine) for Crohn's Disease, Maintenance "I have been taking 50 mg daily and have been for six months. I had a serious flare six months ago and a small bowel resection two months later. I feel that Imuran and Remicade combination is keeping me well and feeling perfectly normal. No side effects so far. I am very glad to have tapered off Prednisone and am happy with Imuran and Remicade for Crohn's maintenance."

• julie
• January 24, 2016

For Ulcerative Colitis "Been taking it for 7 months prior to this had really bad flares nothing worked. Steroids wouldn't control. Had UC for 19 years and had spread further up my colon. Was offered azathioprine. So thought why not. Best thing I have ever done, I have my life back. My regular bloods are all normal. Not taking anything else for UC. Toilet once a day. Have joint pain but that a small price to pay. Don't have to worry about being near a toilet."

• Lee
• Taken for 5 to 10 years
• September 28, 2019

For Autoimmune Hepatitis "Was on Azathioprine for 4-5 years it got my liver numbers down and kept them down. But into the 5th year I ask to try weaning off or lowering dosage, I was constantly getting sick. It seemed that I was being knocked down at least once a month from a cold or just complete fatigue. I also noticed if I went in highly public areas, stores or restaurants I would be laid up the next two days. I did good at lower dosage then stopped taking all together for almost 2 years. I sub-stained knee injuries and required pain medication until then along with lidocaine patches my numbers spiked to 300’s and quickly so I’m back on the Azathioprine. Hopefully I will be able to go off again after healing or something that won’t over suppress my immune system to point I cannot be out in public will come along."

• ThMom
• August 28, 2010

Imuran (azathioprine) for Lupus "Imuran caused a 10 day hospital stay for me. I was on it about 2 weeks, started running a fever of 104, had chills, very short of breath. I was treated for regular flu, swine flu, tested for all sorts of other breathing problems."

• j-r-p
• Taken for 5 to 10 years
• January 2, 2023

For Autoimmune Hepatitis "I have been on Azathioprine 50mg since January 2015, for the first 6 months I took Prednisone which once my numbers leveled out, they took me off. I have stayed with Azathioprine and my numbers have always been great. I had a scan in 2022 and I was still at the same level 1 when I began taking Azathioprine."

• Mel
• Taken for 1 to 6 months
• April 10, 2018

Imuran (azathioprine) for Lupus "I started on Imuran 6 weeks ago at 4 weeks I noticed an huge improvement in my hand pain and stiffness. At 6 weeks I have noticed a general overall improvement in all my joints, the pain in my knees has been reduced by 2. I can do more stairs with less pain. I also take Celebrex, Plaquenil and Methotrexate too..."

• Anony...
• Taken for 10 years or more
• March 3, 2021

For Ulcerative Colitis "I've had UC since 1999, and began taking AZA in 2004 after mediocre results from prednisone and aminosylicates. It has successfully kept me in remission going on 17 years, and I am very grateful. I've had no noticeable side effects, and am very active."

• Ayanna
• January 4, 2020

Imuran (azathioprine) for Lupus "I have been on imuran three years for SLE and it works really well for me. The side effects I had diarrhea for the first few months but it has improved. I barely get any pain and it has improved my kidney function."

• Lucky
• Taken for 1 to 6 months
• July 22, 2019

For Rheumatoid Arthritis "Started on low dose of Imuran ... 50 mg. Was breathing much better after a 3 weeks of blood tests, Dr thought it was okay to increase dose. Went to 100 mg ... couple weeks later joint and muscle pain worsened, shortness of breath, just miserable. Dr said it would take time needed 6 - 8 weeks for medication to work. Increased dose to 150 mg a week ago. I feel horrible. I have described side effects to Dr. No luck ... what to do? I'm very tempted to just stop taking this medication. I feel horrible!"

• joey
• February 20, 2012

Azasan (azathioprine) for Crohn's Disease "This pill works for me but I'm sure everyone is different. You just have to go get blood work every 3 months while on it. I been taking it for 5 years and I'm doing great, just make sure you eat a small meal before you take Azasan it can make you sick for a hour if you dont. I do recommend this pill if you have Crohn's. Ask your Doctor about it and see if it is right for you."

• Filter...
• Taken for 5 to 10 years
• November 29, 2019

For Crohn's Disease "I have been taking azathioprine for about 9 years and 5 years ago began experiencing joint pain, intense itching and hair loss. My doctor dismisses all these problems as not being related to medication. I'm starting to think that it's time to seek another opinion. Just wondering if anyone else had the same symptoms?"

• Syste...
• December 8, 2015

Imuran (azathioprine) for Lupus "Have been on it for over a year, works ok at this point, still having some fatigue and still have pain and swelling in feet and hands. Also take plaquinil so this maybe helping also. Would love to feel as good as the people on benlysta :)"

• Anonymous
• October 3, 2016

Imuran (azathioprine) for Crohn's Disease, Maintenance "I was only diagnosed in May and have been on Uceris and Imuran. Currently taken Imuran 50mg and now that I have been on it for a few month I have been getting nausea every time I take it. Zofran does not even help they are talking about doing the infusion now. Im just so tired of being sick. Did this happen to anyone else?"

• G Eagle
• Taken for 10 years or more
• December 2, 2015

Imuran (azathioprine) for Crohn's Disease, Maintenance "I was taking Imuran back in 2012 for Crohn's Disease. I switched to Remicade and was doing well until the 6th infusion when I contracted Drug Induced Lupos. After a short time with Prednisone I went back on Imuran. After 3 years I seem to be doing well (no flare-ups), etc. I do have a lot of trouble with my skin. I don't know if the Imuran has anything to do with that or not."

• sheila
• February 6, 2010

Imuran (azathioprine) for Crohn's Disease, Maintenance "I have had Crohn's disease for 19 years and have been on many different medications. I have been hospitalized 6 times, where they shut down the colon to leave it to rest (no surgeries). I have taken Imuran for 7 years and until last month have only had 4 flareups to account for, my doctors put me on a steroid (not something that you want to take a lot of). For me this is usually about a 2-3 month process. Unfortunately, my thyroid has gone from hypo to hyper and my Crohn's disease and blood pressure is out of control. So my doctors have suggested I try Remicade...I have just had my second infusion, still taking Imuran, and 30mg of steroid, hoping to see some results soon."

• Anonymous
• January 8, 2010

Imuran (azathioprine) for Crohn's Disease, Maintenance "I was prescriped Imuran but had to come off it within 2 weeks due to acute depression and complete loss of appetite! But some medicines work better on other people, I think you have to find the right one for you!"

• Kano
• Taken for 2 to 5 years
• September 21, 2018

For Crohn's Disease "Azathioprine was given to me for my Crohns Colitis after Pentasa failed to do the job at all. At first it was horrible. Lack of energy and severe nausea after taking it. This led me to become pretty depressed and the DR was going to take me off of it because my blood work wasn't showing up good. However after 2-3 months the side effects went away and I haven't had a problem with Crohn's at all for about 4 years! Please give this medicine a shot even if you feel awful. It will hopefully pass and you will get relief like I did. I'd give it a 10 if it wasn't for the side effects and blood tests you'll need to take for the rest of your time on it. Oh heres a tip that helped me too: If you get bad nausea then try taking it with a mouthful of food. Mix it in with the food in your mouth. That helped me not get as sick."

• scotto
• Taken for 5 to 10 years
• March 28, 2015

Imuran (azathioprine) for Crohn's Disease "I've been on Imuran for about 9 years now. After trying the medicine Pentasa where I was taking 4000mg day and it still didn't control my flare ups. This medicine has it side effects too but I haven't experienced many other than pain in my joints recently, which is good since I've been taking Imuran for 9 years!"