New Podcast in Patient Perspectives Series: Searching for a Cure
LA JOLLA, Calif.--(BUSINESS WIRE)--Jul 10, 2009 - California Healthcare Institute:
|Debra Miller, president and founder, Cure Duchenne|
|Patient Perspectives Podcast Series: Searching for a Cure|
|Friday, July 10, 2009|
Patient Perspectives Podcast Series
|CHI-California Healthcare Institute,
The Burrill Report and the Children's Rare Disease Network
released the latest episode of the Patient Perspectives Podcast
Series: Searching for a Cure. Debra Miller, president and founder
of Cure Duchenne, speaks about her son's journey through treatment
after being diagnosed with Duchenne Muscular Dystrophy (DMD) and
how his experiences inspired her husband, Paul, and her to start
Cure Duchenne. DMD primarily affects young boys and causes
progressive muscle loss; it is the leading genetic killer of
children and most patients do not live past their teen years. As
Miller and her husband explored treatment options and sought
support, they found that existing patient advocacy organizations
were often focused on palliative care and focused on academic
research rather than working with industry to find a cure. In this
episode of the Patient Perspectives Podcast Series, Miller speaks
about new approaches to treating DMD and the problems of funding
cutting-edge research in search of a cure.
CHI's Patient Perspectives Podcast Series
CHI's Patient Perspectives Podcast Series examines patient experiences throughout the healthcare continuum, and touches on topics ranging from access to information and care, to breakthrough research improving quality of life, to solutions to the problems of rising healthcare costs and bureaucracy. CHI's podcasts increase awareness about the life-saving, world-class research being done in California.
About California Healthcare Institute
CHI represents more than 250 leading biotechnology, medical device, diagnostics, and pharmaceutical companies, and public and private academic biomedical research organizations. CHI's mission is to advance responsible public policies that foster medical innovation and promote scientific discovery. CHI's Web site is www.chi.org.
About The Burrill Report
The Burrill Report provides actionable market intelligence on the latest global developments and trends in the life sciences industry. Available bi-monthly, subscribers also benefit from monthly market updates and financial and business statistics provided in a special premium area on The Burrill Report Web site, www.burrillreport.com.
About the Children's Rare Disease Network
The Children's Rare Disease Network is an online community that provides children with rare diseases, their families, and the organizations that support them with the opportunity to communicate, collaborate, become educated and tap existing resources, to helping them with their daily challenges. Visit www.theprojectcharity.org.
Nicole Beckstrand, (858) 456-8881
The Burrill Report
Peter Winter, (415) 200-8163
The Children's Rare Disease Network
Nicole Boice, (949) 305-8656
Posted: July 2009