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Congenital Heart Disease

WHAT YOU NEED TO KNOW:

Congenital heart disease (CHD) is a term used to describe defects in the structure of the heart. It may also be called congenital heart defect. Congenital means you were born with the heart defect. The defect may include a hole in part of the heart or narrowing of arteries connected to the heart. Blood may not be able to flow to your heart correctly, or it may not flow through your heart correctly. The defect may be mild or severe. You might be having symptoms for the first time as an adult. You might be having symptoms even if you had a heart defect repaired as a child. A congenital heart defect should be monitored regularly, even if you do not have problems.

WHILE YOU ARE HERE:

Informed consent

is a legal document that explains the tests, treatments, or procedures that you may need. Informed consent means you understand what will be done and can make decisions about what you want. You give your permission when you sign the consent form. You can have someone sign this form for you if you are not able to sign it. You have the right to understand your medical care in words you know. Before you sign the consent form, understand the risks and benefits of what will be done. Make sure all your questions are answered.

Medicines:

  • Heart medicines may be used to help your heart beat more regularly.
  • Blood thinners may be given to prevent blood clots. This medicine increases your risk for bleeding and bruising.
  • Diuretics may be given to help flush extra fluid from your body. This medicine may make you urinate more often.

Tests:

  • Blood tests measure the amount of oxygen in your blood. A heart defect can lower your blood oxygen level.
  • X-ray, CT, or MRI pictures may show the size and shape of your heart. You may be given contrast liquid to help your heart show up better in the pictures. Tell the healthcare provider if you have ever had an allergic reaction to contrast liquid. Do not enter the MRI room with anything metal. Metal can cause serious injury. Tell the healthcare provider if you have any metal in or on your body.
  • A Doppler ultrasound checks the blood flow in your heart. A small metal disc with gel is placed on your chest. The disc helps your healthcare provider hear the blood flow.
  • An EKG records your heart rhythm and how fast your heart beats. It is used to check for heart enlargement and other problems with blood flow.
  • A stress test helps your healthcare provider see how well your heart works when it is under stress. Your heart function may be tested while you walk on a treadmill or ride a stationary bicycle. Medicine may be used instead to put your heart under stress.
  • Transesophageal echocardiogram (TEE) is a type of ultrasound that shows pictures of the size and shape of your heart. It also looks at how your heart moves when it is beating. You may need a TEE if your heart does not show up very well in a regular echocardiogram. You may also need a TEE to check for certain problems such as blood clots or infection inside the heart. A tube is placed in your mouth and moved down into your esophagus. The tube has a small ultrasound sensor on the end. Your heart appears clearly on the monitor because your esophagus is right next to it.
  • Cardiac catheterization is used to show the blood vessels in your heart. A catheter is threaded into your heart through a blood vessel in your arm, leg, or neck. Contrast liquid is injected into an artery. Then x-rays of your blood flow are taken. Tell the healthcare provider if you have ever had an allergic reaction to contrast liquid.

Monitoring:

  • A heart monitor is also called an EKG. Sticky pads placed on your skin record the electrical activity of your heart.
  • A pulse oximeter is a device that measures the amount of oxygen in your blood. A cord with a clip or sticky strip is placed on your foot, toe, hand, finger, or earlobe. The other end of the cord is hooked to a machine. Never turn the pulse oximeter or alarm off. An alarm will sound if your oxygen level is low or cannot be read.

Treatment:

  • An implantable device can help your heart beat normally. A pacemaker can control your heart beat. An implantable cardioverter-defibrillator (ICD) can make your heart beat in a regular rhythm.
  • A catheter procedure may be used to repair a defect. You might have had a defect repaired when you were a child, and it might need to be repaired again. A catheter is a long, thin tube. Your healthcare provider will move the catheter through a vein or artery until it is near the defect. To widen a narrowed area, he may inflate a small balloon device attached to the catheter. This will widen a narrowed valve in the heart.
  • Open heart surgery may be needed to repair the defect if a catheter procedure cannot be done. You may need surgery to have a heart valve repaired or replaced. Surgery can also help repair problems from blood vessels that did not form correctly. A heart transplant may be used if the defect is severe and other treatments do not work. You may need more surgery over time.

RISKS:

Your risk for an abnormal heart rhythm is increased. You may develop endocarditis (infection in the lining of the heart) or heart failure. You may also develop pulmonary hypertension or have heart valve problems. Your risk for stroke is increased if blood cannot flow correctly to your brain.

CARE AGREEMENT:

You have the right to help plan your care. Learn about your health condition and how it may be treated. Discuss treatment options with your caregivers to decide what care you want to receive. You always have the right to refuse treatment.

© 2016 Truven Health Analytics Inc. Information is for End User's use only and may not be sold, redistributed or otherwise used for commercial purposes. All illustrations and images included in CareNotes® are the copyrighted property of A.D.A.M., Inc. or Truven Health Analytics.

The above information is an educational aid only. It is not intended as medical advice for individual conditions or treatments. Talk to your doctor, nurse or pharmacist before following any medical regimen to see if it is safe and effective for you.

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