I found out I had this when I was very little but I didn't know what it was called at the time. When I was young it caused a lot of problems for me. It's still does just because I have problems getting refills for my doctors office but I'd like to hear from you . Just because I plan to write a book about experiences that other people might have had with this conditione
I have had DI since I have been 12 years old I am now 58. The doctors feel it may be from a virus that attacked my autoimmune system or psychological stress. It usually came from pituitary tumor. We lived in Florida for a very short time and I remember between classes going to bathroom and drinking all the time. I was first treated at St. Christopher Children's Hospital in Philadelphia ,Pa. I was first treated with a diabetic medication which worked,but caused birth defects in any children I would have. Then when I was 21 went back to St. Christopher's and the doctors started me on DDAVP have been on since 21. Has controlled the symptoms fine. You must take as prescribed since I wasn't know developing kidney issues. Which was only found by chance, when I had back pain for 2 days only, hopefully you will find the right Dr to treat. Suggest you go to endocrinology for further treatment.
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Diabetes Insipidus - yes my insurance will no longer pay for DDAVP spray and cannot go off the drug?
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