I finished chemo in December 2017 and my CA 125 is 4.7 and CT scans are clear. I am very nervous to start this drug and wonder if I should since there is no evidence of CA just now? My Dr. recommends it because recurrence rate is high. I'm so glad to find this support group.
I finished my chemo in Feb 2017 with surgery in April. My CA 125 was last tested at 7.8 and I have been put on Zejula as a maintenance med. So far, things have been great. A bit of adjusting the dosage at first to be compatible to my blood work, but seems great so far.
And welcome to the group!
Congrats on your great numbers!!! I finished chemo about a year ago, things looked good and I was put on Zejula for maintenance. The cancer came back, CA 125 rising... dr. determined Zejula wasn't strong enough -- am now back on chemo. If that works, my doctor (who ran the original Clinical trial at Stanford Woman's Cancer Center for Zejula), says he will again try Zejula. My opinion is that I would follow my dr. orders and go on Zejula for maintenance, since I have read that the reoccurrence rate for OC is high. So, in my opinion, any maintenance would be well worth the risk. When I was on Zejula (4 months), the main side effect I had was joint stiffness. I felt like I had arthritis in my shoulders and a few other joints. But nothing real severe. Best of luck to you! And yes, welcome to the group.
- Zejula Information for Consumers
- Zejula Information for Healthcare Professionals (includes dosage details)
- Side Effects of Zejula (detailed)
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Has anyone experienced increased neuropathy in your feet after taking Zejula? I also was taking 300?
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