For years I have suffered from all of these plus more. Last Oct I found what I thought was a boil or pimple on my head where 3 years earlier I had a cyst removed. So I messed with it and a suture about 1/2 in popped out! I then thought all was good and that it would heal well it didn't! I kept messing with it cleaning it etc and it wouldn't heal! This is where im not sure what happened. I started getting extreme pain in my bad hip. Things got worse and I took 4 ambulance rides to the ER and they kept sending me home. After the last er trip they decided to keep me and run tests. What happened was I had a staph. Infection that settled in my hip. They took me into surgery to clean out my infected hip. Then I was sent to a nursing home for 6 weeks for antibiotic IV treatment. I came home on Dec.1st but still wasn't able to walk or even bend my hip! The x ray of my femer bone looked like a 3 leaf clover and it was totally fused together. On June 4th I finally got a total hip replacement! Now I can walk like new! Ok, here is my new problem, my Achilles tentons on both legs keep hurting so bad that after I sleep im having problems walking. The pain jumps from heal to heal then sometimes I have no pain! I also have knee and other side hip pain and ankle pain and extream lower back pain. Im still on the same pain meds that I have been on for the last 10 yrs. I have waited 12 yrs for a new hip because of my age. Is it the FM the myo or the chronic pain, the osteoarthritis of maybe something new? My meds are 80 mg OXYCONTIN and dilaudid 4mg for break thru pain, 800 mg Motrin, and thyroid meds oh and valium 5mg. I forgot, I also have ddd and djd. ANY HELP WILL BE MUCH APPRECIATED!!
I need help from some of you who have fibromyalgia, osteoarthritis, myo pain syndrome, chronic pain?
- 5 Sep 2013 by nanimal
- 9 November 2016
- acne, osteoarthritis, pain, fibromyalgia, chronic fatigue syndrome (cfs), chronic pain, chronic, chronic myofascial pain, neuropathic pain, boil, syndrome
I think that part problem is that you have been immobile for a period of time (6 weeks in a nursing home).Additional I don’t know if the staff in the nursing home encouraged you to walk whist you were there? Once discharged you have been more active. Try reducing the amount of time that you spend sleeping. I went through many years when I could only stay in bed for a maximum of 4 hours or it would be so painful to get out of bed, like you I also had severe back pain. Are you under a specialist for FM,CMP and Osteo. It may be worth having a chat with them has you should avoid physiotherapy (in US I think it is called physical therapy), as this will make matters worse.
I'm just wondering if the massive doses of antibiotics didn't cause a problem with your achilles tendons. Some of the stronger antibiotics, like Levaquin, can do that. With all of your other chronic conditions, any one of them could be causing your pain. Do you see a pain management doctor? A PM can do epidurals, nerve ablations, acupuncture... to help with your pain, as well as pain meds. I hope you can find relief soon. Oh, also, it seems that several members here on DC have had "flares" with their fibro, neuropathy and other painful conditions during the past few months. We are from all over the world, but having the same "flares". Odd, isn't it? Hang in there!
Yes I did get your play on words when I first saw it. It along with other things that you wrote made me chuckle. Just so I understand have you had a hip replacement? Do you know what caused your Staphylococcus aureus infection? You have been through rather a lot I hope that you have help at home. FM and CMP does not cause inflammation, but as you know all too well they do cause pain. I was advised to purchase a book on FM & CMP, it arrived a few days ago, I have read lots on line but to be honest a book is better. I can recommend one to you.
Generally speaking physical therapy in contraindicated for those of us how CMP have. It will make you much worse. Your muscles cannot handle it. I was sent to physiotherapy (that’s what it is called in the UK) I could not do any of the exercises my whole body would just shake and was unresponsive to verbal commands. In the end they gave up on me but I was left weaker.
I completely understand how you feel with regards to people not understanding your health conditions and how they affects you. Unfortunately this always the case when you have what I call a hidden disability. My advice is to tell them to look it up on line. I tried explaining it didn’t do me any good. You know what your body needs, pay them no attention regarding this matter. Everyone with FM & CMP takes medication for these conditions. Further you have additional health issues.
The long-term use of pain medication may have created a tolerance, especially if you were increasing the dose after your surgery or on another opioid, which would only increase this effect more.
Physical therapy, gentle yoga or stretching, water therapy or other similar activities can be very helpful as you will safely and gradually increase bone mass and density as well as muscle strength when approached correctly. This could help by decreasing overall joint, muscle and myofascial pain (yoga, stretching and physeomechanotherapy) and your potential for injuries too.
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