Dec 31 2011 I went to er and was diagnosed with trigeminal neuralgia the pain was so intense and soo severe I laid in bed thinking it was tooth pain screaming using heating pad took gabapentin and percocets nothing worked. The er doctor gave me a shot and I calmed down went to sleep. Couple months later went to er again vomting from the pain and told the doc I wanted to shoot my head off the pain was so intense. Then realize how stupid that sounded. He gave me two shots and said to have my doc get ct and go to neurologist. In the state of as most docs don't know anything about this condition. I just need some answers im on tegretol and gabapentin. And oxycodone 15mg it doesn't help I still have sever episodes...
Have you tried Trileptal, Lyrica or Baclofen? Those were ones prescribed for me. The Trileptal worked but I had a severe side effect from it. I also cannot take Lyrica or gabapentin. The Baclofen is helping me some.
And did you take the advice of the ER doctor and go to a neurologist? You should. I just got an MRI and MRA of my head and neck to further diagnose the cause of it. You do need to see a neurologist.
I have trigeminal neuralgia and I know how difficult the pain is to cope with. I take Gabapentine (400 mg, 3x a day) + 200 mg tramadol time relased.
What helps too is acuponcture and I get regular treatments.
Meditation/relaxation can be helpful too. I know that many people don't understand this kind of pain and it is indeed frustrating, because nothing is visible. I go to a pain management clinic too. Yoga or any meditation technique can help too I have found. I meditate every day and the pain dissolves, but this is my experience only and t may be different for you.
I also use strong magnets as a pain releif tool (I learned how to do that from the acuponcture doctor). YOu can purchase therapeutic magnets in internet and I put them on at nite, but when the pain is severe, you can tape them on to the painful areas any time. Wishing you the best and especially be confident that you'll find the right way to deal with this very important health challenge.
I am so sorry for your pain. I do understand. Also, look up burning mouth syndrome. Let me know if you have any of those symptoms. That was my diagnosis from an ent, they say there is no cure for it. However, through this forum and speaking with Sara12345 and also Suzanne. Finding out the symptoms are similar. I am know trying to find a neurologist. May God bless you. I will say a special prayer for you today.
I'm glad you saw a neuro, but I would immediately start researching neuros in your area who are familiar with TN, and switch. It is a condition that needs to be managed by someone who knows about it, as there are several different treatment options from meds to surgery. An MRI should show the block that is causing the TN, so a good neuro will be able to see it. I currently take 200mg Tegretol ER on days with no pain. When I get an episode, I up the dose to whatever is needed. As I had no luck with regular Tegretol or Lyrica, this is our 3rd option. The neuro feels that if we try & stop the nerve impulses on a regular basis, this might do the trick. Now, it hasn't stopped it entirely, but at least I feel more in control! I know it's affecting my liver though, so I take herbal liver support to help.
I've seen a neurosurgeon (in California) who recommends immediate surgery; not so easy to do here in Ireland :( I have bi-monthly Reiki treatments, as well as acupuncture, which I also feel are of great benefit in keeping the episodes at bay & to a minimum. I think the main thing to do (besides getting a new neuro) is to read & research as much as you can, and to be totally in charge of your own healthcare. Best of luck to you.
- Gabapentin Information for Consumers
- Gabapentin Information for Healthcare Professionals (includes dosage details)
- Side Effects of Gabapentin (detailed)
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