Xolair - This is really not a question, more of a plea?
- 1 Apr 2012 by Alm001
- 26 Apr 2012
- xolair, allergies, chronic obstructive pulmonary disease
I am a 42 year old female, who was beautiful , had great teeth and a bright future and very active at one time (surfing, walking, running) Due to my allergies, copd from damage to my lungs because I inhaled poisonous fumes from a fire and my asthma, I have been stricken with this crazy cough that flares up every so many month. I have been hospitalized because of it. I have lost jobs because of it, gained weight from the constant steroids, lost teeth because of the heavy medications, my whole life has been turned upside down. I just hope and pray by reading all these positive post are true and pray this works for me. I just want to have some what of a normal life.
Single mother raising two young girls ...
Hello Alm001. Welcome to the site. I hope you find support and comfort here. Its Sunday, so, please don't think you are being snubbed, many of the members are church goers and it is Palm Sunday. Often, days can pass before someone responds to a or any given post. Again, welcome and enjoy the afternoon. Regards, pledge
I can sympathize with the weight gain from steroids! My story is a bit different. I have had to have steroids for low back pain but the weight gain, as a result, is the same. I have gained about 80lbs since 2004, when I first injured my back, from steroid injections of various kinds and the inactivity from the injury. I, too, have had job problems because of it. My job is usually a physical type job that requires lifting, bending and twisting which I am unable to do anymore. Lucky for me, I found a job that I CAN do and I'm able to work from home on the computer!! It has been a Godsend! I'm only 45 and some days I look at 70 y/o women who are more spry than I am and I'm jealous! My own mother can work circles around me. I understand how lifechanging illness and injury can be. Breathing problems are difficult.
I watched my own grandmother struggle with the same problems-asthma leading to COPD. She was 32 or so when she was first diagnosed and that was in the days before they knew how bad steroids could be for you so they had her on very high doses for so long that she was never able to get off of them. Any kind of chronic illness or pain is the same in that you have to make the most of the good days and just get through the bad ones! There are many of us on here who know that dance! It may be from different causes but in the end it is the same routine. There are many of us who will be here for you when you need someone to talk to and help you through those bad days! Welcome to the site. We always tell each other about this site "Take what you need and leave the rest" Like any family, we are not perfect. We have our share of squabbles and everyone has a really bad day on occasion but for the most part everyone is kind and supportive. We are always glad to have another with his or her own life experiences to help the rest of us and we will be here when you need us to help and support you! I hope to see more of you and again, welcome! Dzoo :)
Alm001, be sure you have your doctor watch your bone density if you have taken steroids over the years too as they can thin your bones badly. From one that knows... Mary
Hey Alm: I wish that I could help you, but all I can do is give you words of support. Unfortuantely many of us have been in your position and we have had to make hard decisions that would affect us for the rest of our lives. Prednisone is a major decision. Mary is right. GET YOUR BONE DENSITY checked BEFORE it is too late, like mine was. Not only did I gain a huge amount of weight, (yes I was beautiful too, and I cry when I look at old pics), but I got osteoporosis, cataracts, lost teeth, and a host of other problems as well. Wish I could have taken it back, but then, what would I have done? Be dead? I DID make the decision to apply for disability and stay home with my young children as they did NOT have a mother while I was working. I put everything i had into my work, and then came home, ignored my kids, left them with their father or grandmother, and went to bed only to start the next day. Weekends were in bed trying to get enough energy to go back to work.
See, hard decisions, but I made the best one for me.
Only you know what is best for you, but welcome to a group that understands completely what you are going through.
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