Hi there, I am new to this. I am a 47 yr old mother of 3. I have had some pain issues my whole life.I have migraines, Fibromyalgia since I was 22. degenerative disk Disease, Degenerative Joint Disease, a bad SI joint,chrondromalacia rt. patella, bursitis right side of hip and thigh, chronic pain syndrome rt side back into abdominal area going down rt. leg to me knee and foot causing numbness and tingling,osteoarthritis, osteophytosis, carpal tunnel(RT. de quervain tenosynovitis), several other problems. I have had chiropractic help done, several injections into my back near my l4-l5 area and into my SI joint also in my knee. Also use gabepentin, cyclebenzoprine, diazepam. mobic. a butrans patch,ambien, and oxycodone for break thru pain. I have had Major Depression disorder and chronic aniexty disorder and sleep apnea.. It sounds like I am a mess I know. I have tried everything out there, between pain medications, pt therapy, injections etc. They have sent me to a neurologist as well and the find nothing wrong. I do have a slight bludge in my L4-L5 area. I am seeing a Pain medicine doctor and getting no where. He isn't listening to anything I am telling him. I recently changed docs and had a very good one before this and now him. He has no idea what to do so now he is sending me to an occupational therapist on top of a physical therapist.. Can anyone help me find direction or how I can get some answers. I truly would appreciate the help!! The new doc just is taking away the small amount of pain meds that I am on for break thru pain. Plus I have told him they are no longer working as effectively as they once were and is there something else we can try. I was a working mother and loved it until they started taking away the little bit of help I had. I can no longer work due to the pain in back and hip thru my leg. Just feel helpless and hopeless. Any answers would be greatly appreciated! Thank you.!
There are many types of medications to treat its symptoms. Antidepressants, anticonvulsants, narcolepsy drugs, pain relievers, sleep aids -- when used to treat fibromyalgia symptoms, these medications alter brain chemistry to help reduce pain, improve sleep, and ease anxiety or depression. Aside from pharmaceutical treatments there are treatments including education, aerobic exercise, cognitive behavioral therapy along with many more options to treat chronic pain and Fibromylgia.
Hope this helped :)
I am sorry for all this. I am a full-time nurse, diagnosed about 5 years ago with fibromyalgia. It has changed my life.
The biggest thing I can tell you to do is find a new doctor. One that listens. If it isn't possible to go back to your previous Doctor, then shop around.
I'm blessed because my doctor listens (he was my primary before I was diagnosed so he knows me). But, as a nurse, I can tell you, there ARE good doctors that will listen and teach you what you can do and what you can try, etc... It irritates me so much when doctors talk "over" there patients and don't really listen.
The biggest problem with chronic pain is that no two people respond the same. I wish I could help you more. Just, please, don't accept this doctor just because he's a "pain" doctor.
I take venlafaxine, and gabapentin, I'd love to have a small dose of pain med but the government won't let us have them anymore. I also get shots into my trigger points in my back. They help more than anything.. I also get epidural shots in my back for my spine but that's for spinal damage.
jjpreyd; I do agree with pretty much everything here your not stuck with this doctor that is the first thing I would change, If they won't listen you have the right. And as Kaismama said I also take the venlafaxine for depression and pain and it helps alot brand name is EFFEXOR xr but they have some good studies about Antidepressants helping with chronic pain. There are also one called Lyrica a fairly new one out that works very well for pain and depression. And if they know where some of these pains are in the back I would for sure try and stick with shots after you get used to the new medications. And also for the hip pain. It is really messed up when we can't get the pain medications we need because of the new government's regulations But again the first thing to do is find a doctor that well work for you.and with you.
At this point even adjusting some dose's of medications could be of some relief such as Gabapentin it may not work well now but if they up the dose you could get more relief. It just seems cruel to put you through physical therapy etc when your body is hurting so bad as it is.Doctors are just like anyone else if you don't feel the connection with him or her than it is time to move on. And let them know you are trying to find the right kind of doctor that well help you and listen to you. There are still lots of options to deal with many of your problems its just a matter of finding a doctor that we'll work with you and not against you. Good luck and please keep us posted. Chuck1957
JJPREYD; I have heard of people seeing a Rheumatologist for Fibromyalgia have you heard of this? yes I have and if you do call the office of some just ask the office if the doctor has been known to treat people with Fibromyalgia so you don't waste your time too. But im sure you could get some answers from one also. Chuck1957
I won't repeat the good advice you've already gotten, just add some things. I have almost all your problems, so I can understand you fairly well. Here are my odds and ends that work: I get steroidal injections when they seem necessary. I take savella, an SSRI that was designed for Fibro but also happens to work for depression, too. I support my back in the lumbar area when sitting as needed. Sometimes a regular lumbar cushion is just right, other months just a couple of small hand towels are the right size. I do the physical therapy exercises that help me the most. I elevate my legs when sitting everywhere around the house. I do a lot of paperwork, business phoning and so forth and have made arrangements so that this elevation is possible in every room. (Not always pretty, but possible.)
My most successful change: I've quit the rat race and slowed down the pace I live my life. I've stopped being a perfectionist and allow some areas of the house to be messier than I like. I stay busy but I allow rest periods in between hours of tasks. I monitor myself for how hard I push myself because I have reduced my pain levels by about 80% JUST BY SLOWING DOWN MY LIFESTYLE!! It's amazing how I can control this. If I do too much the pain returns and it takes 1-2 days to get the pain back down to almost nothing. So the pain is my guide.
My SI joints haven't needed injections for about a year now, and even longer for my neck. The gabapentin is helping with my neuropathy but I am having some problems with numbness on my fingertips. I have to step up my physical therapy for my neck and that helps. I say these things so you know I have these problems and all isn't perfect but I'm out of major pain and only dealing with minor issues. I am reducing my deep tissue neuromuscular massage app't. time from 2 hrs. to 1 1/2 because I'm doing so well... meaning few painful knotted muscles or burning, tight muscles that hurt so much I could cry. This is the 1st time in over 15 years I can say this!! I's like to see you give this method a chance. God bless.
In addition to all the great info that you have been given already, just to let you know that Trazodone changed my life. Not that I don't still suffer from fibro, but before the Trazodone, I was in pain to just get dressed. I had to start off with a very low dose because it knocked me right out, but now I am taking the peak dose. But everyone is different and some people don't tolerate it well. I do wish you the best.
jjjpreyd; With all you have going on I admire your thinking and strength Please remember no matter how bad it gets I have found we need to keep our faith sense of humor and above all positive thinking. We can really do so much more damage mentally just by our attitude and how we look at things. I just wanted to mention something many years ago as what happens often they stumble on things by accident and that was with the antidepressants working for pain control. And believe it or not that was a study with Diabetics and there severe nerve pain in legs and feet. And it turned out that the old medication that helped the most was Amitriptyline or better known as Elavil one of the oldest medications around and is still used a lot today for the same reasons. So if you have never used it you might just ask about it and you may also get some sleep and with most people not all the side effects of the SSRI'S Do your best to enjoy your day and keep posting and let us know how things are going. Chuck1957 enjoy the kids.
My father is in a very close situation as you are. All I can advise is tell you the meds that help him. Lyrica is a much better treatment than gabepentin 10 fold as far as nerve damage or diseases. It blocks the necessary pain receptors for your Fibromylgia condition. He takes 4 norco 10mgs. A day for chronic pain and that makes all his pain conditions tolerable considering you can only manage pain on that scale.With Chronic pain there is no drug you can take to abolish the pain 100% in a 24 hour day unless certain drugs are abused to the point of being stoned so bad your judgement and comprehension are impaired or prescribed dose is way too much by the doctor in my opinion. All of this is just suggestion, opinion and explaining what my fathers been through. Also, I have found in my pain management and my fathers, when a narcotic pain med is over prescribed or abused it almost always causes unbearable migraines.
Once the dose was adjusted lower, the migraines stopped, so as expected, our original pain we was treated for increased but we were migraine free. Also, I've heard by taking a lot of Gabepentin causes migraines in high doses which makes lyrica a wise choice. Lyrica makes Gabepentin seem like a drug from the 1800's when you compare the two. Dad has Fibromylgia, diabetic nerve pain and is a leg amputee and suffers phantom pain but with 2 tiny lyricas within 24 hours, he said he feels 100% better than when they had him on gabepentin. I hope my reply helps and maybe you can get a few ideas from my post to tell your Doctor during your next visit. Also, I found that in order to manage pain, I had to be able to be open to the option of trying completely different drugs. There is a reason there are so many different medicine compounds whether synthetics or derivatives, everyone's chemistry is different hence the need for the variety regardless of what a lot of doctors think. My experience is most doctors are close minded and feel every patient is the same in most doctors eyes therefore the doctor is correct and the patient is wrong. I learned my lesson, got lucky and found a flexible doctor because they listen to me and are open to suggestion. Open minded doctors are key in the medical field. Like I said before, my reply is opinion and suggestion and might be completely wrong. I wish you well and good health.
It sucks, I know! I have a very similar situation to yours only I am on a LOT more medicine but let me tell you, while it helps for a while, even strong pain meds stop helping after a while then you will be in a situation where you take more and run out early and go through withdrawals so stay away from the opioids as much as you can. Your doc sounds like he is trying to be conservative with that sort of treatment to keep you from going down that road. It is worse than the pain. I wish I had a better answer for you, I really do. The best thing is to stay as active as you can when you have good days. They say exercise helps even though you and I know it is the hardest thing you can do when you hurt! I have been thinking about asking my Dr to put me on Suboxone to get me off the pain meds.
I am a bit scared because I dont know if it will help the pain much but as nothing else is plus I end up hurting worse going through withdrawals if I give in to temptation to "just take one or two more to stop pain today" and run out early at the end of the month. There is no easy answer other than learning to live with pain, I think. I know the FDA just approved buprenorphine films for pain and they are higher doses than Butrans, I believe, but if that triggers headaches that may not be an answer for you (or for me because I get headaches/migraines too) I tried Savella but it brought on some of the worst migraines and high B/P I've ever had! You just have to be open minded and try anything to see what works for you. Kaismama is right that the DEA and medical associations are trying to stop docs from giving opioids for pain which sucks because right now they are the best thing we have! Hang in there!
jjpred, your problems could have been written by my wife! She has the same exact problems & suffers from horrible pain every day of her life except the depression she does not have.That was left for me. Many know her as Mary of the many numbers. Fortunately she does get pain meds at this time, but you never know when that could change, & it also doesn't solve all her problems, & they just kept getting worse all the time. Currently she is suffering from bowels problems, & may have to have a colostomy from the scar tissue related to those failed back surgeries. Other then having 2 failed lower back surgeries over 40 years ago, her problems are basically the same as yours. Her leg pain is from the bad surgeries. Pain Medicine news came out last week with a new article about fibromyalgia, & what causes it. They now believe by a simple blood test, testing the magnesium ( not in your blood levels) can tell if you are not getting enough growth hormone.
This doctor has proven that this is what is causing fibromyalgia. Most doctors subscribe to this newsletter as it is written for pain doctors.We subscribe to it, & get weekly updates from it, & it is on face book also. Try to find that article, & show it to your pain doctor. My wife is going to at her next appointment. This doctor also states that it's the fibromyalgia that is causing so many of the related problems that you are having also. Low magnesium can cause osteoporosis, & osteoarthritis. My wife takes lots of magnesium, for her colon problems, but didn't before her diagnosis of of fibromyalgia in 1994. It has set in, & won't leave now until we find out more about the growth hormone thing. The name again, & you can Google it is Pain Medicine News. I hope this info helps you some, & know you aren't alone in your plight. Good luck to you, & all others having this & the other horrible conditions that go along with fibro.
I am 48 our story sounds similar. This all started for me about 17 years ago. I was dx with sjorgens syndrome which sent me to the rheumatologist. There I was dx with fibromyalgia... and sjorgens. Moving forward to the past few years. My health has deteriorated. I to have DDD, my whole spine is a mess, arthritis, Anklosying Spondylitis which is an issue with the SI joints and autoimmune... I also Lichen sclerosis (autoimmune) , diabetic, depression, anxiety also tachycardia. I would look further into your SI pain. I started enbrel after years of tortuous pain... Now taking Remicade infusions which I am stopping due to side effects. Both for AS. I found trigger point injections to not help. However I recently had a medial branch nerve block in my cervical spine which has helped with pain. Im shocked. Im going for my lumbar spine 1/8/16...
Praying for the same outcome! I have been to a million drs..neurologist, rheumatoid etc... Now moving on they found white lesions on my brain... Thought it was MS ... Its not probably from sjogrens or migraines. For depression I take Effexor... Im reducing the dose now trying to come off. Still get depressed and anxiety why keep taking it if it is not helping! The only thing that helps physically is zanaflex. I take that at night to sleep. I would seek a good pain management doctor. I would do research on medial branch nerve block. I have more to my story but I could go on forever. I find that all doctors want to do is give us more meds to cover up what is ailing us! If the meds we are on are not working stop them. Why keep putting poison into our body that is not helping! Then add 1 new thing at a time to see if that is helping!!! So again seek out a good pain management doctor!! I went to another one before I found my new one who seems to know what he is doing !!! Good luck! I understand your pain!!! Its very disheartening when we search for help and just keep getting new meds added to our list!! ✌
Been on everything known. I stumbled across Tramadol and helps a bit with my pain/fibro, but works on my depression incredibly... Take it and can deal with the fibro bettter. Works very much like Effexor, but within 1 hour you feel energy and a fast boost of serotonin. I take 400mg a day in 3 divided doses of 200mg and been good for 5 years on it. Also helps my Psoratic Arthritis.
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