The two epidurals have not done anything but moved the pain around. The Orthopaedic surgeon told me the vertebrae's are unstable due to the large size of the cyst. I have been fighting it since early fall of 2010. I do not want to have surgery and am wondering if anyone can help with my dilemma.
Hi, I have a large fluid filled aracnoid cyst in the L5 S1 area, & my neurosurgeon will not touch me at all. I have had two previous low back surgeries. He said to operate on this now would more than likely make me worse off, probably in a wheelchair. I need several surgeries on my neck & T spine also, but my bones are so brittle they will not hold the screws to keep the plates in place. Having 2 failed back surgeries, I would be reluctant to have more anyway, but if it were to relieve all the pain I have, I would probably jump on it. Epidural cyst is different than an aracnoid. Mine is in the spinal canal itself I would suggest you get a couple of neurosurgeons opinions before deciding what to do. Just my thoughts...
I am sorry to read about your troubles with your back, I know how painful and limiting this can be.
If I had this to do all over again, I'm not sure I would have a fusion, however, when my condition got to the point of completely handicapping me, I had to concede to the fact I needed something done.
I've had five (5) fusions, and at least I think it's three (3) Lamenectimies.
The first surgery, I had the screws steffie plates and the whole nine yards, from L4 to S1... Sadly within two months of my surgery I couldn't walk for reasons I did not know, I just fell to the ground while caring for my children, and had to be rushed to a hospital.
Long story short, when the Dr. put in the stephie plate and started to screw in the screw he stripped the screw~ then cut off a steppie plate in the shape of a horseshoe and put it between my spine and steppie plate to take up the slack, needless to say he was questioned by my hubby about this, and Dr. said it would be just fine... it was not fine, the horseshoe piece he put in slipped out going straight to my nerves in my spine, preventing me from even walking...
New surgery... second one.. remove all plates and screws... and add borrowed bone...
Another surgery ..third surgery now, borrowed bone did not take... couldn't walk again...
New surgery, add my own bone from borrowed from my hip...
Guess what... failed again.. they forgot to mention that if you have osteoporosis... it might fail... OMGosh... third one failed~~ big time!
Fourth surgery... Doctor once again tried bone from (the bone bank) only this time they did a front fusion/and / back fustion/ anterior / posterior fusion, after six months they could see on MRI that the front was fusing fine, the back side was not, Fifth...
Yep... had to redo the back one.. again taking bone from bone bank..
within six months they could finally see the bone fusing like it should~~
I have been through it all...
Until the adhesions start to form... years after.. resulting in the need for ... are you ready? Yes~ another surgery ...
Only this time it would be a lamenectomy and adhesion removal...
And about maybe two years ago,, or less I had to have another Lamenctomy.
I've since healed, and no surgerys.. thankfully..
I do have more vertabrae that are in bad shape,, above the fusion.. surgery you say??? Nope... I am in constant pain... and hope never to meet with
a surgeons scapal again..
Please research this all you can, and get more than two opinions if you need to to be sure you won't go through all that I have been through..If this helps even one person not to jump into surgery too quick.. I'll feel so much better.
All my best. sorry for the long post... God Bless midwestma
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