Propranolol is not working. I heard there were some trials with Marinol, but I haven't seen any trials. We need to find something for better control. Eating is becoming more difficult. Writing has become impossible. This is an embarrising condition to my husband. I would like to find some help. He is 78 and we have tried neurologists without help.
I have had ET since I was 19, am now 73. Wasn't diagnosed with it until I was 62. I am now taking the following with some success, unless my adrenelin or pulse rate is elevated. Propanolol 80MG 2 tablets in the morning, and 2 more at bedtime, Primidone 50MG 1 tablet in the morning, and 2 tablets in the evening, Topirimate 100 MG 2 tablets in the morning, and 2 more at bedtime. Hope this helps.
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