I have lymphedema, I think, but when I showed a dermatologist my head-to-toe skin symptoms, she told me I came to the wrong place. I needed another kind of doctor, because the cause of this is INSIDE the body. Dermatology is on the outside. What kind of doctor specialist would know how to find the source and treat it VERY effectively?
What specialty does a doctor have to deeply understand lymhedema>?
Added 20 Oct 2011:
Since I asked the question, I was referred to the perfect doctor. He's a Hematologist, a specialist in blood disorders, and that's what I have. It isn't lymphedema, it's a failure of my clotting mechanism and we're doing lots of tests. It may even have become cancerous,,,we will find out, Hemayologists also deal with the lymphatic system.
So this is my own answer.
I would say a Dr who specializes in vascular surgery or perhaps a Dr who does hematology. You could actually start by talking to an internist. The National Lymphedema Network (NLN) (http://www.lymphnet.org/) is a non-profit organization founded in 1988 to provide education and guidance to lymphedema patients, health care professionals, and the general public by disseminating information on the prevention and management of primary and secondary lymphedema. You might find more information there.
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