I understand that MS is autoimmune and can be digenerative. And fibromyalgia is simply painful but isnt necessarily an autoimmune of digenerative disease. I am currently being tested due to severe muscle spasms in my shoulders, arms and legs, tingling and numbness in my arms, legs, hands ,and feet, severe pain and discomfort from my head to my legs, major dizziness lightheadedness, and and am curious if I should be concerned about the outcome of the tests. So far seeing a neurologist who is doing blood work and an upper and lower EMG. My primary doc has had me taking neurontin and flexeril in the mean time. But I was hoping to hear from both MS and Fibro patients, how they were diagnosed and what their experiences are...
First and foremost, always remember that the feedback offered here should not take the place of your doctor(s).
MS and I have been "friends" since 1995. The diagnosis of this disease has improved since then.
The two meds that you have mentioned are not on my list of current medication.
Neurontin seems like a good choice to relieve the numbness and tingling. Not sure that I agree with the Flexeril for spasms though.
I suggest that you :
-see an endocrinologist to check for diabetes
-have MRI's of your brain/c-spine (with/without contrast) to look for lesions
-ask your doctor to test for Lime
Many diseases share the same symptoms so do not just assume that there is just one diagnosis. I do not say this to scare you. This is being offered to you from my experience.
People with ms have different experiences/symptoms at different stages. Unfortunately, a time line of exacerbation's cannot be given to you by anyone.
Here to offer my experiences and lend a hand : )
Keep asking questions!!
I can tell of my experience with Fibromyalgia. I was diagnosed about ten years ago by EMG's and the process of elimination. My neurologist did various examinations and an MRI or a CAT scan (cannot recall which it was now) to determine if I had MS. I also was tested by an Infectious Disease Specialist for Lyme disease, which was negative.
My symptoms are exactly the same as yours! If you google Fibromyalgia you will find many sites that explain it in detail, also some sites show the trigger points (the painful places on the body) that are unique to Fibro. IF you have several of these it may be a possibility that you've Fibro. Do you have "fogginess" at times, like cognitive problems and difficulty remembering things? Chronic fatigue or rheumatoid arthritis? these seem to go along with fibro quite often.
My SIL has MS, and there are new medications that work well, or so I've witnessed with my sister in law. MS is certainly NOT a death sentence nor is it the dreaded diagnoses it used to be in the dark ages any longer!
Best wishes anjeegyrl, please post again, let us know how it all comes out?
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