My health hasnt been good since I waas about 3 years old. I have Asthma, i suffer from migrains, i have spina bifida and a herniated disk in my L4-L5. I have a gi problem, but one gi doctor did a colonoscopy and said from the reasults from the biopsy, that i had ulcerative colitus, but the other gi did one to and said everything was fine, and i was on meds for that for about three years. i just dont know what to do anymore, i feel like im losing myself from the pain and suffering i must go through! Please can someone give me any ideas of what to do!
I am sorry no one has answered yet. I can relate a little. Every year something else goes wrong with me. Now I have quite a list
Do you have 1 doc that you can go to for all these ailments to get relief? Or do you go to each specified dc? Are you on any prescribed pain meds? Seems like you have to get to your doc, the one where most of the pain is, and ask him/her for pain relief. I have migraines too, but thankfully under control now. And just found out I have a degenerative disease in my disc causeing pain and narrowing in the same area as you, so I got pain relief for that. And surgery on the way.
So just saying, try to narrow down these pains, and tackle each at a time with the appropriate doc. Let us know, and keep us posted.
Might I ask how old are you? My son also has Spina Bifida, but we didn't know it until he had back pain from an auto accident. He finally got a spinal fusion at 39 years old. It really hasn't helped him very much as far as the pain. He can't work, doesn't have the patience for SSD; as soon as he gets turned down he gives up etc... He can't get a doctor to give him pain meds because he had some trouble with pot a few years ago & has been labeled an addict. Now he has found out 2 of his 3 children also have Spina Bifada. How depressing. They are 22 & 17 years old now. I'm a mess, & he's a mess with the chrontic pain problems. Would like to hear some more from you. As you can see we all have problems so we are here to listen, & help if we can.
You have a slew of doctors that might benefit from having a single doctor oversee the many. Do you have a general practitioner or even better an internist that can correlate all the findings of these different doctors? Does that make sense?
I hope the neurosurgeon can help you pin point the source of your pain. Have you been evaluated for fibromyalgia? Only a doctor can make the diagnosis. Please be very thorough when you describe your symptoms with your doctor. Write your symptoms down before you go, so you don't run the risk of forgetting something.
I wish I could help you more. Good luck with your search and hang in there, keep posting, there are lots of good people on this site.
i was going to ask about fibromyalgia but someone already has !sounds to me like u might have fibro!i too had a henirated disk same one as u! i just had 3 surgeries on mine ! first one was dec27,10 then again on 29,10 to relieve pressure on my spine and to clean a puss pocket .was doing great got staples out and was geting back to life when i just started hurting real bad called doc who sent me to hospital and admitted me giving me heavy pain meds !and antibiotic i v .had my 3rd surgery during my 10 day stay ! went home with a i v in my arm,hubby had to start a i v every day for 5 days for infection !
i'm now doing wonderful! pm doc has changed my pain meds to what i was on in hospital!fentaly patch and oxy's plus fentanyl citrate 200mg for really bad break through pain ! (it's like a pill on a stick (sucker like but not one cause they do make a sucker )this really helps ) i also have chronic stomach pains too! i pyopls removed from my intestines along with 6 inches of my small intestines ! and i had i b s ,restless leg ,acid reflex ect !come to find out that i had fibromyalgia so this explained the wide spread pain and all the symdromes !sorry about the spelling it wasn't my best subject in school! but i hope you can get some hope in my answer !
we who suffer chronic pain really go through it ! and exspecially fibr pain ! i thought it was all in my head come to find out it wasn't !!
good luck! God bless !
I can tell you out of control pain is like being an animal who is caged and can't get loose, it affects really all aspects of your life the way you eat, how much you eat, your sleeping changes, just carrying on a conversation can be judged as you are being rude or nasty, I think thats why it is so important whatever path you choose to do whatever works for you to regain pain control, There are many compassionate, caring people on this site, I came here at a point in time when it has enriched my life by being able to talk with people who have similar problems, You are welcome to visit this site and let us know how you are doing wishing you the best,
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