major medical event that took 6 months of this year for him to get through, 3 surgeries and with an ileostomy. He went through the DTs and dilerium and it unmasked his encephalopathy,. Some of it has gotten better, but a lot of it is here to stay. He takes Thiamine regularly and so far has stayed off drinking -- ecept for a slip up recently. I am his only caregiver and I just need to plug into something other than al-anon which is not helpful in dealing with this type of dementia
This kind of dementia can be extremely frustrating to deal with. How debilitated is he? Can he care for himself? Does he have to be supervised constantly? Do you have any grown children? I'm thinking of the kinds of help there is out there, to give you a break and help you out. It will help if I know the answer to those questions.
sorry for all you are going through, it is crazy that i have come across this post, for at one time i thought i had wernicke's disease for i have suffered from alcoholism in the past do to the fact i was sexually abused and that was my way of self medicating, i am clean now thank GOD, but i suffer from chronic neuro problems from it...
sorry this not about me it just brought flashbacks when i read this, anyway, if u can hit the comment button and be more detailed in what u are looking for help wise! the thiamine was the first thing they told me to take everyday, so that's good he takes that! if u are saying that it's to much for u as far as taking care of him by your self cause he is to disabled as far as his dementia, then maybe u might want to look into a home health aid to assist you in taking care of him, my father may he rest in peace had a home health aid cause he had parkinson's disease and my sister may she rest in peace, was taking care of him, my dad was living with her but it became to much for her to do on her own cause she couldn't work, go out on anything and leave him and he couldn't go out cause he couldn't walk, was in a wheelchair, sorry i am rambling on, just wondering if this is what u meant that it is to much for u to take care of him on your own cause u work or whatever, i say u hit comment and let us at d.com no exactly what u mean so we can assist u better... they may even have in home help to were they can send someone weekly to talk to your husband and support him as far as alcoholism if he can't get out, so let us no what exactly it is your looking for... sorry again for the rambling... i will say a prayer for u and your husband that GOD gives u guideance...
Hello. So sorry that you are all going through this, contact the doctor and find out what home health care you qualify to receive. Even a few hours a week to help him bathe, exercise, whatever will be beneficial.
A slip to drinking is just the start. And it is not a sign he is doing better or an exception. I am sure you know that. I hope someone has gone through the house and removed all of the hidden bottles, empties and such. My mom and dad were both alcoholics and you could find a small bottle in the stack of spare toilet paper. Inside pots and pans with lids, dirty clothes baskets. You name it. Make sure there is absolutely no alcohol in the house and buddies don't bring it over to have a beer for the game.
The AA does not work for what we call a dry drunk. Someone who does not want to stop like him. However the support groups for family members can be very helpful in understanding his alcoholic disease and how to deal with it. I suggest you go for you to learn in those groups. May find a friend or two who knows your story well. Give it another try or another group. The facilitator is important.
The dementia will have support groups. Again, the doctor has this information, or rather the nurse has it. Also check out your local Senior Center. Not sure his age, but if he is too young, they will still have lists of resources in your area to help. If he is older, they have volunteers to help. I agree AlAnon is not the place for dementia talks. You are dealing with two different problems. You may well need two different groups to get you through this. Karen
I have Wernickes' , though it is not from alcohol but I am consistently frustrated. First of all, you need a neurologist/doctor that understands Wernicke's and that can provide you with some help. Do you have a rehabilitation center that is connected to your hospital? They may have therapist and social workers that can help. They can also help you file for disability. Contact that Social Worker at the hospital where he is having all of these surgeries and ask for help.guidance. Good luck!
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