Or EB. It is a skin condition, and there are many different forms of it. My son has this condition and he is lucky because the form that he has occurs on the soles of his feet, but there are ppl who have the fatal form and it effects their whole body!! It causes painful blisters to form on the skin! People who have it are born with it and the symptoms appear shortly after birth... it can also affect the internal organs in the severe cases!! I am just looking for anyone who has heard of this or knows someone who has this. Like I said, my son is lucky as he has the mildest form but it is still very painful!! But I am grateful that he doesn't have the type that could kill him... any help, support, or info would be helpful!! thanks!! :))