I want to know if there are people of my age who have longer experience with Xarelto and the impact on their active life.
Can I ask how it is effecting your life? If its causing problems for you, there are other anticoagulants. Xarelto just came out in July of 2011 so no one has a really long term use.
I'm 34. I recently got switched to Xarelto after being diagnosed with APS and Protein C & S deficiencies... 38 DVT's later. I also have Factor V Leiden mutation.
I am 47 and had a DVT in July 2010 and then PEs to my lungs in May 2012. Have been on coumadin almost 1 year (and for life). My hema finally feels comfortable on me starting Xarelto which I am hoping to do next week when she is back from vaca. I'd be interested in learning from others' experiences with Xarelto and how it is working for you. A bit nervous but as it has been in U.K. for a few years now I'm hoping it'll be a great replacement for coumadin.
I am 51 years old. I had my second PE attack, February, 2013. This time was almost fatal, so I was put on Coumadin -- like after my first PE -- but for life this time. I got tired of the major food and drink restrictions and frequent blood draws while on it. My hematologist agreed to switch me to Xarelto after two months. So far, I'm not really noticing adverse side effects and am happier with those restrictions lifted.
I am 37 and been on warfarin 1 yr now for DVT.I was switched 5 days ago to Xarelto and feel ok.I was on 10mg of Warfarin and couldn't eat hardly any broccoli,spinach,etc.Still can't help but be paranoid since there is very little monitoring.
So how are you doing on the Xarelto 7 months after starting? I tried the Pradaxa route, off label about 1.5-2.0 yrs ago, and it failed and rightfully has not been approved for DVT & PE. I believe that most people will be happy with Xarelto and soon Eliquis.
How is Xarelto working for you?
I'm 21 (F) and have recently been diagnosed with protein S deficiency and Factor V Leiden. In the past 6 months I've had a superficial thrombophlebitis and just last week a DVT. I've just been put on Xarelto for 6 months and am about to start taking it. I'm just concerned about the side effects and how active you can be in regards to exercise (like lifting weights etc)
I'm 61 and was discovered with a DVT behind right knee approximate. My doctor suggested Xarelto 30mg first 21 days then down to 20mg daily. I started med around March, 2014. First ultrasound in June revealed size of clot smaller, but maintain meds. Second ultrasound read on Oct. 15, 2014 that NO evidence of a popliteal cyst. Xarelto stopped when I received official letter from my doctor. Xarelto worked great, but I also was apprehensive not knowing my levels and if the next ultrasound would be negative.
I'm 66 year old male. I have had three clots with two of them leading to PE's. I was on coumadin for the first which resulted in a scary PE, went six months with no clots and discontinued. I had another clot a year later after a long flight that led to a PE. My third came while on coumadin but seemingly was the result of a biking accident and trauma.After that one, I received a filter as a result of my doc's caution.
After two years on coumadin--did my own checks with a mionitor and generally kept my levels in line-but, any long trip apparently raised my concern /stress and often my levels would get out of whack.
My doc put me on xarelto a year ago. Great to not worry about diet, alcohol, etc!
I, like others, have some trepidation and some worry about "am I protected/is it working".
At this point, I am moving forward though and prayerful and hopeful that it is the right course for me!
I am a 35- year old F who has been taking Xarelto for 4 months after having an ischemic stroke in August. Initially, Xarelto made me feel like I was hovering all the time- I would describe it as almost like a floating sensation. It also made my periods extremely heavy (sorry, everyone). However, now that I am a few months in, the floating sensation has gone away and my period (while it still lasts longer than it used to) no longer makes me wonder if I am going to bleed to death.
If you have initial side effects like I did, your body will likely adapt to the drug.
I am careful not to drink too much on the drug- 2 glasses of wine is my limit.
I'm a 72 year old man, on Xarelto 20 for 18 months for afib. Except for slightly longer bleeding time for skin cuts and scrapes (I'm very active and handyman so I get these frequently) I don't notice any side effects. The approximate 80% reduced risk of massive stroke with only about 1% risk of dangerous bleeding is a great comfort and makes the Xarelto well worth it for me.
That being said, I had an ablation procedure that seems to have restored normal heart rhythm except for a couple of brief episodes. Within a year I hope to get off of all afib related drugs: Xarelto, and brain fog and fatigue causing Sotalol, and Diltiazem if my normal heart rhythm continues.
I AM also on xarelto for afib and dvt. I had a lump on the side of my leg and was told it was a dvt. I dont want to sound stupid but how do you know if you have another DVT or PE?
I'm 52 and have only been on Xarelto 17 weeks so I'm unsure of long-term use. Being my 1st blood thinner I have nothing to compare it to, but know that I haven't felt good since the get go. May be the DVT, may be the Xarelto, combo, regardless, it's all changed my life and I'm learning that even the docs, only have limited treatments and not a lot of knowledge. Seems to me the illness hasn't had tons of research, yet. But w time it will because it's more common than once thought. I get more info from fellow patients vs the docs.
I am a 41 year old female who didn't have my protein c and s deficiencies diagnosed until I was hospitalized with ischemic colitis. Now I have to have resection of my small and large intestine from the removal of the dead area the clot affected. My doctor will not allow me to take anything but warfarin for life now. Has anyone had anything like mine and been placed on xarelto? I too am curious how others are feeling on it?
I am close to your age (52) but have been on xaralto for about 18 months now, will be on it for life as a result of 6 pulmonary embolisms, a large DVT diagnosed as a result of the lung infarction and then a 2nd DVT formation
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