Update and need help! As many of you know, I had an SNS placed in my back, and I did it ASAP AFTER?

that's why I mentioned the difference between the tram tabs 50mg and Ext. Release which has acetophinomen, which my stomach can't take either. The tabs don't bother me.

I'll do that for the wedding definitely, but NOT for an answer to the pain. Too many people need liver transplants after taking too many OTC's for pain. many have lost their lives. BE CAREFUL!!

I hear you, I get my liver checked. But what good is having a good liver when you can't get out of bed writhing in pain, so I take it in desparation sometimes. good luck

Amitriptyline can really help with pain for many people. I have been on it for 4 tries, but my system cannot handle anti-depressants. It will be a trial, but it is worth it. It is a good drug for post surgical pain, neurological pain, and most pains. They have put many people on it it it has helped many, many people. It either works or it doesn't. If it doesn't it's easy to stop. I recommend from past hopes trying it. Cymbalta is another anti- depressant that has helped many people with chronic pain without side effects that are major but worth a try.

I bought a second hand three wheel mobility scooter so I can stretch my aching legs out straight and I can now go places. We had a scooter sized trailer made. I feel a little like I am A little bit like a real living moving person. I can go out alone for the first time in years and the birds, sounds of nature, even human all alone are invigorating.

thank you Kim, I googled it and see it in other countries other than the US at first glance. Am fading here so will follow it up later, thanks for the tip.

Have you tried Botox or epidural injections? I had an epidural injection done years ago for herinated disc pain and it gave me a ton of relief for over a year.

Targinact is another name used in Europe. I'm not seeing it available in the USA but I'll keep looking. Maybe your doctor or pharmist would know better.

THAT sounds like a med that I can use!! Shoot! Oxycontin was really helpful before the formula change. Can't have any injections, I have a bunch of compression fractures from osteoporosis, and apparently you can't have injections with compression fractures. At least that is what the anesthesiologist told me, though I am going to make another appt. with him to see what else he can help me with. He was the one who put the trial in of the SNS, and it was a miracle. I remember going to the gym and using the TREADMILL that week!! I was so excited. It doesn't help with muscle spasms or arthritis though, neither do injections, though I've had thousands of Botox injections in the muscle spasms in my back and buttock. So many that I have bunches of scar tissue now. Just another day in Rebecca of Sunnnybrook Farm's life ;-)

I found Targin, and it might be available in the US, but if you read my latest update on my post, it's not the answer. Thanks though!!

MsFino, just read your update. It goes without saying that the wedding of your son is a wonderful occasion. Us Fibros tend to be perfectionists and drive ourselves deeper and deeper into stress mode. Try to let go of ALL the expectations about everything, bottom line control is an illusion. Enjoy the whole experience as much as possible, and accept yourself the way you are.
Expectations eliminate the wonder of NOW. Mazel-tov

Sorry Targin won't be an option. I guess I was thinking it may be one med to substitute the others, giving more long term pain relief. Congratulations on your son's upcoming wedding. You've not chosen this disease/syndrome, you're doing the very best you can with what you've been given. Would you be able to walk down the isle while holding your sons arm? Or an additional person on your other side? You sound very determined so maybe his wedding day will be a day your pain will be lessened and your strength increased! You'll be in my thoughts. Kim.

Thanks for the Mazel, and yes you are right Kim, I probably won't feel a thing except tears... of happiness :-)

They are in the process of bringing that to the US but it is called something different. Let me do some research and I will find the name for you. I think it is getting close to approval.

They can give you oxycodone with small doses of naloxone in separate pills. Studies are showing this is really working well. It helps to prevent side effects like constipation but it also provides superior pain control than oxy alone. It helps to reset the mu pain receptors and decrease tolerance. I have been watching this one!

Thanks Dzoo, keep us updated!!

Coming off of pain meds when you are in chronic pain makes pain worse, regardless. Not only are you coming off of a narcotic that hides your pain, you are feeling the effects of pain and withdrawal. Not a fun place to be in. Perhaps you need to call your doctor and ask for some meds to help with the withdrawal, such as Trazadone and there are others that take away the side effects of the withdrawal. Best of luck to you!!

Oh honey, I am so sorry about that. Your doctor should be tarred and feathered for what he did!!! I seriously would report him to the AMA for abandoning you without any help! I think maybe you should try a meth clinic if you still are having problems, though I"ve been so busy I see your post was dated five days ago. I really hope that you have been through the worse now. Best of luck to you.

Monday I stopped the oxy and was switched to hydromorphone. For the first time I know where the pain actually is. The oxy caused pain and side effects so great I didn't know where to pinpoint the pain well enough to tell the pain doctor. He gave me a small amount until I could see my primary physician. I called for an appointment there and they refused to see me for 3 months. I had been montering my blood pressure which was all over the map, taking a weekly report to him weekly. No feedback ever, would not give me a prescription for the Any narc until he sees me in July. I have a month's supply. I was put into an impossible situation. Here only a primary Physician can renew under the advice of a pain doctor. I fired him and and in the only process available to patients. They must fire their physician and when it goes through the govt. health line that it has happened, they will find me a doctor who can help me.

Thank you for your comment. My PM DID change my meds, but I have to go off of the old ones first. I'm not going to do that until Monday, after everybody has gone home. I think that my biggest problem is that I can't sleep because of the pain. Gosh, I would do anything just to sleep, but please, no recommendations on sleeping. After 17 years, been there, done that... EVERYTHING. Nothing works, and I think that's why the pain is exasperated! I will "drug" myself up this weekend--- ALEVE--- and take lots of antacids! I'm sure that the pain will be minimal. I have this amazing ability to get rid of it when absolutely needed, but to say the least, paybacks are hell!

You are very welcome!

Rajive, how are YOU doing? Must be so hard getting around and so much pain. Do you have help for food shopping etc. Sending best wishes & prayers

Yes my friend, thanks for your concern, I have a very beautiful wife who takes care of me & my needs, yes walking with a diabetic foot is indeed a pain.

You take care!

Rajive, I am so relieved you have someone to take care of you! It makes all the difference. And she's beautiful too lol, feel good

Ya she used to be at one point of time a rave in the town I met her for the first time - lol - In our community to love marry is unheard off & did it 20 years ago.

Rajive, you are both blessed, love is the only way to go... enjoy and be well,

Thanks, take care & be well!