... little leery of the drugs.com website, but I am hoping to find a group of people with whom I share the UCTD diagnosis. I don't understand it very well, even though I have been trying to wrap my head around it since January 2015. Would like to hear your stories
Hi -- It's a confusing diagnosis, that is for sure. I was diagnosed with UCTD over thirty years ago with symptoms of fatigue, muscle pain, Sjögren's syndrome and photosensitivity. My disease has never progressed, which is what I was told was most likely. In fact, with age and commitment to limiting sun exposure, I feel much better now. I wish the same for you.
I've been dealing with this since 2011. I just recently got my diagnosis and I'm still trying to figure it all out too. I've had uveitis, Sjogren's symptoms, migraines, 4th nerve Palsy as result nerve damage, and a host of all kinds of other things but the worst is the grinding fatigue. I haven't started the antimalarial, I'm still waiting on results from my eye doctor to State whether or not I can.
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