Am worried though how far into the future I'll still be able to work, not trying to look on the dark side but also trying to plan for the future at the same time? should I move into a bungalow or a smaller house, carry on working part time or try for full time again?
I can't answer your questions about relapse, as I've only been on Tysabri for 3 months. But I have found that my relapses aren't as severe. However, I've been talking to other Tysabri patients while getting the infusions and have heard very positive feedback. One man has been on it for 10 years and is working a full, productive schedule as a manager of an international trucking company. Another man started when he was progressed enough to need a scooter. He hasn't been able to give up the scooter after 9 years on the drug, but says he hasn't gotten any worse. I'm hearing similar stories from the patients that I've been able to share the infusion room with. I have only heard one negative response from a woman that hasn't been able to walk for 15 years. She says the drug worked great for 6 years, but after that 6 years she started to get worse. She is, however, still on Tysabri and says that the progression isn't nearly as fast as with other drugs.
- Tysabri Information for Consumers
- Tysabri Information for Healthcare Professionals (includes dosage details)
- Side Effects of Tysabri (detailed)
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Posted 12 Aug 2010 • 8 answers
Posted 6 Nov 2011 • 4 answers
If Tysabri is working, why do I have to stop after 2 years? I am afraid of having my symptoms return
Posted 8 Jul 2014 • 3 answers
I've been taking Tysabri for about 7 years for MS. I've been getting anxious lately-is this related?
Posted 27 Mar 2015 • 2 answers
Tysabri - I have had ms 19 years and at 14 years I had a major flare. At that point I had only had 1
Posted 1 Jun 2017 • 0 answers