I have severe pain due to crohns disease,pelvic floor tension,pelvic adhesive dx, an ileostomy,fibromyalgia and a severe 42 degree scoliosis..my pain is real and has destroyed my life..I have had 13 surgeries also to recomstruct my pelvis..I am on disability..I take fentenyl,oxycodone and soma and many physch drugs..my mental status is finally stable for the first time in my life but do not want to mix up the "mix" what kind of experiences have any of u had with topamax, both physically and physiologically?
No Bloxham, was dying to get my dr. to prescribe it to me for bipolar disorder, as it is supposed to be the only drug for bipolar which causes weight LOSS. I had been told that topomax had been successfully used in Europe for years, for the treatment of this disorder. However, my dr. would not give it, as it is not FDA approved for this condition, and having done a bit of research on it, thus far trials for the drug to get such approval have been disappointing. I do not need to lose weight, but it is often given as an "add-on" to those people who have a severe weight gain problem with these drugs. The consensus seems to be that yes, it does promote weight loss. But it is also called "stupimax"... or the CA drug... that it makes you thin and stupid! On a number of websites, I did read that it can cause forgetfulness and mental confusion.
So those are two things I might not want to acquire for the sake of thinness; at the expense of my cognition and mental well-being.
Hi bloxham, Welcome aboard. My name is David. I have been a surgical assistant for 100 years, it seems that way. really over30+ years. I can truly feel your pain. Just Crohns is bad enough! My God not to mention everything else you are going through. I am not clear why they want you on Topamax, with all of your other conditions, and the drugs you are already taking. Have you already started the Topamax? Do you have a primary doctor that sort of watches over you and knows all of your medical history and medications you take? There are allot of contraindications from Topamax that should be addressed and discussed before you start that drug. I am so sorry for your pain and suffering. God must have a special plan for you! You are a very strong and courageous person. I am so glad to have contact with you. I cannot give you any medical advise, I wouldn't even try.
What I will say if you have not started Topamax don't start it, unless you have really gone over this drug extensively with your doctor. Take care, there is something good that will come out of all your pain. You will be in my prayers. I am going to do more research on that drug. Or even better look it up here drugs.com so you can make an informed decision. I will be back with you soon..Chin up Dave
Hi Bloxham, my pain dr put me on Topomax to wean me off of Elavil and to help me lose the weight I had put on with the Elavil (from treating fibro). I only took it for a month because I developed constant shaking and felt very drugged. I would be very careful before taking this drug. It may work, but it certainly has some potentially harmful side effects.
- Topamax Information for Consumers
- Topamax Information for Healthcare Professionals (includes dosage details)
- Side Effects of Topamax (detailed)
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