... on, under down and wool, usually asleep, unable to wake, and when I did running into walls and unable to keep footing. If I did manage to stay awake, it was only due to the multiple pots of coffee. I COULD NOT read at all, and my life is the NYT and the New Yorker. I could go on - the ocular headaches, the peeing, literally, every ten minutes, but I think I have said enough, enough so the sponsor's will probably press delete, and erase my account
No they won't erase your account. This is a good good website. More people like you need to come foward with their experiences on these medicines. Just because they work with chemicals in the brain... doesn't mean you have to put up and shut up. These big pharmas need to know more about what they put out there for humans. No-one should have to be a guinea pig. Big pharma should make come up with a simple affordable blood test to individualize medicine, so it helps not harms.
Tonka, I have been on topamax for about 6yrs. Or so, and I consider it a miracle pill. I have heard of no such law suit. Please fill me in. I was having raging anger, and without it, I am sure I would have been jailed at some point. I had a few minor issues at first, but they soon subsided, and I have been fine ever since. I take 300 mgs. Twice a day. U did not say what ur dose is, or how long u have been on the med. Wish u luck. Or just ask ur doc to change ur med. Kathynohio
Hello. Well I do hope that you're awake to read this. I too take Topamax. I was on a 50 mg. twice day and then had to enter the hospital around Easter of this year (2010) I then was not so sure as to why just that i know that a bad headach was more than I could bare. But before entering the hospital my mental health provider who prescribed or i thought had done so had raised it to a 100 mg. level and that was at least fine for that time. Yet still my PCP when seeing me in the hospital had then dropped it down to 75 mg and well it had been a roller coaster of a ride for me in taking the Topamax. I now don't care to take it and had not done so for many monthes and now i'm on it again. i'm not wanting a roller coaster ride again.
but now having some other medication issues will be more scared in what will happen next should the medications given to me and what will they do in working with the topamax yet still non the less it has also had some good to it for me as i really found out when that what i had done had some good effectivness instead of a bad one. Yet everyone is different and so is another persons body. what works for some may not always work for others.
Hi. I also took Topamax. It was a living he'll. I'm 36 but I feel like an alzheimer's patient. While taking it I would often go somewhere and then wonder where I was. I couldn't remember simple things and forget about reading and comprehending anything. I've been off of it months and I still feel the same way. My school grades have suttered, my children, and my self esteem.
Tonka, Topomax was one of the worst drugs I ever took. I only took it for about 10 days, buy still it affected me in a horrible way. I see this is from six years ago. I hope you are doing much better. I have a couple friends that swear by the drug, but it is the worst. If there's a lawsuit, I'd be interested.
Hang in there.
I was currently put on topamax. As of now i am having trouble feeling my left arm and hand also my left leg my left knee keeps giving out on me from loss of feeling. Im fighting suicidal thoughts depression. I am not myself at all from this medication. Has anyone recovered from such feelings?
I've been on Topamax since 2006. I discovered I have Osteoporosis as a result of the metabolic acidosis caused by the medication. When I was 27 my doctor took me off the medicine, I had a seizure as a result. The convulsions fractured four vertebrae in my spine because of the brittle bones. I went on to fracture four more over the course of a year, for a total of eight spinal fractures. More recently I had a 9mm kidney stone, though I'm not sure what caused that.
I'm 34 have been taking this since 2014 and I've recently started noticing my short term memory fading. Example: Ran into someone last month, saw her again yesterday and I said "Hey, you got your braces removed!" She said "Yeah, 2 months ago, you mentioned that last time I saw you". Sad part is I have NO RECOLLECTION of ever saying that to her or of ever seeing her without her braces. The worse is the look your kids and husband give you, that's sad :( I started taking Topamax because I've had migraines since I was 6 yrs old or so and I've tried everything under the sun for them (about 15 different pills), I've also tried Valporic acid pills. It got so bad I would end up in the ER 1-3 times a month due to my migraines. Topamax has eliminated the ER runs completely, but I get "bad" migraines maybe once every 2 months, not bad.
My question now is are these memory issues, early signs of worse to come (like what I've been reading in these comments) or can I stop taking them now and try to prevent it? For those who stopped taking Topamax, what did you use as an alternative to prevent your migraines?
I took topamax a while then i started to start for getting things every day things i wanted off of them but docter told me i could not just stop them so as then lowerd my milgams then i started to have strokes 5 of them still i had to take them they want me in hand cuff they blamed it on me but i started taking notes of more things that happened
I have been taking Topamax for migraines & as a mood stabilizer for about 10 years. I've had back & neck pain so bad that i have been to several pain therapists, chiopractors, physical therapists, etc. but no one could ever get the pain ynder control. I never knew this drug could cause pain! My psychiatrist recently upped my dosage & my hair started falling out, I started itching, & my headaches got so bad I couldn't get out of bed. I went to my doctor yesterday & they think my thyroid is bad now. What can be undone that has been DONE? I am in more pain & torment now than I was or have ever been. I am weeing all the time, but so thirsty i always feel dehydrated I am not sure what to do about my headaches, my shoulders, or constant back & neck pain. I itch all the time & I have what seems like a sun allergy now too. Also I can't sleep!!!
I was put on Topamax in April of this year for migraines, starting at 25mg morning and night and eventually topping out at 200mg morning and night. I'm currently on short term disability leave from my position as a researcher while I attempt to get off this medication because of the number it's done on me. I can't think straight. I can't follow a conversation. I can't remember anything. I get lost in places I know like the back of my hand! I certainly can't do my job as a researcher. Spelling? Forget about it. I used to be able to do math in my head. No more. I can't calculate how many days it is until Christmas without a pen and paper and even then it's difficult. Reasoning? Not a snowballs chance. A few months ago on an airport elevator a nice man asked me what level I needed. I couldn't remember where I needed to go. For a long enough period of time that he looked at me weird, I couldn't remember what button to tell him to push.
So I said gates, and I forgot to check my bag until I was almost through security. I had to make up an excuse to run back down and check the bag and then run back to go through the security line again. I traveled for a living for 5 years. This never would have happened without the Dopamax. My new Neurologist (I say new because I'm not going back the the guy who put me on the stuff without warning me what it had the capability of doing... not what it WOULD do... just what it COULD do) is trying to wean me off of it but tapering off brings it's own set of problems. The migraines have come roaring back with a vengeance, the mood swings are pretty horrific, and the panic attacks are like nothing I've ever experienced. So currently I can't work because I can't remember squat or track with a conversation. I'm driving my poor husband crazy because I'm all over the place. My mind and heart are in a dead race most of the time which scares me to death and creates more panic. And from what I'm reading, this probably isn't going to change. This drug is the gift that just keeps on giving.I think it's safe to say that this drug has ruined my life. I'm not a litigious person, NEVER have been. But IS there a lawsuit??? In this case I'd say it's called for.
Tonight I started researching this drug my Wife is been on .Topamax. My wife suffered from migraine headaches. Doctors gave her this drug. It worked ok but now over a year latter my beautiful loving mother of 4 children is suffering.
Summer 2016 Started with Her getting upset very fast and angry like never before.
I love my wife and thought it was from the passing of her mother and delt with it. Her father having Alzheimer's was another mind d game going on within the household.
Summer 2017 We then moved out leaving my father in law at his home with other family.
On our own with the 4 children life was better without dealing with Alzheimer's related repetitive conversations and other related problems with pops.
Wife has had short term memory loss. Many trips to bathroom with loos stools body pain like a heartattac all over. Issues trying to complete tasks and other side effects.
IT really became apparent she was a stickler for doing billing and paperwork and was good with her money .all the sudden my credit card bill is behind 2 payments owed 700+ I was upset. That was the beginning of me wondering what was up. Then not long after the doctor finds out she has OVER ACTIVE THYROID. Is given meds for that . She is now sleepy. I thought she was before. Now she has all she can do to have a good day.
I have had the time to zero in on some issues I see my Wife having and did some research on this drug today... My family is in jeopardy and this drug shouldn't be sold. We home school 2 out of 4 kids and it's taken a toll on this area. My wife is in bed with the kids and that's my evening. She gets up and goes to own bed to only toss all night .she got a heavy special blanket this week and it helps a bit with sleep. My family is worry for her and I now have an understanding of what is up. Doctor added an anxiety med and has been upping it without helping.
Now reading this I know why.
I have all I can do to work self employed and figure out what's eating my family.
And not to mention still behind on bills that didn't get payed because of this happening and my potential credit loss.
Above all I want my Wife back to her normal self.
This has been most helpful and I'm ready to move forward
- Topamax Information for Consumers
- Topamax Information for Healthcare Professionals (includes dosage details)
- Side Effects of Topamax (detailed)
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