I am a 37 yr. old female who recently started taking topamax for migraines. I have them about up to 3x a week. I really dont care to much for the memory lose, blurred vision, or issues w/ thinking, but the thought of weight lose is a plus being I am 120 lbs. overweight. At this time I am having trouble dealing w/ public and doing my daily work and not sure if i can receive SSI.
All you can do IS TRY!! I was about twenty pounds underweight, had fibromyalgia and horrible migraines, and my doctor told me to apply for SSI. I tried (halfheartedly) once and was denied. I am married and we don't 'need' a second income, so I am very fortunate in that manner.
Most likely you will need a lawyer to get SS income. I cannot tell you what they cost because I never persued the matter further.
I tried Topamax for fibro pain, and found the side effects to be horrifying as well !! Ask your doc if there is another migraine med you can try.
P.S. My migraines were caused by a medication I was taking for the fibro!
Hi bjb6977, & welcome to the site. Unfortuneately, I am not a lawyer or a law judge, but have been thru the disability process albeit many years ago. I am doubtful that a condition such as migriane will go thru for the process for disability. I know how disabling they can be too. I had them for over 35 years, but was fortunate enough to find the right medicine that completely has abated my migraines.That med was the injectable Immitrex which I understand is no longer made in the injectable way, just pills. Best to find the meds that will help you or go to a headache clinic. I don't know where you live, but hear there is a great one in Chicago. It took me 2 long years to get disability, & others will tell you sometimes it's not worth the fight. Ultimately the choice to try is yours, but you will be near poverty or at poverty for SSI to be approved. It is a degrading process, & if stress is a factor in your headaches, that will make them worse.
I am not trying to discourage you, but being as truthful as I possibly can. There are so many different treatments today for migraine, what all have you tried? someone on this site has suggested Axert is a good migraine med. I don't know anymore because as I stated mine are now gone. I wish you all the best...
Hi, I have been taking Topamax for migraine for 13 years and have taken three SSRI's with it, Zoloft, Prozac and Lexapro. I am currently taking Cymbalta while taking it. As an added note, the memory problems will continue and the lack of appetite will too. If you loose weight it will work better and you maybe able to cut your doce and this will lessen the memory problem. This has been my experience,I take 200mg/day to prevent daily migraine, if I gain to much weight I get more migraines.
I took Topamax a few years ago but could not work due to side effects so I had to come off of it. In the ensuing years, after 3 separate disability claims, 1st one for 3 months in 10/09, second for 16 months, and now the third which as of today is at 11 months, I am in the process of securing my SSD disability. I work with a fantastic advocate at Binder and Binder, which is a nationwide company and the most successful SSD/SSI advocates. I started this process in February, and after having all medical reports, records, etc - more than 500 pages of documentation, I hope to hear something within the next 30-60 days. My current daily migraines keep me bedridden 4-5 days per week, with the remaining days being a 'functional and tolerable' pain level 6-7!
Good luck to you!
I currently take 50mg i the am and 100mg in the pm of Topamax for Migraines and it works great... I will say as far as getting disability for Migraines..Its definetly worth trying..People get SSI for less... Good Luck And Dont Give Up...
I have a friend that was approved for disability the first try because of chronic migraines. She is still trying to find a solution because topomax and surgeries have failed. Good luck
I don't know about the SSI but i to had migraines and didn't get them under control til we added amitripiline at bed time with the topamax 150 twice a day and i am happy to say that in the 3 years since i have only had 2 major and a few minor as compared to the weekly ones i was having. I'll take this any day.
When I applied for SSDI back in 2004, I was told by the SS Rep who worked my file that you have to have one catastrophic disease (cancer, MS, etc.) or multiple chronic illnesses to qualify for disability. You have a 6 month waiting period from your date of diagnosis before you can file for SSDI. If you have had the diseases/illnesses for, let's say 2 years, a SS attorney will try to get back benefits to the date of your eligibility. Of those 18 months of back benefits owed to you, most SS attorneys take 50% of back pay. You pay nothing if they don't win the case for you, same as personal injury cases. At least that is how they work in Alabama and Florida. Hope this helps.
I am disabled due to chronic migraine disorder. I went to the SS office and applied and my application was accepted in one week. It is in fact a debilitating disease.
- Topamax Information for Consumers
- Topamax Information for Healthcare Professionals (includes dosage details)
- Side Effects of Topamax (detailed)
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