im going to the rheumatologist monday. he is gonna run tests and rule out some things to see if i have fibro. i just wanna know how does fibro make you guys feel. what does your pain feel like. i just wanna see if it is like the pain i feel. im going into this blind. if i have it, im not really gonna know what it is except for something that makes my body hurt. my muscles r tight. they spasm. it hurts to move. or walk. my feet and legs hurt. my back hurts. my shoulders. everything! i can barely get out of bed in the mornings. if this isnt fibro... i hate to waste my time going to the rheumatologist. but maybe he can find out what it really is if its something else. im 25yrs old. i have 2 small children that i cant hardly even play with. its hell trying to go to work everyday. it takes me from 9am to 2pm to pull myself together and make it to work by 3... and i hurt the whole time im there. Thank God i pretty much work alone. i'd hate to be around a bunch of ppl with tears in my eyes all day. the only ppl that know are my fixer and supervisor (i work in a mill). im depressed and at my wits end. my pain management dr is not helping me at all. i read on someones post that it is inhumane for a dr to let someone be in sooooo much pain. thats exactly how i feel about him. it seems like no dr i go to cares. they think because im so young i must be after pills to abuse rather than take for pain. i've posted my lower back problems over & over but they are as follows: deterioration, twisted pelvic bone, nerve problem (cant pronounce the term he used for it), and arthritis. and of course the possibility of fibro for my all over pain. the localized pain im my lower back is thought to be arthritis (by my PM dr). 3 arthritis meds & steriod shots & it hasnt touched the pain! its gotta be something else. my friend who is also my age went to the dr with low back pain, they diagnosed her with arthritis and gave her a script... now she is pain free! what gives? sorry im babbling. this is the longest post EVER! nobody understands. not my parents. not my fiance. not my dr's. NOBODY... but i know you guys are here for me. and you dont know (or maybe u do) how much it means to me. thanks to everyone for your support. and sorry for writing a book!
My mother suffers From FM.
Fibromyalgia (FM) are chronic, widespread pain, fatigue, and heightened pain in response to tactile pressure (allodynia). Other symptoms may include tingling of the skin, prolonged muscle spasms, weakness in the limbs, nerve pain, muscle twitching, palpitations, functional bowel disturbances, and chronic sleep disturbances.
Many people experience cognitive dysfunction (known as "brain fog" or "fibrofog"), which may be characterized by impaired concentration, problems with short and long-term memory, short-term memory consolidation, impaired speed of performance, inability to multi-task, cognitive overload, and diminished attention span. Fibromyalgia is often associated with anxiety, and depressive symptoms.
Other symptoms often attributed to fibromyalgia that may possibly be due to a comorbid disorder include myofascial pain syndrome(condition characterized by chronic and, in some cases, severe pain. It is associated with and caused by "trigger points" (TrPs), which are localized and sometimes extremely painful contractures ("knots") found in any skeletal muscle of the body), also referred to as chronic myofascial pain, diffuse non-dermatomal paresthesias, functional bowel disturbances and irritable bowel syndrome (possibly linked to lower levels of ghrelin), genitourinary symptoms and interstitial cystitis, dermatological disorders, headaches, myoclonic twitches, and symptomatic hypoglycemia. Although fibromyalgia is classified based on the presence of chronic widespread pain, pain may also be localized in areas such as the shoulders, neck, low back, hips, or other areas. Many sufferers also experience varying degrees of facial pain and have high rates of comorbid temporomandibular joint disorder.
I truly hope with all my heart you do not have FM.
Take care and have a good weekend.
I am 34 and was just recently diagnosed with fibro. I have had lower back and neck and shoulder pain along with headaches for as long as I can remember. I remember missing school when I was in high school because I couldn't get out of bed. I have been to doctor after doctor and have been put on meds after meds. Finally, unfortunately, my mom was diagnosed with fibro. I decided to change to her doctor. He was more helpful from the get go and actually ran TESTS instead of throwing pills at me. After my ANA blood test came back positive he sent me to the best rheumatologist in the area (also my mom's doctor). She is a fibro expert. She diagnosed me and said I have probably had fibro since I was at least in my teens, but a bleeding ulcer last winter is what finally made my symptoms unbearable (fibro is often set off by a traumatic experience or illness or surgery). Since my ulcer I have been extremely fatigued.
I had blood test to make sure it wasn't low blood levels from the bleeding. Fatigue is also a symptom of fibro. About a month ago my rheumotologist put me on a brand new med for fibro called Savella. It has made a big difference! I'm starting to get my energy back and I'm not as sore in the mornings and throughout the day. My neck pain only bothers me when it rains. I'm still working to relieve headaches, but everything else is much better. Savella has only been approved by the FDA since Jan 2010 so it's still fairly new to doctors. However, my rheumatologist does lots of research and follows meds from the day they are annonced, way before approved by the FDA. I trust her.
Well now I've blabbed on. I just know how it feels to be so young and so much of a future ahead of you and no energy to enjoy it. I hope you get the help you need. And yes, you should definitely see a rheumatologist, they are the only doctors that can truly diagnose you with fibro. Good luck!
Don't for a minute think that going to the rheumotologist is wrong. Whatever you're experiencing pain-wise sure sounds like something autoimmune. I have severe fibro plus neuropathy. I am about 50% functional with my kids and my life and only that because of the right combination of meds. Go to the doctor and find out for sure what's wrong so you can start to find the right meds for you. Everyone is different. If the meds you're given don't work go right back to the doctor for a change. If the doctor won't work with you like that (this happened to me) then change doctors. You'll feel better as you take and get control of your situation. Also, depression frequently accompanies fibro and like conditions. Consider a psych consult for all the crying. Good luck!
Hi All & God bless you and help you with your pain. I have "P.M.R." or "Polymyalgia Rheumatica" which also carries near the same horrible pain markers as Fibromyalgia, except I get few headaches & PMR pain is mostly above the waist. Even Rhumatologists know very little about PMR, so i'm going where the intelligence is also.HELLO MY GOOD FRIEND MASO4169... hhaaaaallllllpppp!! My worst pain has been my wrists, hands, and i've seen and felt my fingers swell up like sausages [now if I only had some "ketchup" and some good bread... L. O. L.] This is melissab's post, not mine so i'm gonna' shut up for now, but hey Maso, when you get a chance, toss 3or 4 paragraphs on PMR out for us old farts. God loves you and i'm sure is well aware of all the help you give us people who "don't know shit from "Shinola"! (Shinola" is an old brand name for "Shoe polish")
Sacosam I am
thanks all for your advice, support, and stories. i really needed to hear that there are good dr's and treatments out there. i hope we get this thing figured out. i didnt mention this before. im not doing this to brag either... my bra size is 38G... the dr's in the begining were dead set that this is the cause of all my pain. my dr still said i should have a reduction. they were actually trying to get me to have a reduction before they did xrays or mri's... so i would have had my breasts removed and not even know that i had arthritis and all these back problems. i think i live in the wrong state. maybe i just go to the wrong dr's... lady luck has never been on my side! anyways. idk if my large breasts has anything to do with my pain. i guess we will find out monday!
Dear Melissa, I see that you are in chronic pain, and I really feel for you, but did you ever think that your breast size contributes to the pain, and caused all the back problems? Insurance will cover this surgery, and they will leave you with beautiful breasts without hacking you up. This will help your pain immensely. I know you are probably hesitant to go under the knife, but if you find a good plastic surgeon, and have the surgery in a hospital, not the doctors office, or a surgical unit, you will be very safe, and in good hands. AGAIN< you need to find a GOOD plastic surgeon who cares for your health and understands chronic pain.
Good luck sweetie. I know, my mentally retarded sister has 38DDD breasts, and she is petite. I have had fights with my brothers for YEARS about getting her a breast reduction. Now at 44, she has a dowagers hump, scoliosis from the constant pull, and osteoporosis. You don't want more problems added to your plate. Take care of yourself.
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