I'm currently back in hospital again with my 35th flare up since march 14. My longtec has been increased from 40mg to 60mg and my shortec from 5mg to 10mg.I'm also now on creon. Past couple days i'v been getting tightness around area where pancreas is. What causes this and is it anything to be concerned about?
I'm very sorry you have had all these problems with your pancreas. I hope you still don't have this problem. Have your Dr's spoken about a total pancreatectomy with islet cell transplant? I started having complications from Cystic Fibrosis with my pancreas and it was causing more problems. My blood sugars were fine but my digestive enzymes started breaking down my pancreas. After about a year and multiple ED visits, and weeks in the hospital we decided to take my pancreas out. We moved my own islets, the part that controls my blood sugar into my liver. It has been 2 years since my surgery and all though it's been a rocky road but I feel amazing now. I know there are only a few hospitals that do this major surgery and I had mine done at Dartmouth-Hitchcock in New Hampshire. I'm here if you want to ask more questions or fill me in on how you are doing now. Please feel free to ask any questions.
- Creon Information for Consumers
- Creon Information for Healthcare Professionals (includes dosage details)
- Side Effects of Creon (detailed)
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