Thyroid - Any chance that I could get rhTSH augmented radioiodine therapy In the United States?
- 24 Jan 2013 by superhero-goiterman
- 24 Jan 2013
- thyroid disease, thyroid, goiter
I have a large non-symtomatic, non-toxic, multinodular goiter. I had no idea until I had a cat scan done to my chest. I have no problems breathing, or swallowing. The goiter is not visible from looking at my neck. My thyroid is functioning normally. My endocrinologist says it needs to be removed because it is only going to get larger (this was from only 1 FNA - no growth rate established). In my opinion (no, I am not in the medical field) The USA does things backwards. There is a good chance to save my thyroid and possibly avoid lifelong hypothyroidism, or rather no-thyroidism, with rhTSH augmented radioiodine therapy - shrinking my goiter. A common alternative in Europe. Can I get this done in the United States?
One other question -Since rhTSA is not approved for this purpose by the FDA, is radioiodine therapy without rhTSA Used in the USA to reduce a goiter (I don't mean for the purpose of destroying the goiter)? -Without the rhTSA augmentation, the effect would be that my goiter reduction is less but I would have a better chance at never developing hypothyroidism.
Hello. Your question is interesting and I am not a physician either. However, the nodules interest me more than the goiter. Have they been biopsied? Depending upon the type of nodule, different results occur. When mine had a needle biopsy the endocrinologist did not draw many cells and concluded it was fine. I felt other wise and was referred to a surgeon. The surgeon said the scan showed calcifications. I told him I thought it was cancer. He agreed. We did the surgery and indeed it was cancer. My Endo was surprised. This was micro cell cancer with the main characteristic being various size nodules and calcification of the site.
Goiter and nodules are signs of an imbalance in the system. My understanding is that eventually the thyroid is too diseased and one will need to be treated with hormones. Radioactive iodine also destroys the function of the thyroid, so am not sure how this is actually an alternative to not taking thyroid supplements. Since no thyroid function requires the life saving hormone.
However, you say this is a not covered experimental treatment. Would like to know more about this. Do you have a resource for this? If I had more info I could email my Endo and see what he thinks.
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