Unable to have epinephrine in any form due to anaphylaxis. For medic alert reasons, can this be a subsitute or something else?
Can terbutoline be used in lieu of epinephrine?
Added 9 Mar 2013:
My experiences with epinephrine in any form; injections by dentists, anestheoligists and pharmacists thru prescriptions has been adverse consistently worsening over time. When these providers tell me that it's not possible to react the way I describe and proceed to inject me with it, and I am unable to breathe, talk or move it becomes obvious I can't take it. I have been told by medical personnel that I have anaphylactic shock. It's a nightmare because it feels life threatening.
I AM SO GLAD I FOUND YOUR POST! I'm 32 and went into anaphylaxis at age 10 because of epinephrine (yes I'm one of those rare cases that no one believes really exists). It took several doctors and lots of cardio tests to determine that yes it was a legitimate allergy. I remember the doctor coming into the hospital room a few days later and telling me that people believing this would be an ongoing battle. I have come across a handfull of doctors that believed me... more that wanted to challenge the findings. I will tell you what I know and what you will hear from MOST others... and then when I have found is the best substitute.
What I Know:
A true allergy to epinephrine is rare... only a handfull of cases (I bet you've read that line on the internet a lot laterly!)... and good luck finding the case studies b/c they simply do not exist. Many people think the common reactions to epi means an allergy... not true... pulse rate increase, anxiety, pressure on chest, difficulty breathing are common for epinephrine. These are not the signs of an allergy... or even a sensitivity... they are in the "norm" for an epi injection. The only way that I have seen a true allergy to epi diagnosed is when anaphylaxis was the outcome... so you win! The prize? A lot of disbelief.
DO NOT let anyone tell you that it's impossible. Our bodies are made up of mostly water... however, there are currently 7-11 documented cases of water allergies/sensitivities. Even fewer cases of sun sensitivity. The common reaction of you cant be allergic to something your body makes is just not true... even some allergists are not comfortable with this... but it IS reality.
What You Will Hear from Others:
So yes, you are a case study and people... even doctors will tell you it was b/c of something else (they stuck it in the vein, overdosed, it was mixed with something, blah blah). If you tell them epi caused your anaphylaxis then they SHOULD not question it. If someone wants to test new theories... walk away.
There is no alternative to epinephrine... I wish there was but to this day I still can't find a doctor that can tell me one.
What I Recommend:
DO NOT tolerate any doctor and/or dentist attempting to give you epi for any reason. It's your body... be comfortable with the choice to walk away. That is how I found your post today... a dentist felt the need to correct me on my allergy. I told him he was welcome to do so... but if he wanted to test it I wanted my doctor present, a medical team, and my lawyer.
If you think you are going into anaphylactic shock... try to stay calm, bend over a little (or whatever makes you feel less dizzy), sit down if you get tunnel vision during the episode, drink some water, pace your breathing, focus, get clean oxygen if possible (tank) and Benadryl. RELAX, FOCUS, BENADRYL, CLEAN OXYGEN. Sometimes when my body produces too much natural epi I have to try to do some of these things (though this is very rare... I can count on my hands). Stay near a phone or tell someone in your vicinity that you are going into shock and that you should not have epi. This sounds like a lot... but if you've ever gone into anaphylaxis... you never forget the feeling and can feel the onset if you ever feel it again in the future. Once you have these symptoms just start going through the steps.
A doc may choose to use epi b/c it may be the better of choices but that is why I have attempted to master my own technique for calming my body down.
Sorry so long... but I'm frustrated after my epi conversation today and I am excited to hear from someone else who had the same reaction... it is VERY rare and it just reassures my "I'm not crazy" mentality on the issue. :)
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