... yesterday, I can't stop crying. Is this something she got as a direct result of me??? Did my genes pass on this awful wolfe to my own child??? I feel awful..:( I was diagnosed at 22 or so, she has been suffering from many of the same things I did at around the same age. I feared a long time back she may have SLE, but it wasn't until yesterday when she brought me the letter from her Dr. They have her on methylprednisolone and want to try the methyltrexate too. My gosh I feel awful for her.. this is too sad for words. Does anyone else have children that have been diagnosed with SLE? Does this disease only affect only our female children???
Please don't blame yourself ... The precise reason for the abnormal autoimmunity that causes lupus is not known. Inherited genes, viruses, ultraviolet light, and certain medications may all play some role.
Please see the link below ... under causes. Hopefully it gives you some clarity.
I can say that i was diagnosed with SLE lupus in Oct 2007 at 27!! My SLE Lupus was so rare that I lost partial sight in my left eye, which was treated with 8 round Cytoxan chemo, which was awful, but it brought my vision back to 20/20, it dropped to 2200!!! And my mother felt all of the same things that you have been feeling. She does not have lupus but always in the back of her mind wonders if some how she gave this to me, it triggers tremendus guilt, and I always remind her now that I am officially 30 years old, that she had nothing to do with me gettin sick. ALl I can say is be there as much as you can for you daughter and yourself as well.. Spend lots of quality time together and most importantly talk.
Lots of love,
I am also a 31female & just been diagnosed with severe systemic & discoid lupus where it took a while for the dr.s to diagnose me I have been in a flare since the end of feb. It is now may my brain has legions as well as my spleen my father was diagnosed at 22 yrs old he passed @ 44yrs.I have a 15yr old & a 6 yr old sons.I'm scared and on plaquinel 200mg & prednisone 10mg my father and his sister has it too but my aunt is mild she just wears sun screen I can relate to you and am cring cause its the same story
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