... plaqunil & cellcept?
Also, I understand lupus has over 100 different signs/symptoms, however I would like to reach out to other lupus friends and find out what are your biggest lupus aliments?
I myself have had lupus for 23 yrs and what I suffer from the most is, fevers, chronic pain, epilepsy, blood disorders, chronic low WBC count and myoclonic spasms. Through the grace of God I have been lucky to have no major Organ involvement. I have other symptoms that are bothersome (loss of hair) for example but there not as serious.
How about you? What do you take for your lupus, and how much does it effect your daily life?
If anyone feels like sharing I'd love to hear from you? Thank you in advance.
Take care and be well!
Systemic Lupus Erythematosus - How many people suffering from Lupus (SLE) take a combination of?
- 12 May 2013 by bestpup
- 10 March 2015
- cellcept, lupus erythematosus, systemic lupus erythematosus
... plaqunil & cellcept?
Hi, i don't have any experience in this area, but just wanted to say hi, & sorry you are having to deal with all of this. I didn't realise you are having to live with all of these symptoms. I hope someone can answer your question. Wishing you well! D
i have lupus as well as well as degenerative disk disease which has left me with 6 ruptured disk in my lower back, i also have fibro, i have researched a lot of the meds and it is my belief that the strong chemo type meds and plaquenil cause the hair loss and tons of other issues, i choose to treat my pain with Neurontin, 50mcg fentanyl patch, and norco 10 325, however i am goin to a new pain management dr. soon and get off norco because i have been on it 13 years and it stopped working at max dose.
my best treatment for the horribly painful flare ups is getting off all sugar and drinking lots of water, i have heard great recovery stories about "the lupus recovery diet" book! it is well worth a try in place of strong piosonus meds, good luck and keep looking for more natural cures, as sure as the sun shines the newer the med the worse the side effects!!! i have very thick hair and have never lost any, but i dont do steriods are any other bio drugs! hope this helps! oh, i do take a steroid inmy inhaler if my lungs flare up, but i keep it to a short term corse and taper off when my symptons get better!
I have lupus as well it does affect my daily life. I take 15mg of prednisone daily along with plaquniel and pain medication. My blood counts are always way down and I have a lot of joint pain and inflammation. I do not have fevers and hair loss. Nor have I had it affect my organs except in July it caused my brain to swell and caused me to go into a coma for 13 days. I don't know if my answer will help you but I do hope so..
I also have lupus. First diagnosed when my kidneys started failing. Now I am only on Cellcept 2000mg a day. The biggest issue is joint pain but we all do what we can to stay active and healthy
I suggest you seek additional help from a Naturalpath. It has worked wonders for me. More energy and less napping. Good luck to you
I hope you start feeling better soon.
Hi..am diagnosed with sle only one year back..but i suffered the pain for the last two years..first diagnosed when my blood got destroyed(hemolytic anemia)and with RA..got sle as a side effect of drug..i was on azathioprine for one year..but was not tolerable..liver function tests were very high..then stopped it and started with tacrolimus 2.5 mg..prednisolone 10mg..hcqs 200mg..vitamin supplements..now i dont have any pain..but gets slight chest pain wen i have cold which is very rare... i dont take any medicine for pain... but feels tired many a times... i take rest in between my activities... now i dont go in direct sunlight..am full time working as a tutor..goes to the college early and comes back late to avoid sunlight..goes for outing at night..i pray..i care for me..avoids sugar and salt in diet..use only olive oil for cooking..and i see to it that i am always happy..as i want to live long with my husband..:)i would like to know about the water therapy...
I was diagnosed in 2003 and have been on plaquenil 400 daily since. Today cellcept was added to hopefully replace high prednisone dosages. I am working fulltime as a counselor and have to take really good care of myself and rest and eat properly. When my body gets exhausted I can sleep for days but I am managing the chronic pain. Hope this finds you feeling better
- CellCept Information for Consumers
- CellCept Information for Healthcare Professionals (includes dosage details)
- Side Effects of CellCept (detailed)
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
Systemic Lupus Erythematosus - When I was diagnosed with sle I studied to understand more about the?
Updated 18 Jul 2013 • 5 answers
Updated 13 Sep 2011 • 3 answers
Updated 9 Feb 2012 • 1 answer
Updated 14 Oct 2018 • 3 answers
Updated 25 Nov 2014 • 1 answer